Dr. Onik in FL: i recently have been... - Advanced Prostate...

Advanced Prostate Cancer

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Dr. Onik in FL

JolleySprings profile image
23 Replies

i recently have been reading about a doc named Dr. Onik who treats “out of the box” so to speak.

I have researched back a few years on this forum to see if I could find out about him. All I can find was some discussion a couple years ago … mostly from a gentleman known as “greatjohn”

I find nothing since that time!

Does anyone have an info in reference to Dr. Onik?

Thanks so much!!!

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JolleySprings profile image
JolleySprings
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23 Replies
StayingOptimistic profile image
StayingOptimistic

unfortunately, great John passed away. It was a sad moments on here for all of us who followed his path

JolleySprings profile image
JolleySprings in reply toStayingOptimistic

So sad to hear this!🌷

MoonRocket profile image
MoonRocket

AddictedToCycling is a patient. Contact him for first person experience.

JolleySprings profile image
JolleySprings in reply toMoonRocket

I typed AddictedToCycling into search under members in search bar and the result was “No member found” by that name.

treedown profile image
treedown in reply toJolleySprings

I think is Addicted2cycling.

Ramp7 profile image
Ramp7

Check him out on youtube. There are many posts. I contacted him a couple of years ago. I chose not to follow up at the time. Very interesting story!!

JolleySprings profile image
JolleySprings in reply toRamp7

Was there a specific reason you chose not to pursue Dr. Onik?

Ramp7 profile image
Ramp7 in reply toJolleySprings

First, I just entered a Trial at Dana Farber, LuPSMA177. Presently doing BAT. There may come a day.

Ian996 profile image
Ian996 in reply toRamp7

I am very interested in your experiences with BAT

My Lu177 trial starts in early May

treedown profile image
treedown

Dr Onik is out of the box and uses cryoblation. His approach is specific to what he used on his own cancer I believe. I have heard differing opinions on him but from his patients only good things. Greatjohn did visit him toward the end but I think he was at the point of no return after a poor response to LU177.

addicted2cycling profile image
addicted2cycling

You can view a youtube video - AKA Doctor Hope - A Miracle Cure For Cancer

I had another 3Dimension Prostate MAPPING Biopsy by dr. Onik 2 weeks ago yesterday and he is doing well. As for me, I am finally heading out in a few minutes for an almost FULL MOON bicycle ride since the rain has ended. Ask me and I will try to answer.

JolleySprings profile image
JolleySprings in reply toaddicted2cycling

look very forward to hearing about your results and your opinion of Dr. Onik. We spoke with him at length today and was encouraged!

Big_Mcc profile image
Big_Mcc

Looks very promising. I wish you all the best. Please keep us updated on your treatment and the results if you decide to go ahead

davenj profile image
davenj

His cryoablation + immunotherapy is supposed to be expensive.

RoseDoc profile image
RoseDoc in reply todavenj

It is. Insurance won’t cover most of it. I spoke with him 6 or 7 years ago. It was going to be $30k out of pocket. I asked him why he didn’t publish his stats in a peer reviewed journal. He didn’t have a good answer.

Cali3 profile image
Cali3

There is a clinical trial : clinicaltrials.gov/study/NC... but no results posted yet.

j-o-h-n profile image
j-o-h-n

Do a search of H.U. history for an"ONIK" string and you'll find many references about him. The earliest I found was 5 years ago titled: Dr Gary Onik and Targeted Cryoablation-does it work?

5 years ago•4 Replies

Good Luck, Good Health and Good Humor.

j-o-h-n

Fuzzman77 profile image
Fuzzman77

he actually had prostate cancer after he developed the treatment. I saw it on You Tube around that time. He also did Paul believe his name was from Perth, Australia. He did tall me then around 3 or 4 had complete responses. Don't know how long it lasted for them, but I do know he was pretty strong with it. Try putting Paul, and you might get some responses. I remember that Dr. Onik had to teach another doctor to do his treatment. Long time ago.

FRTHBST profile image
FRTHBST

Hi, I was treated by Dr. Onik 2 years ago. After, my PSA was down for the better part of a year, then began to go up again. I decided to have an immunotherapy treatment that failed miserably last year and Dr. Onik referred me to a physician overseas for Actinium and Lu-177. I am still castrate sensitive and previous immunotherapy made me inelligible for the trials running at the time. The radio ligand treatments took my PSA from 280 to .09 in three sessions.

Dr. Onik is the real deal(check out his contributions in various specialties on Pub Med) and I think his estimate of a complete response to his technique of cryo-immunotherapy of about 35 to 40% is probably realistic given the numbers in in his own study. If I had it to do over again I would still make the same decision again, a 35 - 40% chance at a complete response seems to me a risk worth taking. I experienced no side effects and procedure was over in a day.

His treatment is expensive, but the drug companies weren't providing him or his patients a discount, the cost of the drugs is a large part of the expense. He is a caring and able physician. Even years after the treatment he responds to my queries and I value his opinion. I was in bad shape last Summer and without his suggestion to pursue LU-177 with this specific doctor, I don't know where I'd be now.

JolleySprings profile image
JolleySprings in reply toFRTHBST

Thank you so much for this response! So kind of you! We are just exploring all options. Thankful to have several!

groundhogy profile image
groundhogy

My strategy... was not to go to a peripheral treatment. I wanted to go straight down the fat part of the most proven, most curative, well trodden path i could find.

(you think that would have been easy, but it wasn’t. Alot of these docs want to steer you all different ways for many reasons... topic of another post)

groundhogy profile image
groundhogy

You get no second chance. One shot, hit-the-target.

LJGD profile image
LJGD

My dad was treated by Dr Onik in 2016 after the cancer returned in right pelvis less than a year after RP. My dad had a positive response after the first treatment. PSA dropped by half (I don’t remember exact value but I believe it was <2). After the second treatment his PSA started to go up again and Dr Onik pointed us in the next direction to take. He was the first Dr to tell my dad to get a PMSA scan in 2017 when there were very limited hospitals doing it at the time. That being said, when Dr Onik did a biopsy of the mass in his pelvis he said it was a Gleason 9, my dad was diagnosed as Gleason 6/7 by urologist when first diagnosed in 2013. I believe that given how aggressive my dad’s cancer is (also has BRCA 2 mutations), and that he didn’t have Mets until January 2023, the immunotherapy primed his immune system to keep the cancer at bay for many years along with the standard of care therapies. We are very thankful for Dr Onik and the care he provided! We were at a loss of what to do at that moment of recurrence and Dr Onik was a Godsend.

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