I was trying to find the underlying data how they calculate the 5 and 10 year survival rates for prostate cancer. In particular, I'm interested in seeing what's excluded in the calculation. For example, do people who die due to having have adverse effects from the cancer treatments get excluded from the actual calculation of the 5 and 10 year survivals. That type of thing.
I don't have access to the SEERS database - I assume this would have this type of info in there somewhere. So I have been scouring around trying to find this out.
How easy is it to get access to this DB? Has anyone done this?
Then I came across this article which I thought was of interest. Might be helpful for people when weighing up treatments and their associated risks. Hope it helps someone.
The advanced prostate cancer patients here like me have to weigh things like cardiovascular risk factors with dying from not getting proven, SOC treatments.
Just curious, what treatments are you doing/have done for your prostate cancer and have you had any bad side effects like cardiovascular issues?
I don’t post my personal information on any public sites. Others are free to do so, but it’s something I never do.I posted this so people can see the risks relative to other treatments, not unproven treatments outside of SOC. You may have the opportunity to use different treatments or indeed mix them.
Do you have alternative treatments you’re doing where you feel it’s got specific CV risks?
I don't believe in "alternative treatments" any more than I believe in alternative facts. Treatments have to have a scientific basis and be proven for me to try them.
Everybody has to and will decide for himself. Having said this I‘m aware of the CV risk, with as well as without PC treatment. As PC isn’t a youth illness, many men with PC already bring their CV risks to the party before treatments start. Most PC treatments add to this risk.
What I do: BMI under 20, WFPBD, no sugar, no oil, no alcohol, time restricted eating (18:6), meditation and daily exercise / sports for around 2 hours. I hope and trust that by doing so I can mitigate my risk and do good for both, CV and PC
You seem to be doing a lot of alternative treatments. I believe diet and exercise are the two biggies. Do you have any concerns that such dietary habits and exercise could interfere with your regular treatment?
Thanks Darryl...... interesting topic.....just today read something about ADT actually reducing survival when added to RT for a certain subgroup of men in a study with certain co-morbidities....... a constant learning experience!! for that group of men, RT without ADT increased survival!!
That’s an excellent video actually. It’s right on point. It’s a concern to me because it’s exactly my family history. It’s something I seriously consider. Dying earlier from CV issues is probably my biggest secondary concern. I managed to get my blood pressure and heart rate down from a high to low risk by regular swimming. I aim for 5+ a week.
You post no personal information as a stated personal policy and are 41 years old. Do you have advanced prostate cancer, or is that too personal a question?
I’ve not seen someone refuse to give even the most basic details about themselves on this site. We don’t even know if you have or have had cancer. It made me wonder why are you here.
But reading back through some of your posts and replies I understand now.
It’s not a rule to share, but it’s not helpful for others. This is a give & take forum as far as I understood it. You might to re-evaluate your decision.
Privacy is important to many including myself.If I was forced to give my personal information I wouldn’t even consider being a member. Instead I would lurk and read.
The issue I have is someone posting what reads as factual content without supplying any experience of any kind or even any actual opinion about it. When questioned, no defense of it either.
Given what's been discussed lately here about the truth, this approach reads to me like a way to promote an agenda while appearing to be impartial. Personally I don't buy it, but of course members are free to help themselves to it and interpret it as they wish.
Not really sure what that means. Can you give a specific example? What ‘truth’ are you talking about? Are you suggesting that people are being untruthful to fit some hidden agenda? Like what exactly?
Well can you explain what you mean? It’s like you’re talking in riddles. Just explain what you’re issue is.Do you think I’ve got some hidden agenda and being untruthful?
Can you give an example of what you’re talking about?
Seriously, some people on this site seem happier to pick some kind of fight than to actually try to inform themselves. They’ll cause a fight in an empty room! 🤣
I don't buy it either. I've seen a pattern on this forum of people making posts with subtle criticism of the Standard of Care treatments claiming that they are "just trying to help" while at the same time promoting their "alternatives" agenda through other posts. Undermine the SOC, promote the alternatives. And there always seem to be people to defend them. I'll probably get reamed over this comment but you know what? I don't give a crap!
Not accusing you of anything, just explaining what I've seen. If you don't fall into the category of criticizing the SOC and promoting alternatives, great! If you do, I think it will be obvious. Of course I would encourage you to talk about your own cancer and the treatments that you've taken to fight it.
Age and CV issues go hand in hand... And what might be causation or association are two different things.
Without watching the video, I understand the difference. Especially with family history involved.
But the question could be more accurately presented if the ask is, does PCa therapy (some) further complicate or compound the issue?
Quote "This can be partially explained by shared risk factors such as age, alcohol intake, obesity, and cigarette smoking (Rawla, 2019). Nevertheless, other possible causes can also be responsible"
Can't automatically then be making causation (CV) as a primary result of therapies just because PCa. Like dieting, I believe an impossible task to differentiate! What did these patients who died eat? How much exercise? What environmental exposure? Life habits before diagnosis and treatment? Etc., Etc... Lol...
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