Souls on Fire - A tribute to the jour... - Advanced Prostate...

Advanced Prostate Cancer

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Souls on Fire - A tribute to the journey.

Zengal79 profile image
159 Replies

As most of you know HDguy61 was my guy. He passed away peacefully in December after being transfusion dependent for 6 months. Dealing with a chronic illness of my own (stage 4 cirrhosis), I relate very much to the need to find joy even in the midst of uncertainty. We were very good at that together.

We spent a lot of time on this board searching for answers and options and enjoyed all the QOL posts. So, this is my stab at one. Enjoy me on this journey if you like. Stay tuned… It’s going to be a nice little ride.

159 Replies
dockam profile image
dockam

Yass Sista 💙LFG Let's F in Go!!!

Post QoL make this World a Better place

youtu.be/egMWlD3fLJ8

Zengal79 profile image
Zengal79 in reply to dockam

This made me smile so big! I’d never seen Easy Rider much to the dismay of my guy. He corrected that and I’m officially schooled.

Fun fact about my guy. He bought a brand new 1975 Harley Davidson motorcycle at the age of 15 with his paper route money. He saved up for that motorcycle from 8 years old. We found the receipts and pictures of his first ride a few weeks before he left this rock. Nice memory.

Thanks for following along!

dockam profile image
dockam in reply to Zengal79

Oh, that's so wonderful to have that from so long ago💙

That's my QoL purpose to enjoy now and then be able to reminisce later😁

Ride, Captain Ride youtu.be/HqFFjoRnltg

Ride wit me youtu.be/5XhCGR6MoSE

Fight, QoL, Live, Love, Laugh, and Ride on

Randy

spencoid2 profile image
spencoid2 in reply to dockam

I love that the big bad dude has a Beagle not a Pit. I have nothing against Pits, they can be wonderful dogs like any dogs, just a bit over populized

dockam profile image
dockam in reply to spencoid2

Lol, yea huh😂

dockam profile image
dockam

youtu.be/U3sMjm9Eloo

Tall_Allen profile image
Tall_Allen

I'm so sorry to hear you lost him. But I'm glad you are getting what you can from life while you have it. Appreciating what we have in the present moment is important for everyone.

Zengal79 profile image
Zengal79

August 2020

She’s Got a Ticket to Ride 🎵

My guy traveled to Tennessee to ride the Tail of the Dragon. On his way down, he stopped to meet me in Brown County, Indiana for a ride through the beautiful Brown County State Park. My first time on the motorcycle.

First Selfie.
dockam profile image
dockam in reply to Zengal79

Awww, Wonderful pic of you two💙

youtu.be/Nfc2tWKcYeg

"Here's to the ones that we got

Cheers to the wish you were here but you're not

'Cause the drinks bring back all the memories

Of everything we've been through

Toast to the ones here today

Toast to the ones that we lost on the way

'Cause the drinks bring back all the memories

And the memories bring back

Memories bring back you"

This is one of my Funeral songs

Ride on Sista, Memories on

Randy

spencoid2 profile image
spencoid2 in reply to Zengal79

first motorcycle ride first selfie, what is next? i still have not done a selfie.

Zengal79 profile image
Zengal79

It was a glorious day. We had no idea the adventure we were about to take.

BCSP
dockam profile image
dockam in reply to Zengal79

So serene and beautiful💙

Zengal79 profile image
Zengal79

September 2020

Took the bike on the Lake Michigan Circle Tour.

Lake Michigan
Zengal79 profile image
Zengal79

Took time for some scenic views.

Lake Michigan
dockam profile image
dockam in reply to Zengal79

Oh, those colors💙, looks like a painting!

Lol, not as pretty view of Lake Michigan. Took daughter out to see a law school. Was diagnosed 2 months earlier, 1st grandbaby born a month earlier

Lake Michigan 03/2015
Zengal79 profile image
Zengal79

We stayed at the Grand Hotel. Fun times.

The Grand Hotel
Lrv44221 profile image
Lrv44221 in reply to Zengal79

I’m from Michigan and have stayed at the grand

Hotel

Good memories for you I’m sure

Wasn’t the front porch wonderful?

Zengal79 profile image
Zengal79 in reply to Lrv44221

Yes!

Zengal79 profile image
Zengal79

Room service!

Grand Hotel
dockam profile image
dockam in reply to Zengal79

Yea babeee😂

Zengal79 profile image
Zengal79

Lake Kitchititkipi

Lake K
Zengal79 profile image
Zengal79

More Lake K

Lake K
Zengal79 profile image
Zengal79

Morton Arboretum Fall 2020

A beautiful place.

Many sunsets we watched here.
dockam profile image
dockam in reply to Zengal79

Epic sunset

Scout4answers profile image
Scout4answers in reply to Zengal79

One of my favorite places... I see this same sunset from my deck.

Zengal79 profile image
Zengal79 in reply to Scout4answers

Ha! We were right there too.

Scout4answers profile image
Scout4answers in reply to Zengal79

Herrick Lake

Zengal79 profile image
Zengal79

Morton Arboretum

Cool dude.
dockam profile image
dockam in reply to Zengal79

Wood Troll?

Zengal79 profile image
Zengal79

That all for 2020. My health declined quite a lot during this time so I had to skip his Arizona ride. He had a grand time and met up with a fellow warrior out there to make some memories. That’s all for today. Tomorrow I’ll start 2021 in HAWAII!!

He sent me this selfie. Nice view!
dockam profile image
dockam in reply to Zengal79

Awesome, wanna see where y'all went

Zengal79 profile image
Zengal79

Here’s a sneak peak from Hawaii Jan 2021

Aloha
MichaelDD profile image
MichaelDD

Best to you on your journey. I found out 5+ years ago I had prostate cancer. 4+ it moved to advanced with metastasis. Since I was diagnosed, my son and daughter-in-law buy me a new car when I want. I just got a brand new 2023 -301 horsepower Mini. All of them have been my order, the way I want them with everything that I want them to have. This is my 4th one. It's a gift to me from them so I have something to smile at when I go in for treatment. Or if I want to go anywhere I smile when I go. The thing is so dang fast its unreal. I do it on fantastically heated seats! And I do smile a lot. But through everything QOL is what matters to me most. It's behind all my decisions about my cancer.

My newest one..
Zengal79 profile image
Zengal79 in reply to MichaelDD

Right on! Gotta make the best of it.

spencoid2 profile image
spencoid2 in reply to MichaelDD

I wonder if this would be a good dirt road car. It could just fly over the washboards. Seriously we are probably going to have to rethink our vehicle and probably housings. We are too old (with chemo and covid added) to take care of ourselves in the most severe weather. We are having some pretty bad weather in California and not much of anything is working right now. Now I understand why all of my friends were having babies. Some of them turned out well and bought them cars. Our Poodles do not have the funds to buy me a car.

Rhalo profile image
Rhalo

GM... I'm new to this group!! Sorry to read about your guy!!! He appeared to have lived life to the fullest with lots of memories for you both. You mentioned he lived transfusion dependent for six months. Would you mind sharing more with me. My husband was diagnosed with prostate cancer in 2012. He says he's always been anemic. He started Pluvicto October 28, 2022 has had to have two transfusions since then. We were told it would take two to three Pluvicto infusions before the bone marrow cleared up. We get our second infusion January 16, 2022. Since that time his PSA has DOUBLED!

Zengal79 profile image
Zengal79 in reply to Rhalo

Hello! Sorry you’re at such a scary place in this journey. Did your husband have both a FDG AND PSMA SCAN?

I am no expert, but here is what I do know. My guys PSA went up significantly after first treatment and was told the same thing as your guy. We took it at face value. Later we learned that an FDG pet scan may have shown that he was not the best candidate for pluvicto. Other countries who have been doing this longer use both scans to determine who is a good candidate . He wishes he had stopped pluvicto and searched clinical trial options before his blood counts got so low that he was excluded from anything. Something about diffuseness is shown on the other scan 🤷‍♀️ All I know is Brian wishes he had demanded both a PSMA scan and a FDG scan. I’m not saying it would’ve made any difference. I encourage to make a post and ask the guys about it here and do some research on your own. Specifically about the FDG SCAN along with PSMA scan. Best wishes to you! Such a scary time.

Rhalo profile image
Rhalo in reply to Zengal79

yes he had both that showed he had uptake ( or he lite up)

Rhalo profile image
Rhalo in reply to Rhalo

do you know if he was anemic prior to Pluvicto?

Zengal79 profile image
Zengal79 in reply to Rhalo

He was. The comparison of the two scans is what is important. And you want someone reading them that understands. Please make a post with as much details as possible. These guys will help guide you. You may be in the best of hands already, but they may suggest second opinion as well. Beat wishes to you guys.

Scout4answers profile image
Scout4answers

Throw us on the back of that Hog and take us for a wild ride, our Stage 4 Sister... We are here for you.

dockam profile image
dockam

youtu.be/FdPAjKkU8u0

Zengal79 profile image
Zengal79 in reply to dockam

One of my favorites. In spite of our age difference, music was a huge part of our lives.

dockam profile image
dockam in reply to Zengal79

Oops, didn't post in replies 🤣

dockam profile image
dockam

You may have noticed that I post songs a wee lil bit😂

I'm a Radiohead with snippets of song ready to launch outta my brain

Like this one; youtu.be/BATks6KEu0Q

My best to you Sista

Bug Hug from CA QoL on

Randy

Lrv44221 profile image
Lrv44221

Dear Zengal79

I have not read any of the replies so forgive me if I repeat

I’m sorry for your loss yet I’m happy you’re going to move along in your life

My husband is still doing what he can

And I too, try to help anyone, anyway I can

When I had cancer, it was almost a wake up call for me to live with QoL

I find for me at least, talking to women that deal with the loss helps.

I lost my first husband to stomach and throat cancer at a young age

Perhaps keeping a journal now might give you some peace and future thoughts

I’m here if you’re ever interested in talking crying or letting your anger out

Zengal79 profile image
Zengal79 in reply to Lrv44221

Thank you :)

Lrv44221 profile image
Lrv44221 in reply to Zengal79

You're welcome👍🦊

dockam profile image
dockam in reply to Lrv44221

Amen Sis, we are ohana, family, here 💙youtu.be/uyGY2NfYpeE

No one cares.

Scout4answers profile image
Scout4answers in reply to

Au contraire my one eyed friend.. it got your attention 😎

Love to you in the New Year, OYJ

Scout4answers profile image
Scout4answers

So why would a guy with those kind of assets be so threatened by a minor player like the Scout? It is feeling more like envy my man. Not at all becoming on a master of the universe

Zengal79 profile image
Zengal79

Jan 2021 - Hawaii

Our story, like any good one is riddled with light and dark. It’s peak Covid when Brian and I started talking early 2020. He’s just gotten a divorce. He had a fire in his belly, and they just didn’t enjoy the same things. He’s on to bachelorhood.

Bam! Covid time. Not the friendliest of dating environments. To top it all off, a woman that he really wanted to spend more time with passed away unexpectedly. He was devastated.

The Universe opened a door for us. I was a miserable floundering alcoholic at the end of a very bad 20 year marriage. My health was failing although we were only just finding out how bad it was.

This was Brian’s smooth sailing time. We’d only been seeing each other a few months. He should’ve bailed. He didn’t.

I joined him in Hawaii 3 days after being discharged from a 2 week hospital stay. I was in liver failure. I have not drank since. Much discussion was had whether it was safe for me to travel to Hawaii. Not the best place to be in liver failure. He sent me this. Hepatic encephalopathy be damned, I’m going to Hawaii!

Screw Covid, cancer, liver failure and whatever anyone else thinks of the risk.
Zengal79 profile image
Zengal79

Literally an empty plane. Hawaii had pretty strict requirements to follow. Fortunate this meant cheap prices and no crowds.

We’re gonna do this thing.
Carlosbach profile image
Carlosbach in reply to Zengal79

F'ing awesome

Zengal79 profile image
Zengal79

My memory of Hawaii is cloudy. I was quite sick and it was a whirlwind. I believe we visited 3 islands.

Somewhere pretty… no clue where.
Scout4answers profile image
Scout4answers

I would drive to Juarez and buy me one

This is why you are OEJ and not Happy Jack

youtube.com/watch?v=rkYRytc...

Zengal79 profile image
Zengal79

Road to Hana (I think) I really need to try to piece all this together. Sure wish he was here to ask him :(

Waterfall
Zengal79 profile image
Zengal79

Everything everywhere is beautiful in Hawaii. It is a place of magic.

Take me back!
dockam profile image
dockam in reply to Zengal79

"Take me back to da kine"youtu.be/qL58smK3FWE

Zengal79 profile image
Zengal79 in reply to dockam

Ahhhh! Yes! I promised him I’d go back healthy, and I absolutely will… even if I have to sleep in the back of a Jeep rental!

dockam profile image
dockam in reply to Zengal79

Take me as your guide😂💙

Carlosbach profile image
Carlosbach in reply to Zengal79

My first trip to Kaui I landed in a massive storm. I slept in the back of a Colt station wagon (way before your time) and woke up to massive palm branches across the front windshield

Zengal79 profile image
Zengal79

The location info is on this one. Ho’Okipa Beach

Ho’Okipa Beach
Zengal79 profile image
Zengal79

View from the room at Westin Hapuna Beach Resort. Highly recommend.

Hapuna Beach
Zengal79 profile image
Zengal79

We also spent 5 nights here. Disneys Aulani. I’m a bit of a Disney Resort nerd, and this was a dream for me. Beautiful resort. If you have kids in tow… this is where it’s at! As two adults, still very enjoyable but better accommodation can be had for the price tag of this place.

Aulani
Zengal79 profile image
Zengal79

Some of my guys snorkeling adventures. I was not well enough for snorkeling. In fact, I was barley well enough to walk. He had to push me in a wheelchair through the airports. It was actually quite rough for me. This is what we did though. We pushed through.

Fishy
dockam profile image
dockam in reply to Zengal79

Ooooh, such a bright yellow 😊

Zengal79 profile image
Zengal79

Hey dude!

Crush
Zengal79 profile image
Zengal79

Some of his hiking adventures. I had to stay behind.

Worth the effort, he said.
dockam profile image
dockam in reply to Zengal79

Awesome, King of the World atop Diamond Head

Zengal79 profile image
Zengal79 in reply to dockam

Awww, thanks for letting me know. I shall do it on my own.

dockam profile image
dockam in reply to Zengal79

I'll be there this May😁

Zengal79 profile image
Zengal79 in reply to dockam

Right on, brother!

dockam profile image
dockam in reply to Zengal79

Honolulu City Lights beckoning me to come back

The Duo I saw on Friday sang it then, this is from another venue youtu.be/3vSVAVHoOwo

From my Hawaii album a couple of weeks ago photos.app.goo.gl/wgCBdUbk8...

Atop Diamond Head on bday
Zengal79 profile image
Zengal79

Sometimes the only way is through.

Did this one solo as well.
Zengal79 profile image
Zengal79

We had to sample some Donkey Balls.😂

A little fun.
Zengal79 profile image
Zengal79

Goofy tourist fun. Luau in Oahu (I think) Terrible food but a good time was had by all.

I had put on 70lbs of fluid in a month. None of my clothes fit. You’ll see the changes over time. A sick gal I was, but my guy sure looks healthy and handsome. How swiftly we switched roles, but the ride was worth the tough stuff. This is what life is made of.

Tourist time.
dockam profile image
dockam in reply to Zengal79

Great pic 💙

Zengal79 profile image
Zengal79

He had to drive way up in the clouds to get to this place. I was too sick to join the fun. Maybe Randy knows this one.

Another one I missed.
dockam profile image
dockam in reply to Zengal79

On Maui? Haleakala probably. I did the bike down with 2 Bro in laws after we watched sunrise

viator.com/Maui-tours/Bike-...

Zengal79 profile image
Zengal79 in reply to dockam

Cool! So glad to have you here. That sounds right. There were air quality concerns (?) for me or something… I don’t remember exactly but I couldn’t join him. It’s really a shame that I was so sick and he was so well. But… that’s just part of the journey, man. All just part of the journey.

Zengal79 profile image
Zengal79

It’s getting hot in here!

Hot stuff!
dockam profile image
dockam in reply to Zengal79

Big Island, I assume

Zengal79 profile image
Zengal79

Waterfalls everywhere.

Road to Hana probably
dockam profile image
dockam in reply to Zengal79

Yup, all the water makes for verdant forests

Zengal79 profile image
Zengal79

Travel halted for months. I spent 6 weeks in a Nursing Home Rehabilitation to learn to walk again. My guy gets a new set of wheels. We fell in love with Jeep life in Hawaii.

By July, we are back in the saddle again.

Jeep Jeep
Zengal79 profile image
Zengal79

July 2021!

Concerts resume! REO Speedwagon’s first show post-covid. Last time in the wheelchair for me. Physical therapy is helping and my liver is holding its own. We get a nice summer and fall of smooth health sailing coming up for us both. Hope you’re enjoying the ride.

Thank God for concerts again!
dockam profile image
dockam in reply to Zengal79

Yes, Love it all💙

Zengal79 profile image
Zengal79

Still to come- Wisconsin, Puerto Rico, Savannah, Charleston, New Orleans, a cruise and finally California. We left nothing on the table.

Last meal in Hawaii. Thank you fishy fishy. Yummy yummy!

Best meal we ever enjoyed together.
dockam profile image
dockam in reply to Zengal79

You ate Nemo😂

Zengal79 profile image
Zengal79 in reply to dockam

nom nom! I thanked him for his service. Pescatarian diet now, all the liver can handle.

dockam profile image
dockam in reply to Zengal79

Oohh a Southern California visit?

Zengal79 profile image
Zengal79 in reply to dockam

Yes, sir. Although, that was our last trip and he was quite unwell by then. We made the best of it though!

End of the ride. Quite literally.
Zengal79 profile image
Zengal79

Well, it’s yoga time for this gal. More tomorrow but here is a sneak peek… good times to come. Good times indeed! We’re hittin the road, Jack!

Won’t you join us!
dockam profile image
dockam in reply to Zengal79

Awww, wonderful pix🤙💙

Kaliber profile image
Kaliber in reply to Zengal79

hi Zengal79, I’m sorry to hear about your “ guy “ Brian passing , a soul brother …double brother at that. We have a lot in common. I’m also a hard core biker motorcycle enthusiast yayahahahaya

both of us love hogs and have aPCa in common too . That plus “ the hammer “ my old lady kinda likes her “ beverages “ as much as it sounds like you do - did . She can get a wee bit “ testy “ sometimes but we’ve had 44 years together, never the less.

That bagger is a thing of beauty , just love it. Had to finally sell my Dyna Super Glide Custom because my bones are so brittle , just holding it up , at a light , might snap one of my leg bones. Naturally I had it loaded with screan’in eagle goodies , crank to top end. Broke my heart.

I love 4X4 too ( doesn’t everybody ) , it’s a pick ‘em up truck tho . Silverado 4X4 Z71 it does a good job out in the boondocks too.

Now I ride on a three wheeled etrike I call my Hardly-A-Davidson … my mobility scooter .. can’t walk much these days.

I love your great QOL input here …. And foodie porn too. It’s a great spirit to see you getting deep into. You obviously “ get it “ , especially with both you and Brian’s experience. It’s good to see you getting out and grabbing that gusto as much as you can, while you can . You’ll never regret it.

Keep that great QOL coming, we love it … we love you too sister.

❤️❤️❤️

My baby out front of a local coffee shop .
Zengal79 profile image
Zengal79 in reply to Kaliber

Sweet! It’s a bummer giving up things we love. But, joy can be found in the depths of it all. We always talked about making QOL posts but we really never got to it. Too busy livin’ man, too busy livin’!

Now, that caregiver mode is gone, I’ve got the time and it’s helping me get through this loss to look back at what all we did. We lived more in those last two years than some people do in a lifetime. All about the quality. And… it saved my life.

Kaliber profile image
Kaliber in reply to Zengal79

hop right in, dealing with grief works better with brothers and sisters that know what you are experiencing. also there is a special group for ladies just like you too. You might find some special common ground there as well. Maybe Darryl will hop in here and give you the link … otherwise, pm Darryl and he’ll be glad to help. It used to be on the right side list but I didn’t see it.

❤️❤️❤️

Kaliber profile image
Kaliber in reply to Zengal79

check out the HU “ prostrate cancer caregiver’s group “ hosted by cleodwoman.

You can see this at the top of this page on the right side. It’s under “ pinned posts “ … press the “ see more pinned posts “ arrow and go down the list to the cleodwoman post. It’s a special group for caregivers , many that have lost their loved one.

Lots of good people here.

❤️❤️❤️

dockam profile image
dockam in reply to Kaliber

Yes, keep it coming (QoL) luvyoutu.be/mABuS9eSWnQ

Kaliber profile image
Kaliber in reply to dockam

love ya buddy

❤️❤️❤️

dockam profile image
dockam in reply to Kaliber

Me ke Aloha Pumehana

With warm Love

Bruddah Kal

dockam profile image
dockam in reply to Kaliber

Hey Bruddah Kal, totally forgot this song, Kapono played it tonight

From me to you, and so many others here 💙

youtu.be/fR1rGsKnvOo

Kapono and Beamer concert in Irvine
Carlosbach profile image
Carlosbach

Zengal, Looks like a fantasy. Good for your guy, and for you. You Rock!

Zengal79 profile image
Zengal79 in reply to Carlosbach

You know, we found so much joy in some pretty hopeless circumstances. Blessed, indeed!

dockam profile image
dockam in reply to Zengal79

That's a Beautiful attitude, Make Joy outta your BS situation. Make the most of the time you have left, that's my sentiments too with the QoL things that I undertake.

Making dang lemonade outta cancer lemons

Mahalo nui loa for this QoL Thread.

Luv ya Sis💙

youtu.be/E5ngugFBcaM

dockam profile image
dockam in reply to Carlosbach

Yea Rock on youtu.be/EFMD7Usflbg

Zengal79 profile image
Zengal79

Fun fact about us :)

My guy valued his time. It was important to him to not only have great experiences, but also to give back. We volunteered on Tuesdays (when not traveling) for animal transport. A huge van full of 100 + animals were picked up from kill shelters and brought to a meeting point where volunteers would take them to animal rescues. We transported around 10 crates of animals every Tuesday to give them a chance at adoption. We even fostered 3 sets of kittens while we were together, all successfully vaccinated, fixed, and chipped then placed with their new families.

Spreading joy and love. ❤️ Can’t have a bad day rescuing cute critters! Here’s some highlights.

Fosters and animal transport.
Kaliber profile image
Kaliber in reply to Zengal79

kitties and puppy dogs … doesn’t get any cuter than that. We used to have teacup poodles … smart and loving little dogs.

Zengal79 profile image
Zengal79

This was the last of our fosters. Popcorn and Popette. Bouncy bunch! Happily in their furrrevwr homes now.

This was one cool cat, my guy.

Fosters
Lrv44221 profile image
Lrv44221

hello, again I’m sorry for your loss

How long were you two married?

Do you live anywhere close to family?

Not being nosy but just wanted to possibly help you with some things that might help

Although you want to get on with your life , be sure you give yourself time to really grieve

Zengal79 profile image
Zengal79 in reply to Lrv44221

We only knew each other 842 days, not married. It was a whirlwind. I have a good support system and am doing well thankfully. I’m using this thread to tell our story which is helping me grieve with a grateful heart. At the end, I shall say goodbye finally to prostate cancer and focus on the next task at hand… Living well with my end stage liver disease. I plan to live it in his honor each and every day.

Lrv44221 profile image
Lrv44221

I'm so glad you have a support system. Any grown children that might be able to help you?

Liver disease is a tough road to hoe. When I was in grad school, a man that was in some of my classes had cirrhosis.

Perhaps changing what you eat, and drink might help?

Do you live in Michigan?

Let me know if I can help

Nutrition is my area of expertise. (And sometimes my downfall when I eat junk food lol)🦊

Zengal79 profile image
Zengal79 in reply to Lrv44221

I’m in Indiana. I’m basically a pescatarian now. My diet is mostly plant based plus eggs, fish and seafood. I cannot handle animal proteins at all. My health in now quite improved, especially from where I started. Daily yoga practice, and never ever touch alcohol.

Lrv44221 profile image
Lrv44221

good for you. I do yoga too

I eat lots of eggs.

I always have several hb ones in my fridge

I don’t know much about liver disease but I have read that Milk Thistle is good for the liver

Zengal79 profile image
Zengal79

The Mississippi River on the way to Mayo. We made the best of even a trip for cancer treatments.

Mississippi River
dockam profile image
dockam in reply to Zengal79

Beautiful, no waterways like that in CA, well maybe with the latest storm

youtu.be/O2HpAdaE7R4

Zengal79 profile image
Zengal79

Summer 2021

Out of order a bit, but we always to the time to enjoy nature.
Zengal79 profile image
Zengal79

We attended may local band concerts as well as some big acts including…

The Eagles, REO, Dave Matthews Band, Guns n Roses, Earth Wind and Fire and Santana.

This is Dave. My personal favorite, but not his. First concert post liver failure.

DMB- He took one for the team here. My first concert and motorcycle trip to Milwaukee.
dockam profile image
dockam in reply to Zengal79

That's an Awesome list of bands, wonderful QoLing with Your Love

Zengal79 profile image
Zengal79

More from the Milwaukee concerts trip. Summerfest 2021

Ostoff Resort (fabulous spa!)

Harley Davidson museum

More Wisconsin
dockam profile image
dockam in reply to Zengal79

Cheese Curds!!!

Zengal79 profile image
Zengal79 in reply to dockam

When in Rome!

Zengal79 profile image
Zengal79

West Baden Springs Resort- Gorgeous historical place.

French Lick, Indiana - Hometown of Larry Byrd

West Baden
Zengal79 profile image
Zengal79

This is a pic Brian took of his first bike at Harley museum. Same model.

Brian’s first motorcycle.
Zengal79 profile image
Zengal79

October 2021- Savannah and Charleston

A real sweet spot for us! Health wise, I was much improved and Brian was still doing decent as well. This was the “healthiest” trip we had and we enjoyed the heck out of it!

Savannah is one of the prettiest cities I have ever seen and is well preserved not having as much damage during the Civil War as most Southern cities.

Forsyth Fountain
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Zengal79

Such a treat that we were both able bodied on this trip. We average 10 miles a day. It was magic!

Magnolia Plantation
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Zengal79

We ate some good food!

Nom nom.
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Zengal79

Halloween night in Savannah. Literally best date night ever! We dressed up like rock stars and went out on the Savannah river walk scene. Sober as can be, we even sang bad karaoke.

Fuck cancer and liver failure … this was our time!

Halloween Rock Stars
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dockam

Ooohhhh Yum Yum I'm an novice Foodie

Gourmand On

youtu.be/yfaYUUT4f6k

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Zengal79 in reply to dockam

I counted them… we had 27 crab dinners. Took a picture every time. My guys favorite. I enjoy it too, but I’m more a fish gal.

Crabby
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dockam in reply to Zengal79

Yup, I'm Crabby too, but blame the ADT :-).

Dungeness is my fav - a West Coast treat.

photos.app.goo.gl/hQk1GuqLt...

The above was in Avila Beach and those are Snow Crabs

Dungeness Crab
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Zengal79 in reply to dockam

We always thank them for their service. 🦀

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Zengal79

Jeep ducking is a thing. We ducked over 100 Jeeps in our time together Spreading the Jeep love gives QoL! I shall carry on the tradition.

Duck duck Jeep
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dockam in reply to Zengal79

Lol, how fun!! Y'all are just wonderful 😀

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Zengal79 in reply to dockam

Thanks! We really made the best of it. We were a good team. His children are being amazing and selling me his Jeep for quite a bargain. The tradition will continue. :)

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dockam in reply to Zengal79

Awesome, and Yes keep doing it in Memory of Him💙 and maybe post pix on here?

My best to you Sis

Randy

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Zengal79

I’m losing steam a bit here. Such is life. Puerto Rico was a nice time. The beach was gorgeous!

Puerto rico
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Zengal79

April 2022 New Orleans! Oh, the food…

New Orleans may be the finest food city I’ve ever encountered.
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dockam in reply to Zengal79

Yum Yum

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Zengal79

I will be returning solo in December. Didn’t get enough!

NOLA
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dockam in reply to Zengal79

Jackson Square in the UL?

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Zengal79 in reply to dockam

Yes! good eye!

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dockam in reply to Zengal79

I've been there several times, my #2 son got married in 2011 on a lil Plantation in Louisiana and the Bachelors Party was in New Orleans :-)

Took my Dental staff to ADA convention there also

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Zengal79 in reply to dockam

I can’t even imagine! We went into dinner at GW fins and Bourbon Street was pretty quiet. When we finished dinner, it was mayhem! I would’ve had a good time back in the drinking days. Lol.

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dockam in reply to Zengal79

At the Batchelor party we went bar hopping for Hurricanes andHand Grenades🎉😜

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Yadifan

I'm so so sorry for your loss zengal. Not everyone gets to find that person who completes them. It looks like you did and you embraced every second of it. I've enjoyed your posts and your spirit and outlook. Your love story is beautiful and an inspiration to us all. Sending you big hugs.

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Zengal79 in reply to Yadifan

Thank you. We made the best of it focusing on quality and not quantity. My time with him was a true gift.

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Zengal79

Some fun from our cruise. We received some pretty bad news regarding his disease progress. We laid down and cried… and the man we got back up determined to make this the best vacation yet… and it was. It SO was.

Cruise pics
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Zengal79 in reply to Zengal79

These guys were just as fun as their signage.

Mojitos roadside… virgin for me of course. Yum!
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Zengal79 in reply to Zengal79

QoL! It’s written in our smiles. This is last April.

Just a shack on the side of the road.
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Zengal79 in reply to Zengal79

Cozumel Trike tour- highly recommended.

More trike tour fun.
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Zengal79 in reply to Zengal79

In May, things weren’t going great. LU177 was failing. We had a few days of no appointments. Decided to take a last minute trip to Galena. After much trepidation, we decided to take the bike. It was a 4 hour ride or so. His words were, “I’ll regret it if I don’t.” We didn’t tell a soul. We just went for it! Scheduled massages for the evening we arrived. Spent a few days eating good food. It was hard, but what a beautiful time we had.

Last motorcycle trip - Galena, IL
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Yadifan in reply to Zengal79

Hugging a sloth just made it to my bucket list.

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Zengal79 in reply to Yadifan

It was a neat experience for sure. They are so stinking cute! Glad we did it but I left a bit with mixed feelings. The animals seemed healthy and well cared for. It provides jobs for the locals but the idea of an “animal sanctuary” means something a little different in Honduras.

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Zengal79

In August we traveled to SoCa to see if Tanya Dorff could possibly help us. She was wonderful but the news was the same. Like always, we made the best of it and enjoyed the beauty around us.

Southern Cali
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Zengal79

We stayed near where the Top Gun house is. They saved it somehow. They have a pie shop in there now and a replica of the motorcycle in the movie. I found a great daily yoga on the beach and this was Brian’s last time at the ocean. We had a beautiful time.

More Cali
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Zengal79

We’ve come to the end of the road, quite literally. We continued to find as much joy possible but closer to home over the last 6 months.

We got outside every chance we could. We turned down the lights and watched concerts on the big screen tv. We loved each other through the worst of times. Thankful for the magic of my memories. We really did something!

Until we meet again, Sir.

End of the road.

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