Hi all
thanks for being there, all thoughts welcome on this, and yes I understand its a group of like people suffering and not expert drs etc, so anything said will not come back to bite you. Like the rest of you, Im not a fool.
I have Sick Sinus Disease, with a pacemaker for bradycardia which cuts in if below 60 beats, and at the last test that was over half the time, I have meds for the AF, ablation failed, but am suffering a lot of increased breathlessness if I do literally anything at all, and this is most of the time now, I take diuretics to help keep fluid all at bay but still have excess.
I know SSD is progressive but it seems to have progressed quite a bit in a short time.
I do have moderate COPD but that's well controlled at the moment, and I know its the heart causing breathlessness not the COPD. Oh, haven't smoked for 10 years now.
Im seeing Papworth on Wednesday and wonder what I should be asking them, or suggesting they try to do? Any ideas? Anyone had similar and improved?
Carole