well, its been an interesting journey and I am complex. I have had AF for 15 years some times worse than others. 2 Cardioversions, 1 lasted 5 months the other 13 months. Had a ablation March 2014 but ended up in A/E in Jan 2015 and scheduled for 2nd ablation...... here the fun starts
I had weight loss surgery in 2008, a differ procedure to most called a duodenal switch which means I malabsorb some things (ie 50% protein so on high protein diet life long) - lost 15 stone and in much better place in some ways - however warfarin & I are not friends. We do have difficulty in controlling my levels.
I was scheduled to have 2nd ablation in March. INR dropped to 1.5 5 days prior to procedure so GP & I worked hard to get it back into range. Day prior to procedure it was 2.6 but on the morning it came back at 1.8 and I was cancelled (just as getting onto theatre trolley). They discussed other anticoags but decided I was not suitable for them as they can't be monitored in the same way with blood tests and they would be shooting in the dark so to say with my blood consistency.
So, deferred until 11/5/15 then was put back 4 days until 15/5/15. They recommended regular bloods (2-3 times a week) in the 3 weeks preceding procedure. My GP goes on hols and a new lady GP decides to recommend dosages I know aren't right for me but won't listen to me (she said to receptionist tell me "This is my judgement, if you don't follow my advice on your own head be it") -
so I followed her recommendations and watched it drop out of range. She then wanted to up warfarin to a level I know I go extremely high on - I expressed concern and was told the same - follow my advice...... In desperation I contacted the hospital team for advice and they totally took over my care and bloods.
I have attended 3 times a week, taken their advice and mostly stayed in range - currently 2.2 - another test tomorrow. All tests there are venous. I am terrified it will drop like it did before and was hoping it would be more like 2.8. On current dose (2mg/2.5mg alt days) I am maintaining or moving up 0.1 (from 2.1 to 2.2 in 3 days) so I snuck in an extra 0.25mg last night so it was 2.25mg instead of 2mg - eek - did I do right?
Problem now is I have developed a sore throat (Sunday night) - decided to use tyrozets but no paracetamol as not sure if it affects me. (months ago had 2 paracetamol and INR jumped to 5.2 & couldn't work out why ? paracetamol or no real reason)
Sore throat travelling into ear.... what do I do.... am seeing cardio nurse 9.30am tomorrow for bloods. Taking lots hot fluids, not really coughing but cleared throat and a little creamy phlegm
Do you I might be cancelled again - could cry