Good imho - a little no frill

[Fastingguy]

I am satisfied. At a basic level everyone follows the same protocols. Either I am not a candidate for advanced treatments beyond Lupron and Xtandi or they just don’t “go there”. I’m a 5-year since diagnosis Gleason 9 with multiple lymph node involvement, one near the heart. I had chemo in a German clinic without involvement with the military. When I retuned to Austin I began with private care and concluded they were simply using me as a resource for maximizing income. I did not accept their Provenge recommendation. Went to VA at that point and found a refuge. Recently changed providers from Austin to Asheville NC, which is much better staffed than Central Texas. I have never felt tempted to return to community care.

[CAMPSOUPS]

Sounds like Lupron, chemo and Xtandi are working for now?Did you have chemo before Xtandi?

PSA is low?

Scans show stability?

That would be good. I hope that's the case.

Sorry lots of question marks in this reply lol.

[Fastingguy in reply to CAMPSOUPS]

Yes, chemo immediately to get me off catheter. PSA has never been very low, as in approaching .0 Mets doing okay, no growth. I have comorbidity with IPF, which has progressed to the point of “the race is on”

[Shooter1]

Best of luck. VA Dropped the ball on me, but that was AZ VA when they were at their worst 6 years ago. I will now follow you and see how VA works out. Life Is Good, especially with a good team on your side.

[Birderpho]

I’m not very knowledgeable about any of this but remember reading about senolytic therapy, and a study with good results, in IPF (assume this is Idiopathic Pulmonary Fibrosis). As senolytic therapy is now being studied in cancer/prostate cancer, perhaps something you can look into, if you haven’t already. Best of luck.

healthunlocked.com/advanced...

[Fastingguy in reply to Birderpho]

Thanks. I’ll investigate.

[Purple-Bike in reply to Fastingguy]

If the D+Q combo works it will hit a disease like IPF, as tentatively indicated in the trial, as well as PC senescent cells. Fisetin is a possible alternative that is easier to get hold of and with a more favorable side effect profile but the first clinical trial is only due in September.

[Fastingguy in reply to Birderpho]

This article is certainly not encouraging. forbetterscience.com/2021/0...