It seems like yesterday that I joined this community in an absolute panic. The information and support has kept me afloat emotionally as I try to help my dad navigate his advanced cancer. I’ve tried to stay in the moment and have faith in God and his doctors and thanks to you all, ignored the 3-5 year prognosis he was given. And yet, here we are, experiencing the ravages of 5 years of treatments on his body, and wondering how much longer he can keep fighting .
He moved onto zytiga /Lynparza after doxetacel about six months ago . His lethargy and weakness increased . Despite bone pain and occasional fractures (all horrible experiences for him) it’s kept the cancer at bay. Three weeks ago, he went in for a valve replacement . He ended up getting Covid in the hospital. After three straight weeks in and out of ers, an icu stay and hospital he’s found to have congestive heart failure . He’s had some fluid in his lung from the chemo that he was supposed to see the pulmonologist for , but he never got there.
The side effects of all of the treatments over time , have taken their toll. He’s frail. has no appetite and is currently not being treated with anything for the pc as they try to stabilize him and get him to pt.
His oncologist felt maybe lu was next but at this point, I don’t know how we’d even get him to see his oncologist (he can’t even stand) and if his body can take anymore .
It is absolutely brutal to behold. All i can do is love him through it,. I’m so sorry you all have to go through this
Written by
Stumpgirl
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You are describing my husband’s situation and my feelings as well. I am savoring our time together trying not to think of what he used to be. It’s been a challenge lately even though we have had 21 years with prostate cancer to prepare for the final stage.
You are a wonderful person to help and love your Dad through this. My daughter just tells me I need to hire some help.
I too have passed the 5 yr pt. and my MO is telling me I am last stage and he can't do more for me. Stand by your dad, he needs you now. We all have to face the fact that the end will come much sooner than we want but with love and care of a loving family we will enjoy every moment we can. My 6 yr old grand son is staying will my wife and me for the next couple of months, I want to build all the good memories with him that I can. He loves to be my shadow helper, but I don't have the energy I did last year to work with him. Digging, gardening and shop work are things he doesn't get at home and he loves to share them with me. Not as many or as long bike rides this year. He is getting better and I am getting worse. Life Is Good, especially with loving family around.
You clearly have exhausted your, and his, emotional reserves with the terrible toll of the progressive relentless disease. You both need more help to ease this. Any chance of hospice care / home hospice. There are angels (like you) who do that work. 💕🙏
Thank you for sharing your journey with your father. Many of us are right behind him with this terrible disease. I can’t walk 20 feet without becoming short of breath due to PC in my lungs.Question: was he offered monthly Xgeva shots to help support bone strength? It has benefited many of us.
I am so sorry you are both going through this. I am right there with you. My dad was diagnosed in Dec of 2018 and reading your story sounds very similar to what my father is going through. He was on zytiga/Lupton and zytiga stopped working so they put him on Xtandi. Pretty much rendered him bed ridden and worked very short term. Now on Nubeqa, still bed ridden with sores and so frail and weak. We see the oncologist on Friday to see where his PSA levels are at, but he is in so much pain and cries alot. 😪
Thank you all. You have no idea how much info, peace, comfort and hope for humanity this group has brought me. I haven’t interacted much but I’m grateful for the responses and posts and pray for many of you
They are draining the fluid in my dad’s lung today to determine if it’s cancer related or part of the residual fluid from chemo and the congestive heart failure he’s experiencing
His hemoglobin remains low. He’s had two blood transfusions throughout his 3 .5 weeks in the hospital and all of this still remains a mystery
His last scans (taken six months ago) had shown no additional Mets than the ones he’s dealing with. We were hoping the Lynparza was working but I guess we shall see
Im sorry to hear about your dad. It is heartbreaking watching family and friends you love getting worse year by year then month by …. I am saddened and pissed off that we all go through this, i try to read these heart wrenching stories to my wife but it’s not fair to her. This burden for now is mine to bear but it is comforting to know there are daughters like you. I know my wife will be there in hopefully 10 years even though I don’t want to be. I study this stuff hours a day pretty much every day for many years now hoping for some miracle. I know this whole group is pulling for your father as we do each other. Bless you
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