New member

[ukpete]

Hi all, yesterday I was diagnosed with prostate cancer grade 3 Gleason score 7(4+3). Today I’m going for a bone scan, I’ve had a colonoscopy, MRI & prostate biopsy, all this has happened over the last few weeks, and came about because my piles where playing up, I actually feel healthy and have a active lifestyle, I’m still a bit in shock but I’m coming to terms with it, it’s good to know that I’m not alone, if I hadn’t of gone to the doctors about my piles I would never of known I have prostate cancer, scary stuff

[Magnus1964]

Welcome as we say here to the group no one wants to belong to. Good luck with your tests.

[treedown]

Welcome. What are piles? Anyway its a whirlwind at first, tests, learning about the disease, coping with the results. It gets easier I assure you. Learn to live each day at a time and cherish it. Don't worry about the next test result or think each test will answer all the questions. As my doc said your in a long game. This probably sounds easier said than done right now but it will get easier.

[ukpete in reply to treedown]

Piles are the English version of hemorrhoids, Thanks again for the advice,

[Savoy in reply to ukpete]

Yeah, my favorite expression is “Yeah…I’ve got money! I’ve got piles!”

[Tall_Allen]

You have plenty of time to make a treatment decision. For now, it's best to decide not to decide. Here's a good thing to read:

nccn.org/patients/guideline...

If your bone scan is negative, here's a good forum to post on:

healthunlocked.com/prostate...

[larry_dammit]

Welcome to our war there fellow warrior. 🙏🙏

[Fitzbruce1]

take a few deep breaths and be very happy that you found this site so quickly. When I was first diagnosed, I sat around crying for weeks. Like you, I was 4-3. I have 25 plus tumors. That is the bad news. The good news is that I just celebrated my 3 years with this devilish condition and I am doing just fine. Last month two friends and I rode jet skis from Florida to the Bahamas. Two months ago 4 friends and I rode off-road motorcycles in Moab Utah for 9 days. Next week a friend and I are flying to Montana to ride off-rode motorcycles while camping out each night. My point is that your life isn’t over, you can carry on much as you have before albeit with pills, shots, scans and doctor visits. I am 70 years old and I chose to increase the number and intensities of my adventures. Like sky diving with my sons and friends on my 70th birthday, etc. Besides some hot flashes and being a little tired sometimes, my life has changed for the better! Rock n Roll hoochie Coo!

[ukpete]

Hi Fitzbruce1 , thanks for your reply and it is very inspirational, I’m still coming to terms with all this at the moment having only been diagnosed for a few days, I’m waiting for my bone scan results and I suppose then it’s time to get started on either treatment or surgery, must admit nothing has been mentioned about tumours and knowing that your the same 4-3 as me has got me a bit worried, physically I’m feeling good, mentally I’m trying to be strong and that is the hardest thing to do, I’m still working and it feels like I should be rolling about in agony, well hopefully in a few days when I get my results I can focus on the future, at least I can come to this forum for first hand experience, take care x

[doc1947g]

I am 74 y.o. with G(4+3=7)Grade 3 and had VMAT-RT 3Gy X 20 fx for 60 Gy on prostate and the pelvic bed. Was on Lupron Depot 45mg/24weeks (ADT). All that in 2020, March = Dx, End of May = ADT and June = VMAT-RT.

So I still have my prostate and I have started to have erection and ejaculation, A little bit less than when I was 18 but still good feeling.

PSA went to <0.1 ng/dL, my NADIR then 0.4 ng/dL.

Got tested yesterday for PSA, T total & Lymphoma tests.

[ukpete in reply to doc1947g]

Hi Doc, not sure of what these symbols and numbers mean, although I am also Gleason 7(4+3) grade 3, and I’m just waiting for surgery, hope your ok

[doc1947g in reply to ukpete]

The numbers with VMAT-RT are the level of radiation that I received, The ADT is the hormonal therapy. The NADIR is your lowest PSA level and is used to verifies if there is a return of the cancer.Did they told you that VERY OFTEN they will still give you radiotherapy on the prostate bed.

So with surgery, no more prostate, no more ejaculation and a high possibility of LIBIDO LOST.

These were the reasons that I refused the prostatectomy.

[ukpete in reply to doc1947g]

Hi, My bone scan came back clear, the cancer is only in the prostate, that was what I based my decision on, but I can understand your reasoning completely, Its such a hard choice.

[doc1947g in reply to ukpete]

You know that you can change at the last minute like I did.The day before my brother in law came for supper and tols me his adventure with his prostatectomy and told me that if he could change his decision he would do it.

Then I call my urologist to cancelle my operation. Then I called my RadioOncologist to start the treatments.