Are you confused about Malecare and HealthUnlocked?

[Darryl]

I’m Darryl Mitteldorf, the social worker who started Malecare. Malecare amplifies patient voices, drives research focusing on quality of life and underserved communities, and addresses patients' real-life concerns.

I started Malecare in 1998 when I identified a problem in the healthcare system: the inability to allocate resources efficiently and the siloed nature of knowledge across different stakeholders. Malecare tries to solve two main problems: patient isolation and patients feeling lost.

Isolation, anxiety, and confusion are shared across various stages of prostate cancer. I wanted our small nonprofit patient advocacy organization to tap into that fundamental human need for connection, especially when we feel vulnerable.

Around ten years ago, I became friends with three guys who became the founders of HealthUnlocked. The four of us spent many hours discussing patient needs and how to design user-friendly platforms for patient connection. We agreed that Malecare would develop several communities on the new HealthUnlocked platform with the uncompromised provision that our communities would not have advertising and that our community members would be fully in charge of their privacy. This plan continues brilliantly. It’s worth mentioning that patient communities on other platforms, like Facebook or Inspire, do not have the data security, privacy, and freedom from advertising and pharmaceutical industry influence that Malecare has in our collaboration with HealthUnlocked.

Malecare and Healthunlocked have more than an agreement or partnership. We share a bond based on friendship and an unwavering commitment to our mission. And independence. Even when HealthUnlocked was acquired by a larger company, that commitment to the partnership and Malecare’s autonomy continued. We will never compromise, and our history validates that.

I hope that answers your questions about Malecare and Healthunlocked. If our communities have helped you in any way, please consider showing your gratitude here: malecare.org/donate

Many thanks for the honor of participating in your care.

[Researcher50]

Thank you for all you have done. I'm not sure whether people realize what an incredible forum we have here.

[Fonske in reply to Researcher50]

I totally agree 👏👏👏

[Balylone]

Thanks Darryl for this idea and tool which has been so helpful to so many...

[Doctorsceptic]

yes me too - thank you Daryl. I have gained a great deal from following the various threads and have made contributions where I felt I could help.

[billyboy3]

good to get this explained D

[HikerWife]

This is BY FAR the best, most helpful PCa forum I found. I was desperate to find information and support when my husband was first dx'd with advanced PCa. I found it here!

[Voodoo33993]

Thank you Darryl. It's such a relief to know any questions can be asked & help is on the way.

[Survivor1965]

Thank you Darryl. Some people are just born for greatness in so many ways. You are one of those people. So many great contributions that you have made.

We all appreciate you so much.

Merry Christmas sir

[Yzinger]

Just amazing. Thanks so much, it's been wicked important in my journey and I reckon many other users also

[meteghan]

Thank you for everything you have done and Merry Christmas to you and family.

[gsun]

Thanks you from me too. I have learned so much here. I get armed with info and questions about treatment when I have a MO appointment. I got a new MO a while ago and after talking for a few minutes she was impressed how much I knew. It all came from here. Happyolidays to you and yours!

[anonymoose2]

Being I use X (formerly Twitter) I have directed many to this site over the last couple years. One individual that most know as OJ Simpson who passed from PC on April 10th 2024

Many are open about their PC and many on social media have their thoughts and home remedies but not many one on one with those who want to share the details. Many use the private message feature that is encrypted and private.

This forum is a great go to for information for the many therapy’s provided.

People like TA are a no frill straight shooter that gets right to the point and that is important to those who are not looking for opinions like social media does.

This site is a great tool for all with PC

[JohnInTheMiddle]

Keep up the good work Darryl!

And while you're at it I think HU should invest in a technology update, in particular allowing for deeper maintained discussions. So interesting discussions just don't evaporate and get lost. But we build upon them and don't have to reinvent the wheel all the time. I've mentioned this before of course. And just by the way it's difficult to do. And there's lots of amateur ways of trying to address this - but they really don't work very well.

But, that aside I appreciate very much your leadership and opportunity to learn and share here.

John

[j-o-h-n]

It's The Bronx Upbringing....

Good Luck, Good Health and Good Humor.

j-o-h-n

[TCMG]

Thank you Darryl! Merry Christmas to you and your family!

[John778]

I wish to echo everyone's appreciation for your dedication to this site. Wishing you well.

[Survivor86]

Many thanks Daryl! I find Malecare invaluable. It’s usually my “first read” of the day. Thanks too to HealthUnlocked for providing its platform for Malecare to flourish.

[Alloy7]

Thank you, Daryl. I do appreciate this site, and the excellent moderation that goes on.

[Sailameme]

My wife and I had no where to turn to until we discovered Health Unlocked. You opened up a whole encyclopedia of knowledge for us through your wanting to help others. We thank you for all you have done for us and wish for you a very Merry Christmas and a healthy New Year.