Thank you for all the input on Zytiga.

[Parscore]

I will go ahead and up the 500 with food to 1,000 on an empty tank.

[reichel]

Did not reply earlier but fwiw I have on that Dosage for 9 months taking on empty stomach. No issues and it is working. Good luck

[Catfish21]

Zytiga (4x250 mg) worked for me for 1.5 years then stopped.

[gamemaster34]

Took Ziytiga for 2years and had no problems .

[treedown]

I took 750 on empty stomach for 2 years. No problem and appears to have done its job.

[CAMPSOUPS in reply to treedown]

Yea!I looked at your bio and maybe you have another PSA this month?

Seems tx has worked, that's great.

I forgot when it was you left Pal.... in Chicago?

We were both dx'd at the same time I just noticed.

We always went downtown to Northwestern for my wife but when I went in for my symptoms it was Northwest Community Hospital Arlington Hts lol. As time has gone on I dont have a very good opinion of them but its water under the bridge and didnt harm my treatment. I don't think the Urologist had ever witnessed a patient with PSA 1621 and might have been as scared as I was. I've since learned that the prostate biopsy in my case was pretty much unnecessary.

I feel lucky that the Oncology division of N.W. Community didnt take my insurance because the MO I ended up with was fantastic at Northwest Oncology in Rolling Meadows. A very kind and compassionate social worker at Northwest Community helped to get my first MO appointment. I met the social worker with a stunned blank zombie stare and my wife and son in tow whimpering with tears streaming down their face. We had just had the final discussion with the urologist.

I've of course been in the twin cities now for the last 1 1/2 years closer to son and grand kids and have taken up fishing which I dropped in the early 90's.

I'm hanging in there. I'll have a PSA next week which will probably determine whether my one year so far ride on Zytiga is over ( my 3 month check last month showed a rise ).

[treedown in reply to CAMPSOUPS]

Yes I did have a recent PSA test and came back .1 which is a slight increase unless your looking at PSADT. I had received a negative test for covid just a couple days prior so I am hoping that explains the small bump. I was able to find one study with 91 patients that determined recent covid could spike your PSA. All said not going to sweat it yet despite not sweating it these days getting harder even with good or at least not bad results.

My parents were at Northwest in Arlington Heights a few times over the last couple years due to covid and other issues. Hard to have an opinion from so far away but my siblings didn't think that highly of the staff.

I can only imagine how your initiation to all of this went. How long did it take before you really knew what that PSA meant or was it clear on the first visit after the test?

Hopefully that Zytiga keeps going a bit longer and you one of the lucky ones.

[CAMPSOUPS in reply to treedown]

I think you'll be fine. Being here in the advanced group all you have seen are cases of progression and it might cloud your outlook.

The story of the time of my dx is long so I'll try to shorten it or tune it to your question ha.

The blood/PSA was taken by the family Dr. office.

The results came the next day.

I was busy but something seemed very wrong as suddenly I had 3 messages from his office to contact him and 3 or 4 from Urology telling me to not delay and make an appointment asap.

I logged into "my chart". PSA 1621. I knew of PSA's importance but nothing of the scale (normal PSA etc.).

I looked up the 1621 psa on the internet (mistake of course lol).

I was grabbing at straws: Maybe the labs method of measure was different than the standard I saw on the internet. My wife was out of the country at the time which was probably good because I was out of my mind with anxiety, remorse, regret, shame, you name it.

My first MO was great. I relaxed more into my situation and saw some hope of extended time. Which I guess I should mention I have truly and gratefully received. Finding the forum here about 6 or so months after dx further added to my optimism. Responding to treatments further adds to the optimism.

In short reference to the long story when I made my appt. with the family Dr. I thought I had stomach cancer. When he examined me he thought I had lung cancer.

[treedown]

I just PM'd you are yours working yet? Thought I would stop commandeering the OP's thread.