Advanced Prostate Cancer

17,754 members • 21,857 posts

Souls on Fire - A tribute to the journey.

As most of you know HDguy61 was my guy. He passed away peacefully in December after being transfusion dependent for 6 months. Dealing with a chronic illness of my own (stage 4 cirrhosis), I relate very much to the need to find joy even in the midst of uncertainty. We were very good at that together.

We spent a lot of time on this board searching for answers and options and enjoyed all the QOL posts. So, this is my stab at one. Enjoy me on this journey if you like. Stay tuned… It’s going to be a nice little ride.

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Zengal79

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Blood Transfusion

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dockam21 days ago

Yass Sista 💙LFG Let's F in Go!!!

Post QoL make this World a Better place

youtu.be/egMWlD3fLJ8

Zengal79 in reply to dockam21 days ago

This made me smile so big! I’d never seen Easy Rider much to the dismay of my guy. He corrected that and I’m officially schooled.

Fun fact about my guy. He bought a brand new 1975 Harley Davidson motorcycle at the age of 15 with his paper route money. He saved up for that motorcycle from 8 years old. We found the receipts and pictures of his first ride a few weeks before he left this rock. Nice memory.

Thanks for following along!

dockam in reply to Zengal7921 days ago

Oh, that's so wonderful to have that from so long ago💙

That's my QoL purpose to enjoy now and then be able to reminisce later😁

Ride, Captain Ride youtu.be/HqFFjoRnltg

Ride wit me youtu.be/5XhCGR6MoSE

Fight, QoL, Live, Love, Laugh, and Ride on

Randy

spencoid2 in reply to dockam20 days ago

I love that the big bad dude has a Beagle not a Pit. I have nothing against Pits, they can be wonderful dogs like any dogs, just a bit over populized

dockam in reply to spencoid220 days ago

Lol, yea huh😂

dockam21 days ago

youtu.be/U3sMjm9Eloo

Tall_Allen21 days ago

I'm so sorry to hear you lost him. But I'm glad you are getting what you can from life while you have it. Appreciating what we have in the present moment is important for everyone.

Zengal7921 days ago

August 2020

She’s Got a Ticket to Ride 🎵

My guy traveled to Tennessee to ride the Tail of the Dragon. On his way down, he stopped to meet me in Brown County, Indiana for a ride through the beautiful Brown County State Park. My first time on the motorcycle.

First Selfie.

dockam in reply to Zengal7921 days ago

Awww, Wonderful pic of you two💙

youtu.be/Nfc2tWKcYeg

"Here's to the ones that we got

Cheers to the wish you were here but you're not

'Cause the drinks bring back all the memories

Of everything we've been through

Toast to the ones here today

Toast to the ones that we lost on the way

'Cause the drinks bring back all the memories

And the memories bring back

Memories bring back you"

This is one of my Funeral songs

Ride on Sista, Memories on

Randy

spencoid2 in reply to Zengal7920 days ago

first motorcycle ride first selfie, what is next? i still have not done a selfie.

Zengal7921 days ago

It was a glorious day. We had no idea the adventure we were about to take.

BCSP

dockam in reply to Zengal7920 days ago

So serene and beautiful💙

Zengal7920 days ago

September 2020

Took the bike on the Lake Michigan Circle Tour.

Lake Michigan

Zengal7920 days ago

Took time for some scenic views.

Lake Michigan

dockam in reply to Zengal7920 days ago

Oh, those colors💙, looks like a painting!

Lol, not as pretty view of Lake Michigan. Took daughter out to see a law school. Was diagnosed 2 months earlier, 1st grandbaby born a month earlier

Lake Michigan 03/2015

Zengal7920 days ago

We stayed at the Grand Hotel. Fun times.

The Grand Hotel

Lrv44221 in reply to Zengal7920 days ago

I’m from Michigan and have stayed at the grand

Hotel

Good memories for you I’m sure

Wasn’t the front porch wonderful?

Zengal79 in reply to Lrv4422119 days ago

Yes!

Zengal7920 days ago

Room service!

Grand Hotel

dockam in reply to Zengal7920 days ago

Yea babeee😂

Zengal7920 days ago

Lake Kitchititkipi

Lake K

Zengal7920 days ago

More Lake K

Lake K

Zengal7920 days ago

Morton Arboretum Fall 2020

A beautiful place.

Many sunsets we watched here.

dockam in reply to Zengal7920 days ago

Epic sunset

Scout4answers in reply to Zengal7920 days ago

One of my favorite places... I see this same sunset from my deck.

Zengal79 in reply to Scout4answers20 days ago

Ha! We were right there too.

Scout4answers in reply to Zengal7920 days ago

Herrick Lake

Zengal7920 days ago

Morton Arboretum

Cool dude.

dockam in reply to Zengal7920 days ago

Wood Troll?

Zengal7920 days ago

That all for 2020. My health declined quite a lot during this time so I had to skip his Arizona ride. He had a grand time and met up with a fellow warrior out there to make some memories. That’s all for today. Tomorrow I’ll start 2021 in HAWAII!!

He sent me this selfie. Nice view!

dockam in reply to Zengal7920 days ago

Awesome, wanna see where y'all went

Zengal7920 days ago

Here’s a sneak peak from Hawaii Jan 2021

Aloha

MichaelDD20 days ago

Best to you on your journey. I found out 5+ years ago I had prostate cancer. 4+ it moved to advanced with metastasis. Since I was diagnosed, my son and daughter-in-law buy me a new car when I want. I just got a brand new 2023 -301 horsepower Mini. All of them have been my order, the way I want them with everything that I want them to have. This is my 4th one. It's a gift to me from them so I have something to smile at when I go in for treatment. Or if I want to go anywhere I smile when I go. The thing is so dang fast its unreal. I do it on fantastically heated seats! And I do smile a lot. But through everything QOL is what matters to me most. It's behind all my decisions about my cancer.

My newest one..

Zengal79 in reply to MichaelDD20 days ago

Right on! Gotta make the best of it.

spencoid2 in reply to MichaelDD20 days ago

I wonder if this would be a good dirt road car. It could just fly over the washboards. Seriously we are probably going to have to rethink our vehicle and probably housings. We are too old (with chemo and covid added) to take care of ourselves in the most severe weather. We are having some pretty bad weather in California and not much of anything is working right now. Now I understand why all of my friends were having babies. Some of them turned out well and bought them cars. Our Poodles do not have the funds to buy me a car.

Rhalo20 days ago

GM... I'm new to this group!! Sorry to read about your guy!!! He appeared to have lived life to the fullest with lots of memories for you both. You mentioned he lived transfusion dependent for six months. Would you mind sharing more with me. My husband was diagnosed with prostate cancer in 2012. He says he's always been anemic. He started Pluvicto October 28, 2022 has had to have two transfusions since then. We were told it would take two to three Pluvicto infusions before the bone marrow cleared up. We get our second infusion January 16, 2022. Since that time his PSA has DOUBLED!

Zengal79 in reply to Rhalo20 days ago

Hello! Sorry you’re at such a scary place in this journey. Did your husband have both a FDG AND PSMA SCAN?

I am no expert, but here is what I do know. My guys PSA went up significantly after first treatment and was told the same thing as your guy. We took it at face value. Later we learned that an FDG pet scan may have shown that he was not the best candidate for pluvicto. Other countries who have been doing this longer use both scans to determine who is a good candidate . He wishes he had stopped pluvicto and searched clinical trial options before his blood counts got so low that he was excluded from anything. Something about diffuseness is shown on the other scan 🤷‍♀️ All I know is Brian wishes he had demanded both a PSMA scan and a FDG scan. I’m not saying it would’ve made any difference. I encourage to make a post and ask the guys about it here and do some research on your own. Specifically about the FDG SCAN along with PSMA scan. Best wishes to you! Such a scary time.

Rhalo in reply to Zengal7920 days ago

yes he had both that showed he had uptake ( or he lite up)

Rhalo in reply to Rhalo20 days ago

do you know if he was anemic prior to Pluvicto?

Zengal79 in reply to Rhalo20 days ago

He was. The comparison of the two scans is what is important. And you want someone reading them that understands. Please make a post with as much details as possible. These guys will help guide you. You may be in the best of hands already, but they may suggest second opinion as well. Beat wishes to you guys.

Scout4answers20 days ago

Throw us on the back of that Hog and take us for a wild ride, our Stage 4 Sister... We are here for you.

dockam20 days ago

youtu.be/FdPAjKkU8u0

Zengal79 in reply to dockam20 days ago

One of my favorites. In spite of our age difference, music was a huge part of our lives.

dockam in reply to Zengal7920 days ago

Oops, didn't post in replies 🤣

dockam20 days ago

You may have noticed that I post songs a wee lil bit😂

I'm a Radiohead with snippets of song ready to launch outta my brain

Like this one; youtu.be/BATks6KEu0Q

My best to you Sista

Bug Hug from CA QoL on

Randy

Lrv4422120 days ago

Dear Zengal79

I have not read any of the replies so forgive me if I repeat

I’m sorry for your loss yet I’m happy you’re going to move along in your life

My husband is still doing what he can

And I too, try to help anyone, anyway I can

When I had cancer, it was almost a wake up call for me to live with QoL

I find for me at least, talking to women that deal with the loss helps.

I lost my first husband to stomach and throat cancer at a young age

Perhaps keeping a journal now might give you some peace and future thoughts

I’m here if you’re ever interested in talking crying or letting your anger out

Zengal79 in reply to Lrv4422120 days ago

Thank you

Lrv44221 in reply to Zengal7920 days ago

You're welcome👍🦊

dockam in reply to Lrv4422120 days ago

Amen Sis, we are ohana, family, here 💙youtu.be/uyGY2NfYpeE

20 days ago

No one cares.

Scout4answers in reply to 20 days ago

Au contraire my one eyed friend.. it got your attention 😎

Love to you in the New Year, OYJ

Scout4answers20 days ago

So why would a guy with those kind of assets be so threatened by a minor player like the Scout? It is feeling more like envy my man. Not at all becoming on a master of the universe

Zengal7920 days ago

Jan 2021 - Hawaii

Our story, like any good one is riddled with light and dark. It’s peak Covid when Brian and I started talking early 2020. He’s just gotten a divorce. He had a fire in his belly, and they just didn’t enjoy the same things. He’s on to bachelorhood.

Bam! Covid time. Not the friendliest of dating environments. To top it all off, a woman that he really wanted to spend more time with passed away unexpectedly. He was devastated.

The Universe opened a door for us. I was a miserable floundering alcoholic at the end of a very bad 20 year marriage. My health was failing although we were only just finding out how bad it was.

This was Brian’s smooth sailing time. We’d only been seeing each other a few months. He should’ve bailed. He didn’t.

I joined him in Hawaii 3 days after being discharged from a 2 week hospital stay. I was in liver failure. I have not drank since. Much discussion was had whether it was safe for me to travel to Hawaii. Not the best place to be in liver failure. He sent me this. Hepatic encephalopathy be damned, I’m going to Hawaii!

Screw Covid, cancer, liver failure and whatever anyone else thinks of the risk.

Zengal7920 days ago

Literally an empty plane. Hawaii had pretty strict requirements to follow. Fortunate this meant cheap prices and no crowds.

We’re gonna do this thing.

Carlosbach in reply to Zengal7919 days ago

F'ing awesome

Zengal7920 days ago

My memory of Hawaii is cloudy. I was quite sick and it was a whirlwind. I believe we visited 3 islands.

Somewhere pretty… no clue where.

Scout4answers20 days ago

I would drive to Juarez and buy me one

This is why you are OEJ and not Happy Jack

youtube.com/watch?v=rkYRytc...

Zengal7920 days ago

Road to Hana (I think) I really need to try to piece all this together. Sure wish he was here to ask him

Waterfall

Zengal7920 days ago

Everything everywhere is beautiful in Hawaii. It is a place of magic.

Take me back!

dockam in reply to Zengal7920 days ago

"Take me back to da kine"youtu.be/qL58smK3FWE

Zengal79 in reply to dockam19 days ago

Ahhhh! Yes! I promised him I’d go back healthy, and I absolutely will… even if I have to sleep in the back of a Jeep rental!

dockam in reply to Zengal7919 days ago

Take me as your guide😂💙

Carlosbach in reply to Zengal7919 days ago

My first trip to Kaui I landed in a massive storm. I slept in the back of a Colt station wagon (way before your time) and woke up to massive palm branches across the front windshield

Zengal7920 days ago

The location info is on this one. Ho’Okipa Beach

Ho’Okipa Beach

Zengal7920 days ago

View from the room at Westin Hapuna Beach Resort. Highly recommend.

Hapuna Beach

Zengal7920 days ago

We also spent 5 nights here. Disneys Aulani. I’m a bit of a Disney Resort nerd, and this was a dream for me. Beautiful resort. If you have kids in tow… this is where it’s at! As two adults, still very enjoyable but better accommodation can be had for the price tag of this place.

Aulani

Zengal7920 days ago

Some of my guys snorkeling adventures. I was not well enough for snorkeling. In fact, I was barley well enough to walk. He had to push me in a wheelchair through the airports. It was actually quite rough for me. This is what we did though. We pushed through.

Fishy

dockam in reply to Zengal7920 days ago

Ooooh, such a bright yellow 😊

Zengal7920 days ago

Hey dude!

Crush

Zengal7920 days ago

Some of his hiking adventures. I had to stay behind.

Worth the effort, he said.

dockam in reply to Zengal7920 days ago

Awesome, King of the World atop Diamond Head

Zengal79 in reply to dockam19 days ago

Awww, thanks for letting me know. I shall do it on my own.

dockam in reply to Zengal7918 days ago

I'll be there this May😁

Zengal79 in reply to dockam18 days ago

Right on, brother!

dockam in reply to Zengal7917 days ago

Honolulu City Lights beckoning me to come back

The Duo I saw on Friday sang it then, this is from another venue youtu.be/3vSVAVHoOwo

From my Hawaii album a couple of weeks ago photos.app.goo.gl/wgCBdUbk8...

Atop Diamond Head on bday

Zengal7920 days ago

Sometimes the only way is through.

Did this one solo as well.

Zengal7920 days ago

We had to sample some Donkey Balls.😂

A little fun.

Zengal7920 days ago

Goofy tourist fun. Luau in Oahu (I think) Terrible food but a good time was had by all.

I had put on 70lbs of fluid in a month. None of my clothes fit. You’ll see the changes over time. A sick gal I was, but my guy sure looks healthy and handsome. How swiftly we switched roles, but the ride was worth the tough stuff. This is what life is made of.

Tourist time.

dockam in reply to Zengal7920 days ago

Great pic 💙

Zengal7920 days ago

He had to drive way up in the clouds to get to this place. I was too sick to join the fun. Maybe Randy knows this one.

Another one I missed.

dockam in reply to Zengal7920 days ago

On Maui? Haleakala probably. I did the bike down with 2 Bro in laws after we watched sunrise

viator.com/Maui-tours/Bike-...

Zengal79 in reply to dockam19 days ago

Cool! So glad to have you here. That sounds right. There were air quality concerns (?) for me or something… I don’t remember exactly but I couldn’t join him. It’s really a shame that I was so sick and he was so well. But… that’s just part of the journey, man. All just part of the journey.

Zengal7920 days ago

It’s getting hot in here!

Hot stuff!

dockam in reply to Zengal7920 days ago

Big Island, I assume

Zengal7920 days ago

Waterfalls everywhere.

Road to Hana probably

dockam in reply to Zengal7920 days ago

Yup, all the water makes for verdant forests

Zengal7920 days ago

Travel halted for months. I spent 6 weeks in a Nursing Home Rehabilitation to learn to walk again. My guy gets a new set of wheels. We fell in love with Jeep life in Hawaii.

By July, we are back in the saddle again.

Jeep Jeep

Zengal7920 days ago

July 2021!

Concerts resume! REO Speedwagon’s first show post-covid. Last time in the wheelchair for me. Physical therapy is helping and my liver is holding its own. We get a nice summer and fall of smooth health sailing coming up for us both. Hope you’re enjoying the ride.

Thank God for concerts again!

dockam in reply to Zengal7920 days ago

Yes, Love it all💙

Zengal7920 days ago

Still to come- Wisconsin, Puerto Rico, Savannah, Charleston, New Orleans, a cruise and finally California. We left nothing on the table.

Last meal in Hawaii. Thank you fishy fishy. Yummy yummy!

Best meal we ever enjoyed together.

dockam in reply to Zengal7920 days ago

You ate Nemo😂

Zengal79 in reply to dockam19 days ago

nom nom! I thanked him for his service. Pescatarian diet now, all the liver can handle.

dockam in reply to Zengal7919 days ago

Oohh a Southern California visit?

Zengal79 in reply to dockam19 days ago

Yes, sir. Although, that was our last trip and he was quite unwell by then. We made the best of it though!

End of the ride. Quite literally.

Zengal7920 days ago

Well, it’s yoga time for this gal. More tomorrow but here is a sneak peek… good times to come. Good times indeed! We’re hittin the road, Jack!

Won’t you join us!

dockam in reply to Zengal7920 days ago

Awww, wonderful pix🤙💙

Kaliber in reply to Zengal7920 days ago

hi Zengal79, I’m sorry to hear about your “ guy “ Brian passing , a soul brother …double brother at that. We have a lot in common. I’m also a hard core biker motorcycle enthusiast yayahahahaya

both of us love hogs and have aPCa in common too . That plus “ the hammer “ my old lady kinda likes her “ beverages “ as much as it sounds like you do - did . She can get a wee bit “ testy “ sometimes but we’ve had 44 years together, never the less.

That bagger is a thing of beauty , just love it. Had to finally sell my Dyna Super Glide Custom because my bones are so brittle , just holding it up , at a light , might snap one of my leg bones. Naturally I had it loaded with screan’in eagle goodies , crank to top end. Broke my heart.

I love 4X4 too ( doesn’t everybody ) , it’s a pick ‘em up truck tho . Silverado 4X4 Z71 it does a good job out in the boondocks too.

Now I ride on a three wheeled etrike I call my Hardly-A-Davidson … my mobility scooter .. can’t walk much these days.

I love your great QOL input here …. And foodie porn too. It’s a great spirit to see you getting deep into. You obviously “ get it “ , especially with both you and Brian’s experience. It’s good to see you getting out and grabbing that gusto as much as you can, while you can . You’ll never regret it.

Keep that great QOL coming, we love it … we love you too sister.

❤️❤️❤️

My baby out front of a local coffee shop .

Zengal79 in reply to Kaliber19 days ago

Sweet! It’s a bummer giving up things we love. But, joy can be found in the depths of it all. We always talked about making QOL posts but we really never got to it. Too busy livin’ man, too busy livin’!

Now, that caregiver mode is gone, I’ve got the time and it’s helping me get through this loss to look back at what all we did. We lived more in those last two years than some people do in a lifetime. All about the quality. And… it saved my life.

Kaliber in reply to Zengal7919 days ago

hop right in, dealing with grief works better with brothers and sisters that know what you are experiencing. also there is a special group for ladies just like you too. You might find some special common ground there as well. Maybe Darryl will hop in here and give you the link … otherwise, pm Darryl and he’ll be glad to help. It used to be on the right side list but I didn’t see it.

❤️❤️❤️

Kaliber in reply to Zengal7919 days ago

check out the HU “ prostrate cancer caregiver’s group “ hosted by cleodwoman.

You can see this at the top of this page on the right side. It’s under “ pinned posts “ … press the “ see more pinned posts “ arrow and go down the list to the cleodwoman post. It’s a special group for caregivers , many that have lost their loved one.

Lots of good people here.

❤️❤️❤️

dockam in reply to Kaliber19 days ago

Yes, keep it coming (QoL) luvyoutu.be/mABuS9eSWnQ

Kaliber in reply to dockam19 days ago

love ya buddy

❤️❤️❤️

dockam in reply to Kaliber19 days ago

Me ke Aloha Pumehana

With warm Love

Bruddah Kal

dockam in reply to Kaliber19 days ago

Hey Bruddah Kal, totally forgot this song, Kapono played it tonight

From me to you, and so many others here 💙

youtu.be/fR1rGsKnvOo

Kapono and Beamer concert in Irvine

Carlosbach19 days ago

Zengal, Looks like a fantasy. Good for your guy, and for you. You Rock!

Zengal79 in reply to Carlosbach19 days ago

You know, we found so much joy in some pretty hopeless circumstances. Blessed, indeed!

dockam in reply to Zengal7918 days ago

That's a Beautiful attitude, Make Joy outta your BS situation. Make the most of the time you have left, that's my sentiments too with the QoL things that I undertake.

Making dang lemonade outta cancer lemons

Mahalo nui loa for this QoL Thread.

Luv ya Sis💙

youtu.be/E5ngugFBcaM

dockam in reply to Carlosbach17 days ago

Yea Rock on youtu.be/EFMD7Usflbg

Zengal7919 days ago

Fun fact about us

My guy valued his time. It was important to him to not only have great experiences, but also to give back. We volunteered on Tuesdays (when not traveling) for animal transport. A huge van full of 100 + animals were picked up from kill shelters and brought to a meeting point where volunteers would take them to animal rescues. We transported around 10 crates of animals every Tuesday to give them a chance at adoption. We even fostered 3 sets of kittens while we were together, all successfully vaccinated, fixed, and chipped then placed with their new families.

Spreading joy and love. ❤️ Can’t have a bad day rescuing cute critters! Here’s some highlights.

Fosters and animal transport.

Kaliber in reply to Zengal7918 days ago

kitties and puppy dogs … doesn’t get any cuter than that. We used to have teacup poodles … smart and loving little dogs.

Zengal7919 days ago

This was the last of our fosters. Popcorn and Popette. Bouncy bunch! Happily in their furrrevwr homes now.

This was one cool cat, my guy.

Fosters

Lrv4422118 days ago

hello, again I’m sorry for your loss

How long were you two married?

Do you live anywhere close to family?

Not being nosy but just wanted to possibly help you with some things that might help

Although you want to get on with your life , be sure you give yourself time to really grieve

Zengal79 in reply to Lrv4422118 days ago

We only knew each other 842 days, not married. It was a whirlwind. I have a good support system and am doing well thankfully. I’m using this thread to tell our story which is helping me grieve with a grateful heart. At the end, I shall say goodbye finally to prostate cancer and focus on the next task at hand… Living well with my end stage liver disease. I plan to live it in his honor each and every day.

Lrv4422118 days ago

I'm so glad you have a support system. Any grown children that might be able to help you?

Liver disease is a tough road to hoe. When I was in grad school, a man that was in some of my classes had cirrhosis.

Perhaps changing what you eat, and drink might help?

Do you live in Michigan?

Let me know if I can help

Nutrition is my area of expertise. (And sometimes my downfall when I eat junk food lol)🦊

Zengal79 in reply to Lrv4422118 days ago

I’m in Indiana. I’m basically a pescatarian now. My diet is mostly plant based plus eggs, fish and seafood. I cannot handle animal proteins at all. My health in now quite improved, especially from where I started. Daily yoga practice, and never ever touch alcohol.

Lrv4422118 days ago

good for you. I do yoga too

I eat lots of eggs.

I always have several hb ones in my fridge

I don’t know much about liver disease but I have read that Milk Thistle is good for the liver

Zengal7918 days ago

The Mississippi River on the way to Mayo. We made the best of even a trip for cancer treatments.

Mississippi River

dockam in reply to Zengal7917 days ago

Beautiful, no waterways like that in CA, well maybe with the latest storm

youtu.be/O2HpAdaE7R4

Zengal7917 days ago

Summer 2021

Out of order a bit, but we always to the time to enjoy nature.

Zengal7917 days ago

We attended may local band concerts as well as some big acts including…

The Eagles, REO, Dave Matthews Band, Guns n Roses, Earth Wind and Fire and Santana.

This is Dave. My personal favorite, but not his. First concert post liver failure.

DMB- He took one for the team here. My first concert and motorcycle trip to Milwaukee.

dockam in reply to Zengal7917 days ago

That's an Awesome list of bands, wonderful QoLing with Your Love

Zengal7917 days ago

More from the Milwaukee concerts trip. Summerfest 2021

Ostoff Resort (fabulous spa!)

Harley Davidson museum

More Wisconsin

dockam in reply to Zengal7917 days ago

Cheese Curds!!!

Zengal79 in reply to dockam17 days ago

When in Rome!

Zengal7917 days ago

West Baden Springs Resort- Gorgeous historical place.

French Lick, Indiana - Hometown of Larry Byrd

West Baden

Zengal7917 days ago

This is a pic Brian took of his first bike at Harley museum. Same model.

Brian’s first motorcycle.

Zengal7917 days ago

October 2021- Savannah and Charleston

A real sweet spot for us! Health wise, I was much improved and Brian was still doing decent as well. This was the “healthiest” trip we had and we enjoyed the heck out of it!

Savannah is one of the prettiest cities I have ever seen and is well preserved not having as much damage during the Civil War as most Southern cities.

Forsyth Fountain

Zengal7917 days ago

Such a treat that we were both able bodied on this trip. We average 10 miles a day. It was magic!

Magnolia Plantation

Zengal7917 days ago

We ate some good food!

Nom nom.

Zengal7917 days ago

Halloween night in Savannah. Literally best date night ever! We dressed up like rock stars and went out on the Savannah river walk scene. Sober as can be, we even sang bad karaoke.

Fuck cancer and liver failure … this was our time!

Halloween Rock Stars

dockam17 days ago

Ooohhhh Yum Yum I'm an novice Foodie

Gourmand On

youtu.be/yfaYUUT4f6k

Zengal79 in reply to dockam17 days ago

I counted them… we had 27 crab dinners. Took a picture every time. My guys favorite. I enjoy it too, but I’m more a fish gal.

Crabby

dockam in reply to Zengal7917 days ago

Yup, I'm Crabby too, but blame the ADT :-).

Dungeness is my fav - a West Coast treat.

photos.app.goo.gl/hQk1GuqLt...

The above was in Avila Beach and those are Snow Crabs

Dungeness Crab

Zengal79 in reply to dockam17 days ago

We always thank them for their service. 🦀

Zengal7916 days ago

Jeep ducking is a thing. We ducked over 100 Jeeps in our time together Spreading the Jeep love gives QoL! I shall carry on the tradition.

Duck duck Jeep

dockam in reply to Zengal7916 days ago

Lol, how fun!! Y'all are just wonderful 😀

Zengal79 in reply to dockam16 days ago

Thanks! We really made the best of it. We were a good team. His children are being amazing and selling me his Jeep for quite a bargain. The tradition will continue.

dockam in reply to Zengal7916 days ago

Awesome, and Yes keep doing it in Memory of Him💙 and maybe post pix on here?

My best to you Sis

Randy

Zengal7914 days ago

I’m losing steam a bit here. Such is life. Puerto Rico was a nice time. The beach was gorgeous!

Puerto rico

Zengal7914 days ago

April 2022 New Orleans! Oh, the food…

New Orleans may be the finest food city I’ve ever encountered.

dockam in reply to Zengal7914 days ago

Yum Yum

Zengal7914 days ago

I will be returning solo in December. Didn’t get enough!

NOLA

dockam in reply to Zengal7914 days ago

Jackson Square in the UL?

Zengal79 in reply to dockam13 days ago

Yes! good eye!

dockam in reply to Zengal7913 days ago

I've been there several times, my #2 son got married in 2011 on a lil Plantation in Louisiana and the Bachelors Party was in New Orleans

Took my Dental staff to ADA convention there also

Zengal79 in reply to dockam11 days ago

I can’t even imagine! We went into dinner at GW fins and Bourbon Street was pretty quiet. When we finished dinner, it was mayhem! I would’ve had a good time back in the drinking days. Lol.

dockam in reply to Zengal7910 days ago

At the Batchelor party we went bar hopping for Hurricanes andHand Grenades🎉😜

Yadifan11 days ago

I'm so so sorry for your loss zengal. Not everyone gets to find that person who completes them. It looks like you did and you embraced every second of it. I've enjoyed your posts and your spirit and outlook. Your love story is beautiful and an inspiration to us all. Sending you big hugs.

Zengal79 in reply to Yadifan11 days ago

Thank you. We made the best of it focusing on quality and not quantity. My time with him was a true gift.

Zengal7911 days ago

Some fun from our cruise. We received some pretty bad news regarding his disease progress. We laid down and cried… and the man we got back up determined to make this the best vacation yet… and it was. It SO was.

Cruise pics

Zengal79 in reply to Zengal7911 days ago

These guys were just as fun as their signage.

Mojitos roadside… virgin for me of course. Yum!

Zengal79 in reply to Zengal7911 days ago

QoL! It’s written in our smiles. This is last April.

Just a shack on the side of the road.

Zengal79 in reply to Zengal7911 days ago

Cozumel Trike tour- highly recommended.

More trike tour fun.

Zengal79 in reply to Zengal7911 days ago

In May, things weren’t going great. LU177 was failing. We had a few days of no appointments. Decided to take a last minute trip to Galena. After much trepidation, we decided to take the bike. It was a 4 hour ride or so. His words were, “I’ll regret it if I don’t.” We didn’t tell a soul. We just went for it! Scheduled massages for the evening we arrived. Spent a few days eating good food. It was hard, but what a beautiful time we had.

Last motorcycle trip - Galena, IL

Yadifan in reply to Zengal7911 days ago

Hugging a sloth just made it to my bucket list.

Zengal79 in reply to Yadifan11 days ago

It was a neat experience for sure. They are so stinking cute! Glad we did it but I left a bit with mixed feelings. The animals seemed healthy and well cared for. It provides jobs for the locals but the idea of an “animal sanctuary” means something a little different in Honduras.

Zengal7911 days ago

In August we traveled to SoCa to see if Tanya Dorff could possibly help us. She was wonderful but the news was the same. Like always, we made the best of it and enjoyed the beauty around us.

Southern Cali

Zengal7911 days ago

We stayed near where the Top Gun house is. They saved it somehow. They have a pie shop in there now and a replica of the motorcycle in the movie. I found a great daily yoga on the beach and this was Brian’s last time at the ocean. We had a beautiful time.

More Cali

Zengal7911 days ago

We’ve come to the end of the road, quite literally. We continued to find as much joy possible but closer to home over the last 6 months.

We got outside every chance we could. We turned down the lights and watched concerts on the big screen tv. We loved each other through the worst of times. Thankful for the magic of my memories. We really did something!

Until we meet again, Sir.

End of the road.

Advanced Prostate Cancer

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