Dx in early 2022. A lot of tension and stress built as treatment escalated -- from Firmagon through radiation and since then abi+lupron. Especially during daily RT sessions with the big honking IMRT machine rotating around me. Tension exacerbated by knowing that PSMA-CT scan spine spots (3) were not going to be treated. (I was oligometastatic, but treated as if I was localized spread only) The song Blinding Lights by the Weeknd had and continues to have a ton of meaning for me. High energy X-rays are about the brightest "blinding lights" I have ever encountered. I feared not being around to be a good partner with my wife, I felt alone, etc. This web site is a god-send.
Other coping mechanisms: church, exercise (especially long woodsy walks where we rarely run into more than 1-2 people and their dog/dogs.)
My PSA dropped to undetectable levels post-RT through now, 7 months on.
PS get your bone density checked!!! Don't wait for something to break. ADT+abi+prednisone drains bone density.
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Derf4223
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Hello Derf4223, …..#1 …Just a gigalo LOUIS Parma , “ life goes on without me” .#2. Sitting on the dock of the bay . “ I can’t do what ten people tell me to do , so I guess I’ll remain the same” #3 lost highway ,hank sr.” Now boys , stop your rambling around” #4 , Cowpoke , by colter wall . “ “ No one cares where I go”! “ When I’m dead and when I’m gone” blood sweat & tears ‘ ……I did the similar imrt firmagon then lupron and tak -700. 7 months clear is great..For me it’s been over 7 yrs . I felt aglow after imrt . God, exercise , walks and dog all on my menu too. Osteo comes with no t . That’s the breaks . I did prolia four yrs stopping it 8 months ago . My new dexa has shown normal bone density now? I have a smart phone with unlimited music and a portable Bose speaker . Music therapy helps me conquer the dulldrums . Keep up the good work and stay strong .
The best one is You raise me up Martin Hurkins it makes me cry every time i play it on YouTube I have recorded it my self but you do not want to hear my version
Take a look at this podcast...how we think, what we think and belive matters...its so hard to stay positive with our disease, but it appears that if you can figure it out it adds up and helps. Good luck Brother...Rick
A lot of you might get a chuckle from the electrical engineering questions I asked my "beam team", the lovely ladies who ran the IMRT.
Q:"Where's my emergency off button?". A:"You don't get one. Just raise your hand and we will stop it". Think about it -- if a patient is unable to raise their hand, then what? I remained very very still. Not easy to do with an over-full bladder.
Q:"Where does the focused pencil beam of intense radiation go after it passes through my body?". A:"Not sure." I looked it up and the room is built out of special concrete walls that soak it up.
Q:"Why don't you wear dosimeter badges?". A:"The incidental X-Rays off-beam-axis are negligible. And we are not in the room when it is operating." That's wicked assuring, taken together, no?
"Please do not expose your groin." This one cracks me up because the IMRT CT-scans your pelvis 360 degrees every session. They see a whole lot more than naughty skin covered bits.
TITANIUM……when I was doing my first, and then my second rounds of radiation i would play this when i got down…….Its a fight. I loved this song. Fight for you life buddy. Never say die!!
This insanely excellent video helps me -- lots of metaphors going on. It has both of my favorite PCA-stress-relieving songs in it -- Blinding Lights and Titanium.
Derf4223 What a great post this is, thank you for thinking of it. I like most of the named songs and artists, although I haven't really stopped to think about which specific song/artist could help me fight the fight. I have to say that "Burn" posted by Darryl is now in my favorites YouTube playlist. Thank you.
With zero T, I feel in better touch with my feminine side (said with tongue in cheek). So this song may help those dealing with the possible feelings that come from that.
the album Kinda Blue by Miles David is one I play almost everyday when it is time in the evening to stop working, fighting, arranging and planning. It works every time for me. I do remember an article in the NYT several years ago placing it a No.1 with men with PC. 24 years out.
Hey guy! Don’t worry be happy video with robin williams !
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SOC standard info on starting Xgeva without bone issues.
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