As if P.A.F. isn't enought to cope wi... - Atrial Fibrillati...

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As if P.A.F. isn't enought to cope with......

nikonBlue profile image
78 Replies

I wonder if there's any ladies on here who can give me some info please....

On Monday I was told I have a breast cancer and my world has just crashed around me. I was due to have yet another event monitor fitted on the 28th when instead I will now be in a clinic being told what my treatment plan is to be. I have cancelled the montior appointment as I can't have surgery with that attached!

My point is that I'm very scared of all thats facing me and i know my stress levels are off the planet right now and I have the added worry of what effect on my AF the radiotherapy treatment will have.

I will off course be asking this on Monday at the clinic but just wondered if anyone on here has any experience or knows of someone who has had this situation.

This is a very scary place to be right now. I'm trying to be positive but I just feel broken right now.

Sorry to be so negative first thing in the morning.

There is however a beautiful sky out my window so i might brave it and actually go take a few photos......

stay well everyone

Blue :-(

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nikonBlue
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78 Replies
Peddling profile image
Peddling

I am not able to offer any information or experience of your condition. I am sure others will. I just wanted to extend my sympathy and support for your situation. You must be in shock and I can understand why your stress levels are stratospheric. I am sure this will be a very long weekend, take some time to gather your thoughts and load your questions. There are positive outcomes.

I wish you well and will be thinking of you.

BobD profile image
BobDVolunteer

Hi there Blue and I do empathise. After five years getting rid of AF I found I had Prostate cancer which they had been looking for for some four years or more. I had major surgery to remove not only my prostate but some other interesting bits and pieces which were too close for comfort. A month with drains and catheters, three years of hormone therapy and 33 sessions of aggressive radiotherapy and you know what? No sign of the AF . No sign of my cancer these days either on my three monthly blood tests. That was all nearly four years ago now. . The point of this story?

Yes I had about three days of "oh why me"! when first told but knuckled down and I'm still alive and kicking. Just not as hard as I used to. ha ha .

The best advice I can give is live everyday as if it were your last as one day you will be right, but make sure that is a long way in the future by positive thought.

Stay well

Bob

wendicarro profile image
wendicarro

I am so sorry to hear of your news, life is totally unfair! Just ask lots of questions from all concerned, there will be support out there for you I am sure. You are of course right to off load your fears and feelings here, people are truly supportive.

Please be strong, try to stay focused and don't be beaten by this.

Keep posting,

Take care Wendi x

jennydog profile image
jennydog

Hi Blue,

You've been drawn a short straw and it's a bastard but you will get through it all and you will be fine. .

25 years ago I was diagnosed with malignant melanoma in my left arm when a mole went rogue. I had never sunbathed in my life. I was told that I was going to die. I had 6x more radiotherapy than a breast cancer patient which has left me with a disabled shoulder and cardiac fibrosis.

Obviously I'm still here and I attempt to bolster my immune system by taking a good quality vitamin and mineral tablet, 1000 Vit C and a cod liver oil tablet daily. This is to help my body deal with cancer cells which we all have.

Radiotherapy is just like having an X-Ray taken but you may have to stay still for 30 secs. It is most important that you follow new guide lines to prevent damage to your heart. You MUST hold your breath during the treatment. This is new and it may well be that your radiologist isn't aware of it.

Your AF will be unaffected if you can keep your stress levels down. Aim to go with the flow and stay as calm as possible. Worrying will achieve nothing.

Very best wishes.

jeanjeannie50 profile image
jeanjeannie50

Bless you what a horrible shock! Honestly, we just don't know what's around the corner, do we! I can only imagine how devastated and shocked you must be feeling.

I do hope your treatment will not be too invasive and please keep us informed of all that happens.

Private message me if you want to rant.

Big healing hug, we are all here for you.

Jean x

heather110 profile image
heather110

Hi Blue sorry to hear your news. Don't know what to say other than that.

Heather x

Dodie117 profile image
Dodie117

I realise that this is terrible news and I have no personal experience of breast cancer. However my sister works for local gp in Ireland and sees a number of people with breast cancer. Treatment is very successful for this type of cancer so please try to stay positive.

Let us know how you get on and very best of luck 🍀

Marie

Finvola profile image
Finvola

Hello Blue, what a dreadful shock for you with something that is every woman's fear. I cannot help from personal experience, but I know from friends who have recovered and bounced back that treatment is very successful.

I hope you did go out and take some photos . . .

Wishing you all the very best.

Finvola xxx

nikonBlue profile image
nikonBlue

Thank you all of you for these comments.

I think I need to just go out and shoot the trees every morning (photographically speaking off course) to give me that positive determination.

I also think, hope that once I know what the treatment plans and timescale are on Monday that i will be able to just buckle down and 'get on with it'

I have to...I have a GREAT-grandaughter coming in March and I want to spoil her. That will be 4 generations...all girls!!! Me, a great gran...ha!! Thats my positive goal.

Thanks again guys and yes, i'll let you know how i'm doing.

Blue xx

jan-ran profile image
jan-ran

I can't share any of your experience, but feel I have to say I'm deeply sad for you. The first thing I thought was, well, they can and do eradicate breast cancer in very many cases. I hope all your news is similarly optimistic.

JanR

Rellim296 profile image
Rellim296

I'm so sorry to read this but please don't feel that your prospects are gloomy because there are so many of us survivors who have been able to put breast cancer very firmly in the past. Mine was 23 years ago - have just passed the anniversary of the surgery - and I was sure at the time I wouldn't last till Christmas. You are bound to think the worst, just as AF seems like a predatory killer to start with and that stroke is tomorrow if not sooner.

AF has to take a back seat right now and it might benefit from that and be less bothersome. You have a team of dedicated helpers waiting to get you through what won't be the nicest time but people will be kind and helpful and they will advise your best way forward. You can feel proud to be taking positive steps to regain control of your body, whatever course of treatment you opt for. Even if your situation is far advanced, treatment will buy you time. You will be able to achieve some goals and sort out your affairs - things that are denied to those who come to a sudden halt - and most likely you will be able to enjoy seeing your great grandchild. But far more likely, because treatments are so successful today, is much more future ahead and your check ups will be three monthly, then they will want to see you in six months, then a year and eventually, oh joy, they won't want to see you again. It's not like AF. You have it, it gets treated, it's gone.

But I do think that the legacy of beating cancer is that it makes life feel a little sweeter. Waking up in the morning feels normal to so many and we wake and feel it's a triumph and we value being alive more than we might have done.

nikonBlue profile image
nikonBlue in reply toRellim296

Oh thanku for this comment.

You're reading my mind with all the 'negative' things going through my mind no matter how hard I'm trying to stay positive. The doctors are telling me they are very positive for a good outcome for me and this surgery(lumpectomy) then radiotherapy will hopefully see me through. I am touched when people are willing to share 'their' survivor story and only today i saw a tshirt that said 'I'm a survivor' and it had a totally different meaning to me.

My AF was getting worse and more severe just 3 weeks ago and now this has taken over my life. You're right though about that the worst feeling.

Thank you so much for your caring thoughts.

stay well,

Blue

Rellim296 profile image
Rellim296 in reply tonikonBlue

That sounds most hopeful, nikonBlue. Hold on to positive thoughts!

BobD profile image
BobDVolunteer in reply toRellim296

Amen to that!

NooNoo14 profile image
NooNoo14

Hi nickonBlue. I am so sorry to hear about your diagnosis. I too have friends who have had treatment for breast cancer and they are doing great. I know the complication of having AF means you are stressing about how your new problem will impact on that but I am sure the docs and nurses have lots of experience and will guide you through it.

Sending you love and hugs. Take care and let us know how you get on.

NooNoo

nikonBlue profile image
nikonBlue in reply toNooNoo14

thanku very much. I am really touched by all your support.

Blue x

Just listened to podcast giving update on all the amazing ways treatment for breast cancer can be individualized. Keeping you in my optimistic thoughts!

nikonBlue profile image
nikonBlue in reply to

thank you for that and for your positive thoughts.

stay well,

Blue x

cupoftea profile image
cupoftea

Hi Blue,

I know how you are feeling. Last May I was diagnosed with cancer of the Oesophagus, had to have op which means I have a little tummy in the area of my right lung now the rest of my tum was used to reattach to windpipe. I was very scared before the op, AF paled into the background. Following the op I contracted pneumonia and other complications. Op in August, didn't leave hospital until November not because of op or AF, long story. Started back to work in January for a few hours.

Before the op and after I did practice Mindfulness, very relaxing. and encourages positive mental attitude. Here for you, just concentrate on getting through one thing at a time.

Sending you a big hug and every best wish,

Pat

BobD profile image
BobDVolunteer in reply tocupoftea

Glad you are back on the mend Pat.

cupoftea profile image
cupoftea in reply toBobD

Thanks Bob, do you ever meet nearer than your other venue, I would like to join you.

Keep well,

Best wishes,

Pat

BobD profile image
BobDVolunteer in reply tocupoftea

Hi Pat, due to area covered we tend to meet Taunton way now but I'm happy to add you to my list of passengers. Next one will likely be November so keep and eye out for posts. Be good to catch up.

Stay well

Bob

cupoftea profile image
cupoftea in reply toBobD

Hi Bob,

Thank you, I will keep my eyes peeled.

Take care,

Pat

nikonBlue profile image
nikonBlue in reply tocupoftea

thanku Pat.

I will get more positive. Today I am going out with my friend and I haven't stepped outside the house since I was told on Monday, well apart from the park near my house to shoot some trees (photographically speaking)

Your ordeal sound awful and am glad you are on the mend.

I have a friend who knows all about PMA issues and she is going to keep me going.

Stay well,

Blue x

cupoftea profile image
cupoftea in reply tonikonBlue

Hi Blue,

It is an awful shock when you are told something shattering like that.

Trying to get your head around the situation is difficult but possible.

You are fortunate in having your friend, I have a good friend as well.

Keep in touch, always here for you.

Take care,

Par x

nikonBlue profile image
nikonBlue in reply tocupoftea

thanku so much for your support.

Everyone has been so kind to me. Am having a bit of a 'blue' evening so am heading to bed now and to listen to some nice music.

Thank you and stay well!

Blue x

Mazza23 profile image
Mazza23

My dear aunt had cervical cancer at age 80 then breast cancer at 82 she is now 96 and fit as a fiddle hope all goes well for you xx

nikonBlue profile image
nikonBlue in reply toMazza23

hi there,

Now THAT is most definately encouraging to hear

thank you

stay well (and Auntie too)

Blue x

lingooz profile image
lingooz

I am so sorry to hear that and just wanted to offer prayers and best wishes as I have 5 friends going through or been through breast cancer treatment (none with AF) we all hear to give support and friendly ear during your journey God bless x

nikonBlue profile image
nikonBlue in reply tolingooz

Thank you so much for taking the time to comment.

Stay well and I hope for positive outcomes for your friends too

Blue x

cyrilbarnes profile image
cyrilbarnes

Hi Nikon, just thought I’d add a word or two from a husband’s perspective. My wife was diagnosed with breast cancer after a very small shadow showed up on her regular mammogram. They could feel no lump but decided to investigate anyway and did a biopsy. This proved positive for one of the most virulent forms of breast cancer. Within a week she was in the operating theatre having the area removed. Another biopsy was performed later to check that it had all gone but it had spread quicker and further than expected, so another op had to be done to take more out. This one proved to be successful, so radiotherapy followed and hormone pills for the next five years. She finished the pills about 6 months ago and was given the all clear. I run a post office, and speaking to the ‘older generation’ of women about breast cancer it would appear that half of the females in my village are survivors – some for a very long time. This condition can be beaten and the fact that they are suggesting radio rather than chemotherapy for you is a very good pointer that you will join the survivor ranks. XXX

nikonBlue profile image
nikonBlue in reply tocyrilbarnes

Thanku for that and yes, good to hear from a guy's point of view.

Sadly i am a singleton who had just gone into a new relationship in the last few months so this will be down to me and my family & friends (and all you guys on here) to give me a wee nudge when I need the support.

It's comforting to hear about 'survivors' and I pray i WILL join that club. Tell your wife she's a trooper, and thank you.

Blue

in reply tocyrilbarnes

I believe a main reason she has done well is because of a very supportive husband.

angiek profile image
angiek

Dear Blue,

I am so sorry to hear your bad news, and would echo what everyone else has said about being as calm and as positive as possible. I don't have personal experience of having both conditions at the same time but can totally understand your devastation at the breast cancer diagnosis , having had 3 close relatives go through breast cancer.

I was due to have an ablation earlier this month, but had to cancel when my sister was diagnosed with breast cancer and her surgery booked for the same day! We have always been very competitive and joked that her cancer had 'trumped' my AF - but only for the time being!!!

Anyway she is through her surgery and starting radiotherapy with a very positive approach - now she has had the cancer removed she very much says she HAD cancer and the radiotherapy is just to reinforce the surgery.

I hope your AF doesn't cause you too many problems whilst you are beating the cancer, then take care of the AF afterwards.

My thoughts and prayers are with you at what is a difficult time, you may be weathering a storm at the moment but you have already noticed that the sun does still come out afterwards!

Angie xxx

angiek profile image
angiek in reply toangiek

p.s. Mum's breast cancer was when she was 57, 'lumpectomy' followed by radiotherapy and she is still with us at 88 with never a sign of recurrence!

nikonBlue profile image
nikonBlue in reply toangiek

I'm 61 (lordy tho how did i get to that age so fast?)

and this was picked up at my routine mamogramme and yes there is a lump yet last time i 'checked' which was just around my birthday in June, i felt nothing. Just the shock i guess but good on your mum....thats what i want to hear. Real people with real success stories. x

nikonBlue profile image
nikonBlue in reply toangiek

awww,

thanku Angie,

Everyone on here have all been so very supportive and living alone believe me, reading all these kind word and the positive messages from you all, is partly whats keeping me sane right now.

Thanku and stay well (and your sister too)

Blue xx

sueallen profile image
sueallen

Hi like you I have PAF ( diagnosed 3 years ago) last year I also was diagnosed with breast cancer, I had surgery & 3 weeks radiotherapy, I had a few episodes of AF prior to surgery, I think due to anxiety, no episodes during RT. Hang in there I have come out the other end & have had my first clear mammogram , good luck. Xxxx

nikonBlue profile image
nikonBlue in reply tosueallen

wow!

I'm feeling more and more positive as you lovely people comment.

I was just a tad worried as my stress levels were off the wall on Monday as i went through all the tests and biopsy, as to the effect on my PAF. This is usually whn the racing starts when i get very stressed and anything to do with needles etc sets me in a panic! Will try some meditation etc and am having a massage tomorrow morning....in preperation for my appointment on Monday.

thank you and well done you, another 'survivor'

stay well,

Blue xx

ruskin10 profile image
ruskin10

Hi My story too is one of a fellow breast cancer diagnosis, twice. But here I am 10 years later, thank you Lord!! One thing you find with this is the medics are `on the ball` at least where I live in Merseyside. I had AF before my diagnosis but didnt know it, just thought it was palpitations and feeling faint. Of course when they did an ecg and pulse for operations it always seemed I wasn`t having any rhythm probs, so no one knew until last year when it went turbo and now on medication.

I am one of those people who dont like the words `battling or fighting` cancer. For me it was one day or one hour at a time. Dealing with all the info you are given an questions you have is enough without feeling you should be fighting `this`. Get all the help you can both for your cancer and AF, read as much as you are brave enough to read. I found some days I was so scared I couldnt watch, read or listen to anything that might have `cancer` in it - other times I wanted to know as much as I could. Go with what your up to TODAY and let tomorrow take care of itself. All the docs are working hard to make you well again and Im sure friends and family are praying for a good recovery for you. I remember on the morning before I went into hospital in the afternoon for my mastectomy, my husband and I were so at peace that we went to a garden centre for a cuppa and then straight to the hospital ward. BUT of course, every day was not like that.

Will be thinking of you and your journey

Pat x

nikonBlue profile image
nikonBlue in reply toruskin10

oh bless you Pat.

Thank you for taking the time to comment. I'm so glad you're well again. You are so brave to have come through all this. I only hope i can find strength and positivity in all thats to come.

thank you

Blue x

eleanor--1941 profile image
eleanor--1941

Thinking of you Blue.

Eleanor.

nikonBlue profile image
nikonBlue in reply toeleanor--1941

thank you so much.

You guys are just being so supportive and none of you know me.....now thats just amazing!

Stay well

Blue x

cassie46 profile image
cassie46

Hi Blue

Sorry to hear of you problems. I was diagnosed with breast cancer in 9th jan 2014 - next day ended up in hospital, had had breathing probs and fluid retention for several weeks, but GP put it down to stress awaiting my results. Was diagnosed with heart failure then AF. Was in hosital for 11 days. The breast cancer op had to wait to get me stabalised, I was prescribed Letrozole (breast cancer drug to help shrink the lump hopeull) and eventually had it in June 2014.

I was very lucky that mine was a small lump and only had to have a lumpectomy (think that's how you spell it) and some lymp nodes removed had a great surgeon. Apart from the scar you can see very little difference in the breast. I had no problems with the op all went very well, I am in permanent AF but heart behaved itself througout.

I still take Letrozole and have to for another 4 years. six weeks or so after op I had radiotherapy. It is quite painless but a bit of a pain as it is three week of continuous treatment, gets a bit boring going every day. It should not affect your AF at all but it does leave you very tired after about ten days or so and goes on after treatment finishes. But this eventually goes. The side I had effected was my right side so radiothery given was not near my heart. The radiotherapy is given directly to the affected area and measured very carefully and also the lymp nodes. I did have a bit of a sore shoulder for a while but that went in time. All in all it did not effect or provoke my AF. the tiredness was main problem (I am on biso and other heart tabs, I donn't get the tiredness that some peeps get with this, but it is possible that it didn't help). I had my 12 months review in June and all was clear.

Has the surgeon told you what op you will be having is it just a small lump or has it spread. Please cheer up it is not the end of the world - you will get through it. The breast cancer team are a wonderful set of people at my hospital and looked after me well. I was only in hospital for 2 days, op one day discharged the next. I donn't know what general anesthetic I had but was quickly away with the fairys and when I awoke I was full of beans, phone my hubby 1/2 hour later, no sickness or feeling of and was up and about very quickly. I had not food for 24 hours and was absolutely starving , I demolished my supper very quickly.

Well from being told on one day that I had breast cancer then emergency ommission next day to cardio, I guess that was a shock to my system. Bu still here and chugging along quite well.

Hope this helps and good luck with your next steps with you breast cancer journey. If you want any further info let me know (I will be away from sunday for a week or so)

Best wishes Cassie

nikonBlue profile image
nikonBlue in reply tocassie46

Cassie,

Thank you so much for this.

Yes, i'm having a lumpectopy the radiotherapy and should be given the treatment plan on Monday when I go back to the clinic.

Ironically, my AF has behaved itself since ..... 2 weeks today in fact. I got the letter the day before I was flying to Italy (last years xmas pressie from my son & daughter in law) so as I was travelling alone, the week was marred a bit when I allowed the worry of the call back get to me. But i did manage during the days to go out and explore this beautiful city.

I am trying to remain positive and I am that kind of person anyway so am hoping that will see me through. Just get moments where that positivity deserts me and i crumble in tears. But a good shake later i busy myself and try again.

I'm also glad to read your comment about the scarring left. I know it doesn't really matter, but that has been a bit of a worry. It's not like there's a partner, I'm very much a singleton!!

Thank you again and I'm thinking on keeping a diary of this journey....though i'm not sure as a photographer i can ask the surgeons to 'pose' for the diary!!! See, I'm still 'me' and saying daft things.

thank you very much

stay well,

Blue x

cassie46 profile image
cassie46 in reply tonikonBlue

Hi again

You mentioned that you had worried about the scarring. If it is a small lump (mine was to the right side low down) you should be okay. My surgeon said he woud take as little good tissue away as possible and just leave me with a scar. He has done this (you can feel a little indent if you press firmly) but visually it looks good. The scar is now fading nicely - the incision was glued together with just a couple of small suters so a pretty neat scar - no stich marks either side along the scar!!! I expect you will have to have a few lymp nodes removed this is a precaution to make sure nothing has spread, but that was a tiny incision under the arm pit and cann't see that know. Hope all goes well.

Cassie

nikonBlue profile image
nikonBlue in reply tocassie46

hi Cassie

Yes, you'll see from my recent comment that I scared myself witless yesterday by looking at images 'after lumpectomy'...wasn't one of my best ideas. My lump is right on top of my breast in the middle and yes I was told they'd remove some lymph nodes. I'm on my own (and think i always will be now) so my fear of what it will look like is just my own fear of seeing my body all disfigured. Not vanity.....just downright scared!!

Thankyou for this though, yet more positivity!

I will know my treatment plan tomoro so fingers crossed I get through the surgery soon so the RT can get doing it's job!

Stay well,

Blue x

PeterWh profile image
PeterWh

Very sorry to hear your bad news. Key is to accept that you are where you (I know easier said than done) are for what ever medical reasons and also that you are positive that you are going to beat the cancer in your own mind and demeanour.

My father had a saying "life's changed not ended". Putting this in context his father had a heart attack one afternoon and then a second one the next morning which killed him. Harsh way. When my father was diagnosed with bowel cancer he was told 1 year max (he didn't tell us that it was so short at the time). However he was very driven, very positive and kept going. He had op and also chemo and some (then pioneering) sound blasting of secondary's in liver. I think went on to live for 5 or 6 years after initial diagnosis. Both his oncologist and his GP were certain that his positive drive significantly extended his life.

nikonBlue profile image
nikonBlue in reply toPeterWh

thanks for commenting

I'm trying to be as positive as i can.

I'm a photographer and aim to still be doing the work I love.....for a while to come.

Just in a scary place right now

Blue

loobylou777 profile image
loobylou777

Hi there Blue

So sorry you are having to go through this. Yes a very scarey place to be. But you will get through this. You will get lots of support from some lovely people along the way. I had my first breast cancer when I was 50 and a recurrence when I was 56. I had surgery, radiotherapy and then chemo. I am 16 years on from my 1st diagnosis and doing fine (apart from the af that is ! )

Of course you will have days when you feel scared and you're entitled to a good cry - gets all those pent up worries out! Keep positive, keep busy and don't be afraid to accept help from friends and family as radiotherapy can make you feel tired

Breastcancercare.org is an online support group that I found really really helpful. Practical advice as well as support from other ladies going through the same as you

My cancer had spread to lymph nodes and I felt sure I would not be around for long but I am pretty headstrong and made it my mission to do everything I could to give me the best chance. Good healthy diet, exercise, keeping close to positive and supportive family and friends and visualisation

Keep strong

Sending cyber hugs!

Linda

nikonBlue profile image
nikonBlue in reply toloobylou777

Hi Linda

thankyou so much for these encouraging words.

I'm back tomoro for the results officially of what they've already told me and am scared witless that there may be worse news. I know, thats not being very positive but thats the current worry.

I made the mistake yesterday of looking at images (I'm a photographer remember!) of what my breast may look like after the lumpectomy.....and that sent me into a total meltdown. I shouldn't have done that but how do I cope with that too?

I will look at the support group you mention and having just 'got rid' of the man in my life who said he would "be there for me every step of the way", which off course has been very hurtful, but I have bigger battles to fight and I WILL. I WON'T let this beat me.

I apparantly have nothing in my lymph nodes so am praying thats a really good sign, they tell me it is but they also said they'd remove some during the surgery anyway. Then the radiotherapy will begin. I should know my treatment plan tomoro.

I'm going to keep a diary of this tough journey and I thank you, all of you guys on here who are giving me so much support.

Stay well, you've come through so much and must be a very strong woman....and I will be too!

Blue x

loobylou777 profile image
loobylou777

My heart goes out to you. I remember those early days so well The waiting is indeed the very worst part. Once you know what you have to deal with ( and I'm sure it's no more than what they have already told you) it somehow becomes easier and you just get on and do what you have to do.

Wishing you the best news tomorrow. It's not an easy journey but you will cope. I have had friends and close family suffer with breast cancer and they all somehow find the strength to get through. My Uncle had a mastectomy 4 years ago (men get it too!) at the age of 77 and he has just celebrated his 81st birthday!

Take care

Linda

nikonBlue profile image
nikonBlue in reply toloobylou777

Thank you again for your calming words of positivity.

I think right now, I am feeling just so frightened of the next step. As you say I WILL find my inner strength and bravery to face it all once I know there is only going forward on this journey. 81? thats would do me very nicely! I could see my grandchildren grow up and my new GREAT-grandaughter who is due beginning of March! I have so much to fight for......and there are ALWAYS photos to be done (I'm a photographer remember!)

stay well,

Blue x

Musetta profile image
Musetta

Dear Blue,

My very, very best wishes to you and I hope all will be well with your health.

Cheers,

Musetta

nikonBlue profile image
nikonBlue in reply toMusetta

Thank you so much. Honestly can't believe the amount of support my fellow AFers are sending.

stay well,

Blue x

Hi Blue

This doesn't mean you're going to die! A friend of mine had a very aggressive form of breast ca in 2002 and (touch wood) is absolutely fine, no recurrences at all. Of course your anxiety is off the scale at present and I really feel for you, but it will get better. And you will recover too.

nikonBlue profile image
nikonBlue in reply to

things are all looking positive so far and the doctors are all going for 'cure'. I think surgery will be a week on Monday but it'll be 6 weeks after that before the radiotherapy starts so long road ahead but am really trying to stay positive. Thank you for your supportive words x

cyrilbarnes profile image
cyrilbarnes

Great to hear. My wife got through it , and so will you. XXX

nikonBlue profile image
nikonBlue in reply tocyrilbarnes

thanku ! x

nikonBlue profile image
nikonBlue

Hi all,

please can any of you reassure me....I went this afternoon the hospital to meet with the surgeon who will be doing my op only for him to tell me that because of my PAF the anethsetist may be unwilling to give me a general anesthetic.

You ladies who have been in touch, did you have a general? I'm 'booked in' for the surgery on Monday morning but been told I may just be sent home again....how do I deal with this? I'm so upset. Surely people with AF can have surgery....

Just feel it's one step forward on thei horrible dark journey then 2 back at the moment. I just want this done so I can recover then get on to the next step.

Be really glad of some advice here guys.....thanku.

Blue :-(

Rellim296 profile image
Rellim296 in reply tonikonBlue

Oh sorry to hear this - how much is that not what you wanted? So unsettling to not know exactly what the programme is going to be.

Lots of people have a general anaesthetic for an ablation.

Looking back to when I was in your shoes, I do wish that before the surgery I could have seen myself living on all these years as I have done. I was not at all hopeful as it is hard to see things going the right way. Hold on to the fact that things can and do go well and see that light that's at the end of the tunnel. It's ahead for you. The situation sounds very hopeful and this is just a temporary upset that may be all resolved by this time next week. Brush your worries aside as much as you can and assume that all will go as planned on Monday. Do keep us in touch.

nikonBlue profile image
nikonBlue in reply toRellim296

hi,

thanku for that little bit of encouragement. Yes, I have to confess that yestersay for the first time I started to fear that I just wouldn't be here to welcome my great-grandaugter into the world in March. My positivity abandoned me yedterday. I panicked a bit that yet another delay while this lump is still inside me, must be making it worse.

Am a little bit calmer this morning but will be getting in touch with my breast cancer care nurse today.

Thanks again and stay well.

Blue x

Rellim296 profile image
Rellim296 in reply tonikonBlue

March isn't far away. Believe that you are going to get there! It must be a little lump, small enough to be dealt with without a huge amount of surgery and finished off for good with some radiotherapy. It's not going to look too bad at all and this time next year you should be fighting fit (AF permitting!) and enjoying being a great grandmother. Look forwards in the long term and don't dwell on the immediate future. Push away those pessimistic thoughts and don't worry about things that might not happen! As much as you can, that is.

I'm sure your nurse will have good things to say.

nikonBlue profile image
nikonBlue in reply toRellim296

wise words!!

thank you......and off course you're right, i just need a kick up the backside!

I'm a gemini and we are born survivors and i'm usually a very strong independant woman. I live alone by choice and have great friends who are offering support. I'm a photographer and even some of my fellow snappers are rallying round.

YES! Time to look forward....and to that great grandaughter's arrival!

Thanku :-)

Rellim296 profile image
Rellim296 in reply tonikonBlue

Yes, I was thinking I should have said March and your great grandchild aren't far away.

I think you may well find that the weeks ahead and the treatment that you are embarking on will make you even stronger in the future and will be, in retrospect, something to give you encouragement whenever life springs some challenge. See if you can rise above this wobble and don't let it discourage you.

cassie46 profile image
cassie46

Hi

Have just returned from Devon and have been computer-less there so only just seen your new news. I do not understand this at all. I had a general anaesthetic and no probs at all, they have to keep a careful eye on you though. I had a meeting with the anaestatist a week before my op for all the normal pre-op tests, so I do not understand why this has not been done. My first op was cancelled only because it was found I had AF the day after cancer confirmed, so surgeon waited a few months to get the AF stable.

Cassie

nikonBlue profile image
nikonBlue

Hi Cassie,

I'm going tomorrow for the pre-op thing and hopefully all will be well, however, this afternoon I had 2 (quite large I admit) glasses of wine with my son as he and the family are flying off to live in Singapore so he took his mum out for lunch....then around 2pm....off it went and this was the first 'eposode' i've had since the one I had in Italy!!!! I am hoping it was just the wine. Lasted 2 and a bit hours but my readings went haywire. I took my evening meds a wee bit early and within about half an hour all settled down.

I assume at the end of the day so long as on Monday morning i'm not in AF i'll be able to have the surgery....what an added worry. I really just want this op done and out the way.

thanks for your reassurance once more.

Blue :-(

PeterWh profile image
PeterWh

I have been told by two different consultants who I have been seeing (on non AF / non Heart matters) that these days they minimise the use of GAs for AFers and only use sedation or locals if at all possible even if that is not the norm. However if the op is essential then they will use GA if necessary but take extra precautions. This is because GAs apparently encourage AF for some reason(s) and even for those in persistent AF (like me) a GA can make the AF symptons worse. Obviously cancer is an essential op!!! Apparently tere are also different types of GA!!!

One of the ops they won't currently do on me in my foot / ankle as it is classfied as non essential and don't want to do even though it would only be under local.

However with GAs, sedation (and many other things) the policies vary from hospital to hospital and from consultant to consultant. Don't worry tonight because they will sort something appropraite out.

cassie46 profile image
cassie46

Hi Blue

I am in permanent AF and they still went ahead. I think they use a lighter GA, I know I came too very quickly and was wide awake quickly. Did not feel at all groggy or sick (I know I was given a anti sickness injection after op before I came round and a pain killer) was up and about within two hours and absolutly starving as I had by then not eaten for 24 hours, polished of a hearty supper (well the best the hospital menu could provide!) I was told all went well with the op no probs with the AF. Also although some discomfort and a bit sore after op no real great pain just a niggle

Cassie

nikonBlue profile image
nikonBlue in reply tocassie46

now thats definately good to hear Cassie!!!

Blue x

cassie46 profile image
cassie46 in reply tonikonBlue

Hi Blue

how did everthing go, not heard from you recently

Cassie x

nikonBlue profile image
nikonBlue

hi Cassie,

Lump removed and lymphnodes are CLEAR!! But, am having a 2nd surgery a week today :-(

Been ok, and 'almost' coped with the little pain and quite a lot of discomfort however the news so far is good.

This morning i'm seeing my own gp as there seems to have been a bit if a ****-up with my AF meds......in the fact that my cardiologist last monday decided to increase the dose on one of my AF meds, eh, which I don't actually take anyway!! Looks like i should have been on 2 different things all along. Makes me feel almost 'lucky' (sounds ridiculous) as I think my cardiologist was thinking of more invasive treatments, which may now not have been needed. Also goes a way to explain why the episodes i've been having this past few months have been worse and lasting into days!

I also have developed lymphodemia and have this hard swelling where the lymphnodes were removed. Very uncomfortable but guess i will find out what happens with this later this morning.

Still having some very 'blue' moments then pick myself back up and appreciate how lucky i am in as much as i still have a breast and so far things ARE looking positive. Thanku for caring

stay well,

Blue x

dedeottie profile image
dedeottie

You are bound to feel blue as your emotional and physical being have had a massive shock.it's great news that all looks clear though. Just allow yourself time. X

nikonBlue profile image
nikonBlue in reply todedeottie

thanku very much for your message. Am gearing up for this 2nd surgery on Monday though def not looking forward to the 'needles'...eeek!!

Blue :-(

jeanjeannie50 profile image
jeanjeannie50

Just wondering how you are now?

Jean

nikonBlue profile image
nikonBlue in reply tojeanjeannie50

hello there,

Am ok after yet another cancer scare. I had to have a biopsy done a few weeks ago on my jaw but got the result just a few days ago that it's a aneurysmal cyst and it's benign...thank goodness. Had a terrible bruised face a few days after the surgery and had to hide away for a bit. Looked like i'd been in the boxing ring!!

Still awaiting results of recent breast scan though as another lump has decided to appear but doc thinks it's scar tissue from my previous 2 breast surgeries.

All in all I'm very lucky and am coming up to the 3 year clear in a few months so as they say, it's onwards and upwards!!

thank you for asking how I am!

Stay well

Blue xx

Petrified profile image
Petrified

I'm really sorry that you're having such a terrible time. I'm sure there are people on here who will be able to offer you advice. I hope you have a positive outcome. Good luck

Hi Blue. I am so sorry you have to go through this. Early on I believe until you know what is found and what treatment will be the 'what-ifs' of the unknown are the hardest part. Reading some of the posts reminds me how many of us survive cancer in this day and age. Statistics tell us many more or us survive long term than not. I had 2 cancers: Larynx in 1984 and Uterine in 1999-both with surgery followed by radiation. Here I am 74 years old in 2018. I am praying you have an easier time than what you are expecting. xx Take care. irina PS my a-fib is doing well also-in my 8th year. PS just noticed the date. I'm hoping you are feeling well and your a-fib is fine. xx irina

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