Newly Diagnosed, Sharing My Research ... - Advanced Prostate...

Advanced Prostate Cancer

22,373 members28,135 posts

Newly Diagnosed, Sharing My Research Notes, Getting Robotic Surgery

jazj profile image
jazj
6 Replies

I know there are probably many others on here more knowledgeable but for what it's worth, I wanted to share my research notes from probably about 100 hours of reading in hopes that someone now or in the near future might find them as a useful adjunct to their own research. I feel I got a really good handle on understanding the whole situation now and can communicate with Specialists on a very technical level and gain additional confidence in my treatment decision(s). Not intended to start any debates on topics just want to try to give others starting on their journey with PCa ideas of things they might want to look into themselves.

drive.google.com/file/d/18Q...

Edit: Since posting this I realize a lot of this info people are already beyond not realizing this forum was for "Advanced" only PCa. But still there's some interesting treatment information in there people with Advanced PCa might find useful if they haven't already run across it.

Written by
jazj profile image
jazj
To view profiles and participate in discussions please or .
Read more about...
6 Replies
Tall_Allen profile image
Tall_Allen

Not sure why you are posting on a forum for men with advanced prostate cancer. Everyone here is way beyond what you are posting. You may find more peers on this forum:

healthunlocked.com/prostate...

I always advocate patients to talk to a variety of surgeons and radiation oncologists before making a decision. You do not appear to have done due diligence.

The latest fads in prostatectomies are Retzius-sparing and covering the neurovascular bundles with amniotic sacs.

Here are the only data we have from a randomized clinical trial:

prostatecancer.news/2020/02...

jazj profile image
jazj in reply toTall_Allen

I just Googled HealthUnlocked Prostate Cancer and this is where I ended up. I never saw any prompt that showed any other option for Prostate Cancer, than Advanced Prostate Cancer and the word Advanced could be defined differently by different people (the forum specified no criteria). But I get your point. My apology if I caused anyone any inconvenience by mistakenly posting in the wrong forum.

As far as I could see that info does not show information about age and urinary and erectile function scores PRIOR to treatments. The outcome is completely different for a patient in their 50's with 10/10 urinary and erectile function compared to someone in their late 60's or 70's with 7/10 urinary and erectile function. Both of those naturally decline with age and the recovery from treatment will be much more difficult for the latter group.

Tall_Allen profile image
Tall_Allen in reply tojazj

Not presumptuous. There is no benefit to RP for anyone with advanced pc. (Other than possibly on the oligometastatic setting)

jazj profile image
jazj in reply toTall_Allen

Point well taken and see more clearly the delineation for the term "Advanced"

Tall_Allen profile image
Tall_Allen in reply tojazj

You may be interested in this if you haven't seen it: nejm.org/doi/full/10.1056/N...

% keeping erectile function 2 years post-treatment
j-o-h-n profile image
j-o-h-n

You did Not cause any inconvenience as far as I know (but I don't know much). I wish you a life filled with happiness and joy and don't go fucking crazy about Pca. Just fight the Bastard and -

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 03/27/2022 11:11 PM EST

Not what you're looking for?

You may also like...

Newly Diagnosed

I’m new here, thankful to find people who’ve been through this and willing to share what they’ve...
Robert-E profile image

First AI Prognostic Test - ArteraAI

This might be a good new tool for PCa patients and their doctors making tough treatment decisions....
jazj profile image

Newly diagnosed

Hi everyone. I was recently diagnosed with non metastatic, but aggressive pc. My psa in March of...
Quarky profile image

New Era of Lutetium-PSMA Post Approval: Perspectives, Challenges & Future

Members of HU who are following developments of treatments involving Lutetium may find the...
marnieg46 profile image

Cancer After a Diabetes Diagnosis

(Don't stop reading because you don't have diabetes!) New Israeli study below. Once again we find...
pjoshea13 profile image

Moderation team

Bethishere profile image
BethishereAdministrator
Number6 profile image
Number6Administrator
Darryl profile image
DarrylPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.