It's a great day out there.

[flight39]

I wish you all a wonderful Easter and hope you never suffer the scourge of permanent AF.

[Dodie117]

I have often wondered if it is as awful as it sounds.  I think beancounter on here has it and says he doesn't notice it.  If you have it and are aware of it all the time you have my sympathy. Sorry I can't offer anything more practical.

Happy Easter

[Hidden]

Happy Easter to all. I have permanent A-Fib and it doesn't disrupt my life too much. I mostly become aware of it when I lie down at night. That's when I am most aware of the banging and the irregularity. Otherwise, I can get very breathless if I try to walk too far, or do something strenuous. I had one cardioversion (I was in sinus rhythm for 2 hours or so), and then back to usual. He said I had A-Fib so long (under two other doctors, 16 years in all) that he didn't see it righting itself now. He gave me a choice of staying as I am, OR taking amiodarone and having another cardioversion, OR having an ablation. I opted to stay as I am.

Of the two other cardios, the first retired, and the second I asked to leave. Neither of them had put me on an anti-coagulant. I was on aspirin and Isoptin. This most recent guy has me on warfarin. I never go to the ER, as I know what's going on, and I know they can't really do anything for me.

[Hardjuice in reply to Hidden]

Hi Nuid 

Your are on Warfrin and what other drug ?

And if I may ask how old you are 

Just to compare that's all 

[Hidden in reply to Hardjuice]

Hello Hardjuice,

I don't know if I should have used the term "permanent" or "chronic". My cardiologist said "chronic", and I have A-Fib 24/7. I'm on Warfarin and Isoptin -- that's all for my heart. I also have arthritis, osteoporosis, depression (on and off), migraine, insomnia, and occasionally other bits and bobs, so I've been on a range of meds over the years, and I spend most of my time trying to get off stuff, as every single tablet I've ever been given caused side effects, and some of those were very nasty. I'm 66 by the way!

[sann in reply to Hidden]

Hi there, I too am like you regards tabs mostly antibiotics I think all the antibiotics I have had made me feel really ill I think what is the point of taking tablets that make I'll instead of better. Take care Sann

[Hidden in reply to sann]

I can identify! Best of luck, Sann.

[maxred1]

I am in permanent. I just get on with it. What I have now noticed though is that a pattern has appeared. Four/five days, looking, feeling, great, then it comes on. Spend the next four to five days extremely tired, breathless, edema, then the symptoms disappear as quickly as they arrive. My wife is now very good at seeing the onset. In my eyes apparently. The bizarre thing is that my HR, and BP, is highly controlled, but does not make the feelings and symptoms vanish. I can be truly symptomatic, and HR sits at 73, BP, sits at 117/68, and I can be free of symptoms, HR and BP main constant. I have a note to ask my EP about this at my next appointment.

[angelkisses50]

I am confused, how does a heart rate stay the same in AF?  My HR is usually around 60 but when I go into AF it jumps up to the 140's, and beats very erratic my b/p goes up but I think that is from fear because as I calm down it comes down even though HR is still up.  

[maxred1]

I also am confused, that's why the first question to the EP, will be this. My concern is that there is something else bubbling about.