Especially with men on ADT with the attendant mood swings, depression, fat gain, & loss of libido, I can see how that could occur.
practiceupdate.com/news/459...
youtu.be/GAQ7TfgQtyA?si=AuX...
youtu.be/ohzij-eZ4sE?si=FhU...
youtu.be/InizJOIH8aA?si=Tca...
youtu.be/4YG__LBJVZ0?si=kt5...
youtu.be/A_OboeBSMdk?si=X69...
youtu.be/PoiN8vZ6WwE?si=Z8S...
Seeing my patients esp kiddos helps, getting outta town for Beach Therapy (or Sequioas), feastin on my fav foods/beers, and my hikes
QoL on Y'all
Yep
It’s lonely out there! Especially when I speak to my MO and each time we chat about my next treatment option. I feel as if I am just living for the treatment. My QOL sucks.
QOL with our cancer is tough. Got to make time to do the fun things, I am so darn busy going places meeting friends for lunch or dinner and drinks and traveling. Getting out there is the best cure ever. Enjoying life more than ever
That's Awesome Scruffy, a Big Ditto from me😁
Change of Venue does Wonders
youtu.be/CbxuXq_981s?si=e15...
youtu.be/0hiUuL5uTKc?si=Q0r...
QoL on
Agreed!! Vegas Monday and St George, Utah the rest of the week. Probably work in a trip to Zion
I agree. Trust me I have the time and the means to travel. Unfortunately, docetaxel ravaged my body. My balance is shit. While on chemo, I fell numerous times; the last fall I dislocated my L hip. I have been using a 4 wheel rollator for over a year. This impedes my physicality and my ability to really go places. I am going to PT, but it’s a long road back.
That's why we have ice cream & music Brother! QoL on indeed!
I can identify. I'm on ADT and it sucks, but, hey, I'm still alive. Lost my wife to Parkinson's 3 years ago and was diagnosed with metastatic PC four months later. Double whammy! No kids and live alone with my 2 dogs. I have a lady friend whom I used to work with and she has been very supportive, but she lives about 50km's away, so only see her once or twice a month. We just recently did a short trip to Amsterdam and are planning a trip to London next year if I am still around😁. I try to walk about 5Km daily and read a lot. I have a very eclectic taste in books and love learning. So I try to stay positive, take it day by day and remind myself how lucky I am to have lived for so long - 73years. No male member of my family lived that long and many of my friends and acquaintances are now gone.
As a line in the theme song from MASH goes - "The game of life is hard to play, and one we'll all lose one day". Stay positive.
Randy !! I bet I'm not the only one who thinks/worries about you when several weeks go by without seeing a QOL post from you!! You would be one of the last persons to come to mind if someone asked me to name some here who might be suffering extreme loneliness!! Poor assumption??
Yea, a few others may worry if I don't QoL post 😁, but now it's my raison d'etre.
Yea, I'm way low down on the Lonely List - I ain't been Lonley Too Long :
youtu.be/F57vofWYADg?si=kIP...
I go thru my PCa life with a Happy Heart - old data said 28% chance of 5 years and I'm still Standin. When patients how I'm doin, I reply that I'm so very Grateful to still be here and able to work and QoL esp with Food Porn
Just da Kitty and I
youtu.be/Uw5OLnN7UvM?si=o4u...
QoL on
I'm guessing half the town knows you??? And welcomed with open arms wherever you go?
There has been no quality of life for me at all since I started treatment. I'm just a husk with some money for the medical industry to slowly drain until I'm empty. I think about suicide a lot but am too much of a coward to do it.
There is something called "suicidal ideation" .What you need to know is that there's lots you can do about it .I have bipolar and CPTSD , so have some knowledge of this, however having suicidal ideation does not always mean you have a mental illness.There are many sites that talk about this phenomena.I picked just one , which is informative without being overly technical.Take the time to read it.PS the treatment part is at the bottom of the page, I know being where you are can sometimes make the simplest tasks an uphill event.Try to live in the now , mindfulness is a great tool .I wish you all the luck there is .
On a more practical level there are some things that I used to do when I was in the state of suicidal ideation. What am I about to say may seem weird strange unrealistic but for me it was something that worked. I would buy myself one lottery ticket and whilst I understand based on the probability and statistical data the likelihood of me winning was not big but however people do win so why can't it be you that becomes a winner? I would normally buy the ticket several days before the lottery draw was due to take place. I would imagine that I would win the jackpot as unlikely as this may be. In my mind I would go through what I would do with that money how it would change my life. I would think about travel and other things that I would like to do. I would do this in lots of detail even down to the airline that I would fly with.
The benefit of this type of exercise had the effect of distraction and changing my train and direction of my thoughts even just for 30 minutes or an hour which is often enough time to take your mind away from the suicidal thoughts that overwhelmed me.
People do win, even more survive .Good luck
That's such a Wonderful way to beat the "blues" give yourself something to look forward to, despite the odds
“If you want to find someone’s true age, listen to them. If they talk about the past and they talk about all the things that happened that they did, they’ve gotten old. If they think about their dreams, their aspirations, what they’re still looking forward to—they’re young.” In Outlive by Peter Attia MD
youtu.be/X69P_Vce9vw?si=jnl...
QoL on
Is it actual physical problems caused by the PCa or PCa treatment, more the mental side of it, ie fear of the future, the unknowns, etc, or both to a great degree?
I'm 100% impotent, my penis has shrunk and I can't have an orgasm. What I've read says that there's a 50/50 chance these effects are permanent.
If you're a younger guy, then your feelings are quite understandable.....for oldies, those things should be put in perspective, and move on!!! I may end up with all those outcomes, but no way let it ruin what days I have left!
Pets help, especially if you are alone. Have to walk my dog 4-5 times a day and I usually see folks outside when I do. Old, rescue dogs are wonderful for them and us.
My dog is 17 but still hanging on. He went blind two years ago but gets around ok. He eats and drinks and loves treats, likes attention and still snuggles with me, and usually makes it outside to do his business. But he also sleeps 20 hours a day and I know his time is limited. Still, when we're bonding I feel a little bit of the friendly puppy I adopted 17 years ago.
This local outfit furnishes rescue dogs to select prisoners and the results have have been Awesome marleysmutts.org/pawsitivec...
youtu.be/KMSnhCuQVjU?si=soJ...
QoL on
Doggo On
Have always loved that song!
I have an 11 year old rescue dog named Spencer😁 and he has really been a great help during this crappy time. He was in the shelter for 7 years as no one wanted to adopt him due to his deformed leg. So we have both helped each other.
Spencer, my rescue dog at the start of my prostate journey, died last summer. So from my friends at Old Souls Animal Rescue and Retirement Home, I adopted my new, old boy, Tipi
mood swings, I play a round of poker and always win.
depression, I watch murder shows and replace the victim with my thoughts of my ex-wife
fat gain, I only look at head mirrors
loss of libido, if that means thinking of getting laid that's what my blow up doll is for
Good Luck, Good Health and Good Humor.
j-o-h-n
I love all the songs everyone has posted! It may show something about our age..Lol.
It makes total sense that loneliness contributes to one's well being. I am on disability and my wife is still working. She works at home except one week per month she drives to her office several hundred miles away for the week. We have one car, so I am stuck at home alone which is usually fine but I have decided to get a dog as a companion. It's just nice to have someone you know cares about you close by.
On another level, we are on this journey alone, even with all the friends and family who love and support us. The songs reminded me of how important music was for me as a teenager to express and embrace that loneliness in a way that sends it away for a while. My dad was fond of saying " We come in this world alone and we leave alone." which I found kind of depressing.
However, if we truly learn to live in the moment, take classes just for the fun of it, volunteering to make someone smile, travel, play with grand kids or just enjoy a walk on a sunny day, there will be few regrets. Always focusing on our PSA, the next treatment plan, imagining how it will play out in our minds, destroys our enjoyment of life and the love of people around us.
So, let's play music, dance, laugh, and give hugs!
YASS Brother and Food Glorious Food😁youtu.be/hEQDllvuy1I?si=5FN...
youtu.be/afzmwAKUppU?featur...
QoL on
Great videos! Trivia--Andrew Gold's Mom was the gifted singer Marni Nixon. One example: t was her voice, not Natalie Wood's, in West Side Story.
Not to take sulforaphane for metastatic cancer ? This dr suggests so?
