My turn to support but how? - Advanced Prostate...

Advanced Prostate Cancer

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My turn to support but how?

Mgtd profile image
Mgtd
5 Replies

I received a text from the WIFE of a buddy. She said he has been diagnosed with advanced PC. She had no real particulars other than it was in his spine, pelvic area and lymph nodes, bladder, etc. The really scary part of the text was she sounded upbeat because the doctor was very optimistic- just radiation, some ADT in pill form, no Chemotherapy. Just a walk in the park.

My first thought to myself was “holy shit” that is not what I have read here over my time on how to deal with advanced PC. Where is at least two forms of ADT and possibly Chemotherapy, etc. I guess my knowledge from this forum and my personal experience is driving me to question what I heard Or am I being over reactive. Of course I did not say any of that it was just racing through my mind.

Any way I would like some suggestions on do I wait for him to contact me? She reached out to me not him. How do I start the conversation if I call? Where do I send him for help with this? His wife did not know any specifics like PSA, test results, etc. All she knew was he started the pills, had a RO appointment in February. Nothing more! To top it off she just finished breast cancer treatment for a year.

Any thoughts and suggestions would help.

Thanks!

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Mgtd
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5 Replies
speranza10 profile image
speranza10

Try to get a second opinion, I don't know the details but now in these cases we start with ADT + darolutamide + docetaxel.

TeleGuy profile image
TeleGuy

I’m suspecting that this treatment plan came from a urologist. Once it’s spread he should be seeing a medical oncologist specializing in prostate cancer. Bonus if you can get him to to to a center of excellence.

Mgtd profile image
Mgtd in reply toTeleGuy

Yes you are correct. My thinking too. He lives 15 minutes from Mayo but the issue maybe a Medicare advantage versus a Standard Medicare. There maybe another one in Phoenix that takes Advantage plan.

Darryl profile image
DarrylPartner

they should sign up here. You shouldn’t be burdened with repeating what they can simply and helpfully read for themselves. And they can post their own questions here in real time. They are welcome

Mgtd profile image
Mgtd in reply toDarryl

I already sent them the link. I agree.

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