Change in arrhythmia

[Happiness29]

Hi, not posted for ages. Has anyone had experience of having pacemaker fitted for one arrhythmia (bradycardia, heart block) and then after fitted start to get a different arrhythmia (tachycardia)? Just trying to find out if this is normal and PM settings need adjusted or unusual to be happening. Cardiologist wants a holter monitor fitted to track what heart is now doing. Thanks for any advice.

[Hidden]

Hello Wishes29

Just to set the context first, is it the case that you are talking about your child? What you describe is not unusual in adults, but I have no knowledge of this in children and I am very cautious about giving you information or using terminology that may be inappropriate. I believe like many that knowledge is power, but I wonder if at this stage a discussion with your GP is the best way forward.

[Happiness29 in reply to Hidden]

Yes it is my child. I’m just trying to determine if normal PM setting adjustments needed. Cardiologist has already said doesn’t think it’s to do with pacemaker. It’s been an up and down road to get to this point so want to have as much information as I can. So I can Investigate and read up on things before it all goes crazy again with lots of visits to hospital. I hate how they talk jargon and then o become clueless.

[Hidden in reply to Happiness29]

Well OK, in an adult there is a condition called sick sinus syndrome (SSS), also tachybrady syndrome. Dysfunction of the sinoatrial node can cause bradycardia or tachycardia or both.

Again I emphasise this may be completely irrelevant to your child’s situation, also that I am not a doctor.

[Happiness29 in reply to Hidden]

That’s great, thanks. I’ll look at these and get a knowledge for them. I’m no doctor either however I feel you need to read things or else it can just run away and got left clueless. I’ve been here before identifying what was causing his paroxysmal heart block. We still don’t know. His tachycardia had a sudden drop to low and this has triggered to get more investigations done. Thanks always grateful for information to investigate.

[Hidden in reply to Happiness29]

I’m sure you already know this, but in England there is the option to seek an out of area second opinion. Being in Scotland could you get a referral to Great Ormond Street if you are still unhappy with the advice you have received?

[Happiness29 in reply to Hidden]

Thanks. Yes I nearly went down that road the last time as was all around the houses to get to where we are. I’ll definitely keep it in mind once they have restarted all the tests again and they have holter monitor readings. Thanks