So given the 12/18 months window. Waiting on carboplatin from next month.
Now I find I get excruciating jaw pain intermittently and just today, a painful hip when walking. I’m falling apart. The hip does have mets but unsure about the jaw. I’m guessing that more will follow. Feeling a bit sorry for myself I guess.
Hang on in there. The treatments lined up for you will ease this I’m sure. Find something nice to distract you, favourite movies, people, places. Keep us posted.
Thank you, will give it a go.
are you taking Prolia, as it is known to cause Jaw Necrosis?
Thank you. Zometa so the necrosis is possible. Dentist not thinking that is the cause of the pain.
You have every right to “feel sorry” for yourself. I feel sorry for you, and we haven’t met. What you’re going through is awful, and I hope you get some palliative care to make it easier. Hope you find some peace in the coming months.
Thank you, your comments are much appreciated.
No need to apologize for feeling down. You are entitled. We hear you and support you.
Thank you. Feeling the love and support.
I had 5 doses of scheduled 6 along with jevtana. They had to stop because of low red blood counts and fatigue. This doesn't mean it will fail you. There's a lot of trial and error. I have exhausted all treatments and am waiting for a clinical trial hopefully. My PSA keeps doubling every month and now stands at 491. Not feeling bad but some pain at night and fatigue. Still active. NEVER GIVE UP!
ADT and hip replacement.
Severe lower back and hip pain
Bone met pain
Docetaxel not working, fractured hip and pelvis
