Next month is two years since my second ablation. Not had any AF since then last night sitting in bed doing a crossword I had an episode. Lasted about 90mins . As before blood pressure shot up, chest and neck pain. You forget how horrid this condition is. I now feel wiped out and have a thumping headache. Am hoping it's a one off can't face feeling like this again every day.
Hoping it's a one off.: Next month is... - Atrial Fibrillati...
Hoping it's a one off.
Written by
Stephanie6637
To view profiles and participate in discussions please or .
43 Replies
•
Oh no, I hope it is a one off too
I'm sorry to hear that. It's a horrible condition when it hits you so hard and left feeling poorly.
Can you think of anything that may have triggered it. Unusual food, drink or stress?
I didn't have anything different. It was around midnight so hadn't had a cuppa or Eaten for about 3 hours. My Ep said the signals can find there way over or round the scar tissue. Would be better if there sense of direction was bad and they got lost!
I have come to the reality that what dosen't trigger Afib?
I know what you mean.
My latest theory (and that changes often) is that we forget to breathe correctly.
Lol
So sorry this happened. Lets hope and pray it is a one time happening🙏🏻
I agree with jeanjeannie50. You should look for a trigger, whether food or drink.
Sorry to hear this. It’s a scary thing to happen. And that’s the problem with AF, it’s never ‘cured’. You get on with your life when you’re feeling great but there is always a niggling thought in the back of your mind that it could be back. Thinking of you and sending positive vibes your way. Xx
Thankyou. I have always told myself it's not cured but is under control. If it happens again I will mention it to my excellent GP and see about having a 24hr monitor. I am still on all the meds I was on pre ablation so not sure what they could do other than ablation.
Which meds are you on? I’m staying on my meds for a while (Atenolol, Digoxin and Rivaroxiban). Will see what my EP says in 3 months about whether I stay on them after that appointment. Part of me is fearful about coming off them (will stay on anticoagulant regardless).
I am on Bisoprolol, Apixaban , Ibersartan and doxazosin. Also on other meds not heart related. My Ep just said it would be best if I stayed on them.
Mine may well say the same 😀
Kaz, Did you use Dr Liu for all of your ablations??
Hope you are still well....
Yes I did. He’s wonderful. When I went in on Tuesday I was looking at all the thank you cards around his office and I have overheard a lot of conversations in the reception area over the last 2 years between Dr Liu and other patients who have been very grateful for how he has helped them.
I get concerned that at 72 I am getting too old for another ablation though, why do you think your other ablations didn't work though??
Did any of them make you worse than before.??
The first two were for SVT (not AF) - I knew my first ablation didn’t work on the day. That was under sedation and it was a horrid experience. After 4 hours my doctor said we’d have to stop as it was too dangerous to continue and said we would try again in 6 months with a general anaesthetic. When he did that one he discovered that there were multiple focal points in the right atrium, not just one causing the problem. Every time they ablated a spot another area of rogue tissue would go crazy. They ablated a number of spots and kept testing until they couldn’t find any more but he told me that I would have to stay on medication as there could be other spots that could go rogue. Nearly a year later I went into atrial flutter for the first time and was hospitalised for a cardioversion. Then a few weeks later I was back in flutter and then AF (which I hadn’t had prior to that). I had an ablation for the flutter and AF. The flutter was fixed but because I had a chronic inflammation reaction the AF didn’t settle down. My doctor has said that I have had far more complications than most people. He said I had a number of aggressive arrhythmias so nothing was simple.
Mine is the head of Cardiology at a specialist Cardiothoracic unit so it's hard to disagree with him.
Stay hydrated I think its imperative water preferably feel better
Hi there, it will be two years for me too in August this year. I’ve not been on any medication since I had mine other than anti coagulants. I’ve not had anything like you but I have started getting very first runs but only for a few seconds and they go, but like you when they happen it takes me back to those awful times when I knew this would be the start of another episode. Fingers crossed for both of us that this is just a blip and it will all settle down again 🤞🏼
I’m the same as you, a year this month since ablation and I’m getting little runs of them now only lasting seconds, but it’s enough to bring it all back. Last night I had a dream that I was back in full AF and with a vengeance and it was only till I woke that I realised I was actually dreaming! But it resulted in me staying up all night unable to sleep after that!
The consultant said a couple of weeks ago they could do a second ablation and that would be done immediately if things got worse. I’m trying to eat and live as cleanly as I can, and get the right sleep etc. The rest is out of my hands really I guess...
Sorry to hear that hope you are ok. I was getting runs of Ectopics but that was it. I eat healthy don't drink alcohol and try not to get over tired. I saw a Orthopeadic Consultant yesterday re something else and said to him about the Episode and he said " Oh dear that's a scary condition". I haven't had another episode since so fingers crossed.
Sounds more like a nightmare than a dream 😱
Well yes lol, come to think of it!
I hope they are just blips. I think it's more worrying about feeling so unwell again than the actual condition
🤞🏼
The EP said to me that the body is quite good at learning how to do what it shouldn’t. Once it learns AF it becomes easier for it to develop it. Like you I feel wiped out even though the symptoms are brief! It’s hard, and right now I struggle some days to hold what I great job down! I can’t afford to lose this job to my heart and I’m fighting everyday not to let it win.
I am a retired police officer and this isn't how I envisaged my retirement. Someone said to me once " but it's only an irregular heart beat you shouldn't feel that bad". I think that unless you have Afib you can't understand how it can effect your Quality of life.
I am ex-police too Stephanie and I had to come out early! First had AF when I was fighting a guy who was trying to stab me on duty. I put it down to adrenaline at first, but it was AF. Then it didn’t rear its head until 2 years later when I was in bed one night. I felt wiped out after I had fib or flutter or SVT hence the double ablation (both carried out at once) once the blood doesn’t get the oxygen it needs, then you automatically feel exhausted and your quality of life decreases dramatically! Let’s hope this is a one off...
Predictors for what is termed “very late recurrence” of AF following ablation are elevated blood pressure and/or cholesterol. Let’s hope that this was a lone episode.
See: stopafib.org/newsitem.cfm/N...
Stephanie6637• in reply to
Hello I certainly hope they are. I have really good blood pressure and a Cholesterol level of 3.1. I do have left ventricular hypertrophy don't know if that plays a part in it.
Mary-miles• in reply to
That is a very informative article It always amazes me when some one finds an article like this that is so relavent to to our health issues.I am 9 months post abalation,no meds except rivararoxaban no A/F either
If you have not done so already I would be inclined to speak to your EP for advice on this. There might be a case for doing an echo test. I suppose the worst case scenario would be that you would need another ablation. I have some LVH and have been told that this can indeed contribute to AF; in my case it’s the result of inadequately controlled blood pressure in the past.
Good morning Steph . I think the best advice is , assume everything you are eating and drinking are toxic tampered with anti what your body needs garbage , go organic everything ,and do the best you can filtering and cleaning your water , personal hygiene main stream toothpaste soap and such are for brainwashed bbc itv sky tv watchers ,brexit tells us clearly that we do not have democracy , we do not get what we the people want , we get what the communist cultural Marxist Bolshevik tyrants give us , which is never what we want .
?????.
I also hope it's a one off. Heck, it scares me the thought of those horrible feelings returning, nearly 3 years free for me. I know it's easy to say but try to carry on without dwelling on it too much, anxiety, stress is not good for AF. It's so true what you mention that others who are 'without AF' don't understand how this rogue condition can affect some people. It can drive one mad looking for triggers. beer was a definite for me, but it was not the only one and I never discovered those. I hope I never have too! It's a finger crossing game and trying to live healthily. You look after yourself.
I know what you mean about the fear. I have only had 2 flutters and no afib, but the sinking feeling of "here we go again" is reported by everyone... My dread is augmented by the experience of being in hospital last month and seeing the EKG flat line for 5 seconds (5 times over) under the cocktail of drugs via tablets and IV line.. However, the euphoria of feeling great when it goes way is also a feature.... Going to push for ablation in July though there is some suggestion my problem is left atria rather than right, and that may be harder to get into/deal with...
Hello yes it did indicate AF and I could feel it. My BP has always shot up during an episode especially at the onset then went the rates slows and settles the BP starts to drop as well
2 years after ablation & still taking all them drugs, thought the idea of an ablation was to do away with the drugs ?
5 days ago it was 2 year anniversary of ablation. 10 days ago, I felt fluttering and rapid pulse. It's happening for under 10 minutes a day. I'm blaming it on (and it started when) I was diagnosed with pneumonia. Than too, at 59, I am renovating a house which is very physical labor. I'm hoping it is temporary, but I don't think it is. I have plans for the next 3 months, if it hasn't stopped by than? I'll probably see if I'm eligible for a 2nd ablation.
Not what you're looking for?
You may also like...
Gallbladder surgery tomorrow, hoping it doesn't kick off the AF
Been so busy at work I've not had a moment to think about this, but the worry is seeping in....
Afib isn't a disease,it's a malady
I have paroxymal afib. I do not feel comfortable taking current meds. I am not convinced that...
FitBit One...a thought!
For several years I've worn a Fitbit one hooked into the centre of my bra...as recommended by...
It's a lovely feeling
As many know on here I've had an awful af journey. Going from episodes last couple hours to...
Off Apixaban
Hi,
I was in asymptomatic persistent AF until my cardioversion in July and have been in NSR since....
Coming off Apixaban
A physical illness becomes a mental one.
Slightly off topic
Coming off meds
