Reality of this is astounding - Advanced Prostate...

Advanced Prostate Cancer

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Reality of this is astounding

mrscruffy profile image
20 Replies

I like numbers so I did some figuring. As of yesterday I have taken my medication and supplements for 2,190 consecutive days. In those days I have taken a total of approximately 61,320 pills. Astounding!

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mrscruffy profile image
mrscruffy
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20 Replies
Seasid profile image
Seasid

Can you reduce the numbers? I don't believe that others without that numbers are worst of? I am also trying to reduce the numbers of supplements. They are very expensive. Better to buy fresh good quality food for that money. What do you think about that possibility?

CAMPSOUPS profile image
CAMPSOUPS in reply to Seasid

Eat healthy and well my friend. The body needs nourishment.

in reply to Seasid

I Do fresh mostly organic food and also about $800 per month in nutrients x seven years . 😩 ouch! 😩

6 yrs x 28 per day ? That’s a lot . If I count nutrients ,I too would be there . I’ve taken around 14 k pink tAk700 pills to date . Mama Mia! 😳

U da king of nutrient use here for sure! 👏🏼👏🏼👏🏼👏🏼

Spyder54 profile image
Spyder54

MrScruffy. We are walking pharmacology experiments. We know that none of these pills are natural to the human body, yet we desire life, so we persist. It seems that most who stop this pharmacology barrage will perish soon thereafter. Keep on keep’n on until something better comes along. Best to you, and yours, Mike

Mischa1111111 profile image
Mischa1111111

I just added a probiotic!

dhccpa profile image
dhccpa

Quite a regimen.

Boywonder56 profile image
Boywonder56

Just erleada: 4 pills x 365 = 1420 yrx 5 yr = 7100 x 100.00 pill = 710,000.00....

Chadsdad profile image
Chadsdad in reply to Boywonder56

Boywonder56, I’m 2 1/2 years on same cocktail as you with real good results. Usual se’s that are tolerable. Is the Erleada still holding your PSA down and have you had any discussion about how long we could continue taking same. I haven’t heard of anyone that’s been taking both over 5 years. Thanks Larry.

Boywonder56 profile image
Boywonder56 in reply to Chadsdad

I am in the titan trial...i was lucky to get in it at dx...i am probably one of the longest surviving patients on it fo metastatic crpc...there were 1159 guinee pigs it was a double blind study so noone except the trials people knew who was getting what...3 yrs ago because of the good results they unblinded the trial and let those who were still in trial know what they were getting and allow the placebo faction to cross over...i found out i was recieving the drug from git go...and am now in what they call the open label portion of trial... its actually a kinda neat story because on 11 /20 the trial ended ..they called me in and basically said adios....i said wait a minute the fda paperwork i signed said i could continue taking for 2 yrs after end of trial if i was still having positive results...they called back in cple days and said i was right...so i have another yr or so that iget it for free...i dont have to tell you its expensuve even w ins....anyways i do belueve it has been reasin im still kicking as i have agressuve pc....i reached a nadir of .007...and 4 yrs later have just got psa result if .1 so onc says in another yr or so itll be time to change attack if i so choose....for me the lupron/ erleada has kicked my but qol wise..ive put in 40 lbs and have very depleted energy...all are different....the fact the erleada crosses blood barrier in brain is i thnk cause of some of my issues....i had / have some balance issues...but have kept them to myself since that us cause for dismissal well enough of this mesg ne if you want to discuss furthur ....thanks for listning...kevin

j-o-h-n profile image
j-o-h-n in reply to Boywonder56

Oh yea, Balance and Bumping into walls....Reminds me when I was a wise ass teenager with my wise ass (funny) friends walking down a Bronx street like the Jets in West Side Story. Well one of the guys accidently bumped into a light pole, so one of the other wise ass guys said "hey don't you say excuse to the light pole" Without missing a beat the bumper into guy said "I don't speak Polish"........ (Maria, Maria)......

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 06/08/2022 3:00 PM DST

Shooter1 profile image
Shooter1 in reply to Boywonder56

Can't imagine getting through this far without insurance... New Xofigo is about $47K / mo. times 6= $290k +++xtandi at 12,000/ mo. then half dose $6000/mo +++Provenge about $300K. Started out cheap, about $30k per mo. In this country you either have insurance a lot of money or you just die. Really sucks....

Teufelshunde profile image
Teufelshunde

Average 50 pills per day (doesnt include MCP, mushroom powder, AMLA powder) or about 18,250 per year. Not all PC related, but many cross over to PC and BP, lipids, up T, lower E2, lower stress, etc. I keep trying to eliminate but have trouble as synergy between many of these make it even better. UGH!

epfj3333 profile image
epfj3333

It must be working. You're still here!

j-o-h-n profile image
j-o-h-n

Is that with or without water?

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 06/08/2022 2:42 PM DST

mrscruffy profile image
mrscruffy

Water??? Pappy Van Winkle Whiskey if you please

j-o-h-n profile image
j-o-h-n in reply to mrscruffy

How about a slug (swig)? Partner..........(I take those colored gumdrops too)....

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 06/08/2022 3:03 PM DST

tad4 profile image
tad4

Shake, rattle and roll!

CAMPSOUPS profile image
CAMPSOUPS in reply to tad4

Stevie Ray Vaughan---Tin Pan Alley

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