I am heading to omaha to visit with ... - Advanced Prostate...

Advanced Prostate Cancer

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I am heading to omaha to visit with Dr Norquist, to discuss treatment options.

Costarica1961 profile image
14 Replies

From wvat little i know at this point copper 67 and ac 225 are possibilities. I have extensive mets two years running, in addition a rising PSA 311 although that is down from 391 two weeks ago. I started back after a 3 mos break on carboplatin and cabataxal and so far a nice downward trend with no new mets as of 6 weeeks ago. I am going to Nebraska. Any suggestions, or comments, i have done the gene testing and several Experimental options, bombasin etc, I have endured the toughest side effects to date with this last round of chemo, perhaps because of a new nausea med believe it or not. I was a walking zombie slobering for two weeks, until i deleted promethazine. Go figure.] Ultimately waiting for Lu 177. Sorry i am all over the map, but so is this disease. Good health commrades.....

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Costarica1961 profile image
Costarica1961
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14 Replies
Grumpyswife profile image
Grumpyswife

We visited Dr. Luke in September. He, his staff and clinic are awesome. They did everything the way it should be done. Unfortunately, my husband did not qualify for any of his clinical trials at the time.

However, Dr. Luke gave us hope by offering several different treatment ideas. He spends time with you. We took his first suggestion and my husband's PSA dropped 115 points since that September visit. He goes in next week for another PSA test to verify. We have dealt with this crap for 21 years now.

Please try and post the details of your prostate cancer history in your bio as it might help you get more suggestions and ideas from others here.

Tall_Allen profile image
Tall_Allen

If you have bone metastases, they are also doing a clinical trial of Th-227-PSMA in Nebraska, which I'm very hopeful about.

Costarica1961 profile image
Costarica1961 in reply toTall_Allen

Thankyou TA

in reply toTall_Allen

TA - what are the elements of medicine in the trial???

Tall_Allen profile image
Tall_Allen in reply to

Th-227-PSMA

in reply toTall_Allen

Thanks

Costarica1961 profile image
Costarica1961 in reply toTall_Allen

I will bringing my recorder, and notebook. I will have many questions and hopefully great responses.

GreatJohn has posted on his experience in Omaha in great detail.

Costarica1961 profile image
Costarica1961 in reply toHopingForTheBest1

I have seen most of it unfortunately it didnt work out as hoped for

in reply toCostarica1961

That Doesn’t mean that it won’t work for you … keep the faith! I was born there in 61. Good luck 🍀

slpdvmmd profile image
slpdvmmd

I have also seen Dr Nordquist. He is a valuable resource. Need more people like him in this field.

Costarica1961 profile image
Costarica1961 in reply toslpdvmmd

Thankyou, did he help your cause

slpdvmmd profile image
slpdvmmd in reply toCostarica1961

He convinced me to go to Germany or Australia. As I was not quite at the Bar for Splash trial.

Spyder54 profile image
Spyder54

I recently posted on whether anyone had experience w Claritys CU 65/ CU75 as copper bisPSMA. I Linked an article to that post.Please keep us posted. Curious how Nordquist proceeds.

Best of luck,

Mike

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