Just wrote a long post thats disappearead to cyberspace so here is the abridged version:
Following disaterous second ablation I was resigned to living on flecanide for as long as it worked or it was medically feasable.
A recent exercise stress test showed no heart disease but lengthening on QT interval at higher heart rates. Flecanide is a known cause of this so E.P. wants to reduce flecanide and redo test in 3 months. I am concerned because:
1.i walk quite strenuously each day is this still ok?
2.Previously I needed th higher dose to keep heart in rhythm. If I cant take flec what next? HR and BP low so increased dose of bisoprolol no good without pacemaker
3. E.P. doesnt want to see me so will ring arrhythmia nurse but not sure if it should my G.P. that I express my concerns to.
My previous positive attitude has completely disappeared.
Any comments gratefully received.
Jane x
Written by
dedeottie
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Sorry to hear the buoyancy has got lost. Is it time to dip the hand in the pocket and either see your EP privately or get a second opinion?
As for walking, how about consulting a personal trainer and getting to grips with what sort of walking is beneficial and what might stress your heart? Does the average personal trainer arm themselves with this sort of info?
I don't know enough about the alternative drugs but a recent talk from someone in charge of pace makers at St Georges made it clear that they are often used so that beta blockers can be used in AF. Also confirmed that raising HB through use of pace makers can stop the AF in some cases- so don't worry too much as there are some definite last resort things there
I'm sorry you have another hurdle to overcome Dedeottie. Can you ring your EP's secretary with your question on exercise as it sounds like the most straightforward to answer. Take comfort from the thought, though that you probably would have been advised not to exercise if that would be a problem. I would also contact your arrhythmia nurse and discuss all of your concerns as worry is not what you need but a plan.
Best wishes and your positivity will return with advice and sight of the way forward. xx
I rang my wonderful arrhythmia nurse who answered all my questions without hesitating. She says I can carry on exercising as this is a precautionary measure even though it is a necessary one also. If I go into A.F. I have to phone her straight away and she will ask my E.P. what he wants me to do bearing in mind my low HR and BP he will probably want to see me. In the meantime I have to take my HR BP and ecg on kardia at the same time every day. She reminded me that the first ablation may have been partially successful so lower dose of flec may be ok.
I feel much better and back in control again at least as much as we ever can be.
Another way to keep what you've written is to highlight the text and copy it to the clipboard (Ctrl-C). The only ways you can lose it is if (a) you copy something else onto the clipboard, or (b) your computer shuts down.
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Since I upgraded to iOS 10 on my iPhone I have lost loads of info on HUL because the phone screen freezes.
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Disappointed 
Flecanide 
here again
More advice pls 
