It has been a couple of months since I posted anything, I have replied here and there to some post. I am very grateful for this forum. (you can look on my profile more details) My last post would have said that I have new bone mets. that was not correct, you can look in my profile for the details.
Started Xtandi June 5th,
27 July---PSA .01-----So grateful for this report, It has been quite a roller coast ride up and down with my emotions this spring and summer.
I have had to manage when I take the the Xtandi because of sleeping, but for the most part it has been going good. It seems that if I take it at 8:00 PM it works best for me.
As I wrote a few weeks ago, my back pain has diminished, my inflammation has diminished as well, since I have been walking in the mornings. Approx. 1/2 mile to 1 mile per day. I have a bad knee (bad before cancer) so I am grateful that I can walk this much. It has helped clear my head. I would like to start some other exercises in the future.
I am finally feeling a lot better physically since I started chemo last fall, I am hoping and trusting that I can feel this way for a long time. We will see what the Lord gives me .
I would like to thank everyone for all you encouragement, advice and information that you have helped me with in the last 1-1/2 year. I know the journey is far from over but I am very grateful for where things are at. I try and focus on what I have--not what I do not have.
blessings to everyone.
Keith
Written by
JD-guy
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Congratulations on your journey thus far!! You have a wonderful attitude!! This site is truly a blessing … lots of caring and compassionate (and knowledgeable) members that are committed to helping one another.
Wishing you continued great results and a long and happy life!
You are doing great and thanks for letting us know. I'm 2 1/2 years into this and Chemo, Zytiga instead of Xtandi has never got my PSA as low as yours.I read your bio and thanks for all the detail. You describe the chemo experience well except I was lucky to never get infections.
I still don't know why they don't automatically give Neulasta on the first chemo infusion. I see that a lot here and I had the same experience. They had me come in on Saturday the day after my first infusion for a mini-check-up. The nurse saw me and really started pouring out the pity and compassion and gave me all kinds of emergency and what not phone numbers and got the shot of Neulasta into me lol. Yea after that first infusion with no WBC's I was a site for sore eyes dragging myself along huffing and puffing etc.
Well hey your an alright guy. Jesus, John Deere's and a couple beers lol.
Between being a beer fiend all my life and now my brain foggy I read "went to the office for a couple of hours" as "went for a couple beers". The brain reads what it wants to lol.
I hear you on the beer. I’ve been brewing craft beers for 16 years but since the cancer Dx I have stopped brewing and drinking. I really enjoy different styles if beer. Now it’s a taste here and there from what my son May pick up. Maybe one day I’ll brew again. 🙁
I'm so happy to read you are doing well... you have certainly been through a lot. I'm also glad you have your strong faith to lean on. Thank you for posting your info... it really helps others, including me, here... Stay Strong!!
My husband is just starting the journey. Diagnosed beginning of June... Had his 3 Firmagon shots and will start Lupron next month. Doctor is trying to get approval for Darolutamide. They can't start his chemo, Docetaxel, until next month because he is too anemic and will need blood infusions... which may happen any way next month if the anemia doesn't get better. So we are worried the cancer is spreading. He has it throughout his spine, ribs, pelvis, hips, and some mets in his legs, lungs, lymph nodes, and skull.
With any kind of luck you have years to enjoy your walks. I am celebrating my 6 th anniversary of my diagnosis next week. Oncologist is tickled with my being on the right side of the grass. 😂😂. So am I. Live every day as it’s your last, plan your future as if you don’t have the monster. 🙏🙏🙏
Good for you. i look at my wife and it makes me focus on what we no longer can share; i find it very hard to focus on the good that i have left, when i had to give up so much to be where I am. But it sounds like you are in a better place. maybe one day i will be able to change my point of view, but it looks like it takes longer than 2 years for me to do so.
Look at her and think of how good it is that shes with you....find new ways to enjoy each other.....i was just getting into my 2nd marriage when this train rolled in....but we both climbed aboard.....and we laugh untill we cry some times.....sure itd be great to have those nights......we did....but im not a lucky one that adt doesnt steal almost all the man in you....lucky ive got a deviant mind....theres more than one way to make a cat purr.....
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PSA is increasing after 11 cycle of Docetaxel, what should we do now ?
PSA up after one month on Xtandi
Currently Xtandi Monotherapy, have had only Taxotere, no other therapy of any type. G9 2005. PSA rising now. Considering ADT 1/2 dose.
On Xtandi since 2/3/18 PSA holding
