My PSA has been undetectable and T is below 10 but I get terrific pain in right hip/ buttock / quadriceps after sitting in a chair with feet on the floor for an hour or more.
I’ve had Lower spine MRI, bone scan and CT scan with and without contrast which show nothing remarkable. Also steroid shots and PT. Next I’m scheduled for MRIs of both femurs, pelvis and spine with and without contrast.
I had a met in right femur in 2017 found with axumin and hit with sbrt. See my profile.
Ice packs relieve the pain . I work out a few days a week including lower body stretches. And I’ve lost 50 lbs ( 250-200) 6’3” .
Anyone have thoughts on this?
Thanks
Bob
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Break60
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Not sure until he does tests early February. This is a new doctor much more thorough than previous spine specialist. I had sciatica once and this feels similar. Epidural and PT resolved the pain back then but this was before I was dx with PCa in 2013. I’ve had bone mets but never any pain. I read that undetectable psa doesn’t rule out bone mets .
My lower spine and shoulders are a bit of a mess with arthritis but bone scan shows no osteoporosis and switching to estradiol is better than standard ADT for bones plus I get xgeva shot quarterly.
I only mention this because I have degenerative osteoarthritis in both hips, unrelated to PCa, that at times cause the type of pain you mention. It was diagnosed by MRI.
I have similar . My si joints are going too Ouch!😖👎🏼. I didn’t even know what a si joint was until it started hurting. Take care dear Sir. I hope you can find a pathway out of some of this pain👍
Absolutely; Switched from white to red wine and still on the patches but moved back to three .1 mg changed once weekly since new patches are thin and transparent like the twice weekly I was using.
I do hate the f... ing man boobs though. I actually bought a gynecomastia vest but could not get into it! Actually losing weight made my boobs more apparent... no place to hide!
I noticed the same thing. While fighting to loose the over 60#’s they recently really showed through. Contemplating changing my weight loss goal!!
I’m not shallow but being a men with tits is a circus act and is not in my DNA. Plus they still hurt like a bastard!!!!
Hey Bob! I can relate . I have no bone Mets .. yet I have the pain in shoulders and hips but really fleeting pains in all joints. Five years of adt with 3 t is the culprit. Osteopenia for now. Getting Erving prolia shot in a week. It has seamed to help a bit . Also I started bone nutrients at the same time.. sitting is the hips enemy. I guilty of too much watching the boob tube. I sleep or try to sleep on my side . This hits the pressure points and hurts the hips and shoulders . I’m doing some yard work . Shovel and rake .. I wake with my arms down to my fingers completely asleep and numb each morning. The yard work aggregate this . But I need to do these things while I’m still able to do so .. I’ve slept on my side always. Although I’ve read that sleeping in the fetal position cuts the body’s connection in half and not good for hips. So now I stretch my legs straight instead of fetal .. We are slated for the bone deterioration. This comes hand in hand with pain . I hope your pain is nothing like Mets. Mine is a combo of degeneration of joints plus osteopenia arthritis I’m sure. I had bursitis in left hip two years ago . Could stand without spiking pains. That went away . Now it’s just random shooting hip pain at any time day or night. We live altered .The more I walk and stay
Active the better I feel. If I get lazy the pain comes . Good luck 🍀
Yea I had total right shoulder replacement in 2014 three months after RP! Much worse than RP. Arthritis is a big deal. I’ve been on celecoxib for years and years.
I just played nine holes and feel great. Sitting is indeed the enemy of pelvis and hip arthritis!
My feeling is it takes a long time to heal from bone Mets...I did talk to a specialist after my neck and shoulder were diagnosed as a ‘dogs breakfast’.....nobody thought to test for PC...this was over 10 years ago+. Anyway I feel I’m putting my shoulder neck and back an hip pains ‘behind’ me trusting the process to resolve itself.....Sitting is the worst...moving, like love cures all.
I’m a year out with horrendous bone Mets according to my MO....and doing better day by day. If it hurts to sit...don’t...in excess.
Break60: so many things can cause hip pain, hopefully it's not related to your PCa. I would first check with a physical therapist and get an opinion to see if it's an issue that can be addressed through PT. I had chronic lower back pain on the right side, going down through the buttocks, caused by impingement of my bulging L5-S1 disc on the nerve canal. I found the right stretching sequences to push that disc back back into place, and issue solved. There's a lot of stuff on YouTube about this, you may check out Bob & Brad,PT for a start.
I did go through six weeks of PT at advice of my initial orthopedic doctor who ordered the lower back MRI and continue it myself but it has stopped working. Then I got an epidural which did nothing for me and have been adding stretching exercises recommended by the pain doctor. I continue to investigate!
I get pain in both glutes when I walk longer than 100 yards or so. Around the house is fine. It starts bilaterally at the same time. Could this be what you are talking about? I've been doing PT, but hothing has helped.
I watched the Bob and Brad video. Their procedure helps with sciatic. I also have a tens unit. One pad on butt and other down my leg. takes pain away quickly.
Many things could be at the root...Piriformis syndrome...there are stretches , and you may add a tight ITB .....or your chair may be soft ....recliners tend to load the lumbar spine....If it takes an hour to come on lets hope it is something simple...I practiced 30 years ( chiropractor) and was able to manage a lot of similar situations. We all tend to have a favorite chair that begins to wear out and this can lead to just what you are talking about...I always liked to rule the simple stuff...then MRI , then co-manage before we moved to invasive therapy...Good luck....
Imagine that! I recommend a chiropractor and you are one! My doc broke 6 fusions free. They formed because L4 and L5 were pushed in so far that vertebrae fused. He gave me an appointment every day he was open, 4 days a week until the vertebrae began to stay in alignment longer then 3 and 2 days a week. Now whenever I feel I need an alignment.
Have you ever gone to a good chiropractor? Not one that will say that your cancer is the result of this or that as someone posted last week but one that can align the spine and work other areas too.
A chiropractor broke several fusions free in my lumbar vertebrae when an orthopedic surgeon gave surgery a 50% chance of success. It took quite a few appointments and therapy much of which I designed on my own to finally keep my back in alignment.
He has never said that he has a "cure" for cancer.
I’ve posted about inexplicable joint pains in the past, complained to Dr’s, test after test, appointments after appointments and specialist after specialists and nothing! Right now going through the Rheumatologist route!
Went from debilitating pain in my left hip, to all major joints on my left side (ankle, knee, hip, shoulder, elbow) which seamed to all dissipate as my T began return (bloodwork 6/19 T=18 with pains / 11/14 T=103 no pains). Now only my right shoulder and recently including my neck and left shoulder. They are saying arthritis or spine issue so its hard for me to contribute this to ADT.
Mine isn’t joint pain . I had that when on Lupron and it sucked. So switched to estradiol patches.
I have the same problem too and in remission for almost 4 years, I read about taking a supplement called Biflex which has silica that helps the bone joints ,maybe do some research about silica ,I am going to try it. I read that any testosterone reducing medicine can cause muscle & bone problems even years after the patient has stopped taking it. If you read the side effects of adt there are a lot and this one of them.
I have been treated for 5 yrs, intermittently with both Lupron and Zytiga. Then , the following 2 yrs with only Lupron and continuously. Zytiga was reintroduced 3 months ago when PSA rose from <.05 to .08. Didn’t actually restart the Zytiga til it hit .12 a few weeks thereafter. PSA dropped down to .08 again but has risen to .10,.12. and .13. Last increase was over a period of 3 weeks. During this time, I have been sitting around quite a bit with the flu and my the area below my lower left buttock has started to hurt all the time. Getting MO doesn’t suspect cancer but I getting am MR I this week.
Present plan is to continue me on Lupron and Zytiga til PSA reaches 2.0 and then get scanned for new met growth.
Appreciate any thoughts on butt pain and MO’s treatment plan.
She is at a loss as to why my PSA isn’t responding better to the Zytiga
I had the same issue with sitting. After a hour I had to move but the problem did not go away.
Turns out my PT started treating me for "facial release". Seems the edema I had from Lupton and Xtandi irotated the casing (facia) of the lower back, buttocks, and hip joints. Now she rubs a flat tool on edge over the and now I am MUCH better.
It will be ache and even bruised the fist few days and you will need to do some gentle stretching to maintain the results. Also expect 6-10 treatments 1-2 times a week for the first 3 weeks.
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