do you have sick sinus syndrome, with AF?

If so can you share what your medication is and if you get on ok with it please? Im aware of supplements side and just want to know about the medication side please.

I have a pacemaker for the slow heart aspect and cant tolerate beta blockers due to copd and my GP seems to think she can only keep me on diltiazem for the AF, or give me flecanide which nether of us want, but I think there must be other options and want to investigate them.

And who better to ask than those of you who have it!

Carole

8 Replies

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  • Thanks Jo, I will look into those meds, but I don't think I want any Disopyramide. It was called rythmadon when I was given it intravenously to settle an episode of what was actually wolff Parkinson white syndrome, but believed to be svt at that time, and my heart stopped dead and that sort of puts me off trying it again. Wil look at the other though, Thanks

    Carole

  • Oh Jo, I have a pacemaker for the brady, it kicks in if my heart goes below 60. Brilliant. Felt like I have a life back with that in so if you can, get one. xx

  • I have been advised I have additional patches of disease within the electrical pathway so I am too high risk for pacemaker to treat bradycardia and can't have medication to slow AF because of impact on slowing ventricles. The only medication I am on is Rivaroxaban anticoagulant.

  • ouch. Im sorry to hear that. I know how ill I felt before my PM. and feel for you. x

  • if you have been advised by your cardiologist to take flecanide but don't like the idea you could discuss it as pill in the pocket= just to take when needed??

  • Hi, sorry it wasn't clear enough, it is my GP who says the alternative to diltiazem (Tildiem) is to take flecanide and she doesn't want me on that. I have read a lot of bad stuff about it and felt I could agree with her on that. Don't see cardio till xmas this year now as he is happy with leaving me as I am.

  • I have sick sinus and got a pm for bradycardia and PAF. Treated first with bisoprolol (no copd) for several years. Then dronedarone was tried when PAF got worse. Did not help really. Propafenone since oct 2013 150mg x3. For about 6 months no AF. Lately a few symptomatic attacks and maybe things are getting worse. Anyway I'm still doing well. No side effects what I know of. Taking it always with some food, otherwise abdominal discomfort. I think you always need a specialist to start the treatment, not gp.

  • Hi Varina, thankyou for reply, I agree with the specialist comment completely.

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