Sarcoma or PCa recurrence place your ... - Advanced Prostate...

Advanced Prostate Cancer

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Sarcoma or PCa recurrence place your bets!

8 Replies

10 years ago i was treated for a liposarcoma. It was classified as a “dedifferentiated liposarcoma, high grade”. Luckily it was in a very treatable place, was small, and they were able to remove it and like 2 inches of margin in every direction. They followed up with radiation for good measure.

3 years ago i was diagnosed with PCa. You can see my history in my profile, but long story short i am recurrent after a ralp and prostate bed radiation. PSA around .8 three months ago (waiting on results from bloodwork today)..

Psma pet on Monday reveals a small nodule in my lung. 5mm by 8mm, suv max 5.3. Nothing else.

Place your bets

- PCa

- Sarcoma

- something else

- false positive

Read more about...
8 Replies
Lyubov profile image
Lyubov

How dreadful for you! Can they biopsy the nodule? I don't know enough about PCa, but have non-small cell lung cancer myself (my hubs had/has PCa that may or may not be in remission. . .). My onc has told me the suspicious area in my lung (adjacent to where I had an adenocarcenoma surgically removed 3 years ago). But before any treatment, I need a biopsy of the new area. Best of luck to you for successful diagnosis & treatment.

in reply to Lyubov

I just found out today. They want to schedule a ct scan with contrast. So i am not sure what they will do next. So many questions.

Lyubov profile image
Lyubov in reply to

Sending encouraging thoughts!

Tall_Allen profile image
Tall_Allen

Will you biopsy the lung nodule? Or maybe see if it shrinks with a couple of months of Orgovyx? Does FDG PET show liposarcoma? SUV of 5.3 is lowish but suspicious.

I just found out today. The next step is a ct scan with contrast. I have not had a chance to talk to a dr yet, just emails through the portal with one of his nurses that started with “we need a ct scan with contrast”, and i was like “well thats different”.

This is exactly what the report says

“There is a tracer avid right upper lobe 8 x 6 mm nodule that demonstrates SUV max 5.23.”

“There is a right upper lobe pulmonary nodule that demonstrates tracer uptake as described. This is unlikely to represent a prostate cancer metastasis, particularly given the absence of other abnormalities. A dedicated CT of the chest is recommended for further characterization.”

So no guesses from the guy reading the image.

I had the same thought re: Orgovyx. A sarcoma could care less about low t.

A ct scan isnt going to tell me anything except if its actually there. Is a 6mm x 8mm even hittable with a needle biopsy? It seems tiny.

I have so many questions. I mean if its pca a single visible met on a lung and not anywhere else? If sarcoma or pca is it operable? zappable?

Sarcomas are serious things, but so is a pca met in a lung. I was hoping for a single hot node near where my prostate was. I have a single met, but now far from my prostate in a seemingly unexpected place.

Ironically If its sarcoma, pca may have saved my life, for a while.

tango65 profile image
tango65

Request a biopsy if possible since the SUV is 5 and this is 3 or 4 times the SUV of the blood pool.

Cancer2x profile image
Cancer2x

Wow! Another guy with the same two cancers I have!

Dx’d with a Chondrosarcoma in my Deltoid in the early 90’s. Wedge resection. Recurred mid-nineties along with my PCa at the same time, as a Liposarcoma in the same spot! Another Wide Wedge Resection, on the same table, same time as my open Radical Prostatecomy.

Also had an Umbilical Hernia corrected while I was at it. Three different surgical teams rotating in and out. I was a train wreck post surgeries, 12 days in ICU and normal room.

The Liposarcoma actually retuned in the back of my thigh. Yet another surgery. The Sarcomas appear to be in total remission, my PCa has finally grown to a PSA of 0.90. Having a PSMA Pylarify test in two weeks.

Finding an Oncologic Dermatologist for a facial lesion - could be the third cancer.

Dx’d at Dana Farber with Li-Fraumeni disease. Basically makes me genetically susceptible to multiple cancers!

Thank you, Agent Orange!

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