Update on PSA with Xtandi--it has gone down!

[JD-guy]

Update on my PSA, July it was .01

19 Oct 2022 -----PSA is less than .01 I am very thankful. I do not have any bone pain. I still have some side effects from chemo, like neuropathy on my right foot. Still have some lymphoedema to deal with, and I have some inflammation. (I think from Xtandi. )

Xtandi has helped bring my PSA down, I have a little brain fog, the biggest SE is, it has changed my sleeping routine. I wake up very early most days, I take it about 7:30 in the evening. If it take it later than that, then I have bit of brain fog hanging on the next day. I have tried Melatonin, it put me to sleep, but hangs on into the next day also longer than without it. (Any advice on the sleep let me know) So I keep going, keep active, keep working, walking and I am trusting and praying to the Lord that my PSA can stay down for a long time. The Lord only knows.

But over all I feel good. Again, I try to keep my focus, on what I have, not what I do not have.

I trust as we go into the thanksgiving season in the US, it can be a time for us to think about our gratefulness regardless of this "ugly beast" we deal with everyday.

Again thanks to everyone for all your experiences and advice on this journey! I read on this forum quite a bit.

blessings to all

Keith

PS: see my profile for the rest of my journey

[Ramp7]

Any type of activity should help. As for me, I hike in the woods 7 miles each morning. A year ago I got stuck to the couch. Dropped over 25 pounds, seems to help with side effects.

[awb1]

I've taken Xtandi on and off for several years. I cycle it with testosterone, aka BAT. I usually take 40 or 80mg, never 160. For a few years I took 40mg/week (lol, don't ask). I pivot between therapies. Xtandi has a half life mean of 8 days. What time of the day shouldn't make any difference because the Xtandi that's in your system from the last few days, is still there 24 hours a day. I take stuff in the morning, unless it's melatonin or anything sedating. I could be wrong on my Xtandi half life statement, would like to hear other's input. Good luck with your energy, hard exercise is my go-to therapy for fatigue.