Ahead of an oncology appointment, I was wondering if anyone had had positive experience of this, especially in the UK? I have a feeling it is rarely entertained.
There is little doubt this drug made the most difference in regressing my cancer but I was taken off it when my PSA started to rise. Despite 10 rounds of Docetaxel my PSA continues to rise.
I'd be grateful for any thoughts and experiences?
Thanks
AFAIK the NHS will not fund reengagement of Enza which is a shame because the chemo may have resensitised the cancer to it.
I was in hospital with severe pain, as well as pain meds i was on a,steroid, dexy something, they started me on enza, found out after that the steroid brought my psa down by 450 in 19 days, said to them, should i stop enza and go back on steroid cos the massive difference it made, my clinical nurse and Oncologist told me, if i stop enza midway they might not get the funding to restart it again, cos they'll say why did you stop it if it was working, i thought steroid would be a cheaper option for them and maybe i might have less side effects, but now im on enza i have to stay on it till it stops working, so i would think it might be unlikely they'll restart for ya unfortunately, I'm in UK and go through NHS, still, i would try cos they didn't tell me they definitely wouldn't, they just said unlikely.
There are studies that say chemo may resensitize the cancer to Enza. You should persue this and get back on it.
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