My recent expeerience of running out of prednisone while taking abiraterone alerted me to how tenuous my health is. I will not repeat that mistake but my energy still seems to be declining in general.
We are hoping to get a major road trip in this summer. The goals is to get ahead on work so we can take a couple of months off. Also have a new little angel we need to visit before she grows up without our noticing.
I can still drive for hours as long as I have audio books and I think my judgement is controllable. I did have that one little accident but I was exhausted and learned that lesson, I hope. A little welding and we are whole again
So I am wondering how reasonable it is to take a long camper trailer road trip, how I might know if I am pushing too hard? Ideas on monitoring for safety?
Things to not miss in this (still but just barely) great country.
We bought a toy hauler because we had the idea we would drag ebikes with us and this makes it easier than fitting them into a regular RV. Also we have other plans for the trailer.
It is a good thing that we got the ebikes because i could never keep up on my conventional bike. Even the ebike is a challenge on some days.
Written by
spencoid2
To view profiles and participate in discussions please or .
Of course it's best to discuss it with your doctor.
If you don't have any underlying health conditions that could result in an emergency, I don't see how it would be that risky unless you are going to really remote locations. You could be selective in your planning so that you are never that far from medical facilities in case you need them. That could be part of the planning.
It's also good to have someone else that could drive if needed and also go places with cell phone coverage if possible. There's a lot of things you could do to lower the risk.
Personally, I'd do everything I could to find a way to do it and still have the peace of mind that you have lowered the risks as much as possible. If it were me, I'd be thinking: what things could happen and what's the plan if they do. Having that worked out would give me the confidence I need to relax and enjoy the trip.
I’m in a similar situation myself, details different but similar as well. I’d suggest taking a couple “ shake down “ trips. One reasonably close , second a bit farther etc. two or three of those will allow you to make sure you are prepared, like ebike tire slime, mobile air pump …tools to work on the bikes. Familiarity with the trailer hardware, levelers, emptying the black and grey tanks….. getting to the vehicle handling changes a three point hitch brings. You’ll be able to judge your endurance and build your experience to handle that pile of unexpected stuff that invariably pops up.
Where are you located and what direction to you plan to travel.
Have that covered. When we bought the trailer in Arizona we had to drive it back and stopped at a couple of campgrounds. It towed perfectly although mileage was more like gallonw per mile than miles per gallon. I have been biking for about 100 years so that aspect is pretty much covered other than the e aspect which is probably not field repairable.
just need to do about a month of work in advance. that looks like a motorcycle but i guess you "technically" do pedal it 750 watts. i might need one once i can no longer haul my (ever growing) fat self and my girl Saffron in the doggie trailer.
The one on the right is more of a sand beach cruiser style, the one on the left a full double sprung mountain bike . You can dial them from full pedal it yourself , 18 gears , or not pedal at all. I drove about 30 miles every trip out … probably well over 4K -5K miles on the mountain bike. I had a bike rack on the back of my truck and took them to the national parks and over to the coast a lot. The mountain bike style is notoriously difficult to dismount due to its height above ground ( long travel suspension). You usually fall off them now and then. I had to sell them when my bones turned into cuttlebone… way too dangerous to ride now. Now I ride a much safer 700 watt e-trike. The etrike / electric moped does the legal California limit of 18 mph in the bike lanes and will switch down to “ mobility cart “ mode and I can drive through the isles of super markets on it. No pedals on these … I can’t walk 20’ , pedaling would not be an option in my condition. The least exertion drives my bp to stroke level at 220/110. Adt side effect. Still out in the wind and sunshine ….it’s all good.
I don't camp so I can't help you there. I will say that I do quite a few road trips in the car. Learn the warning signs for fatigue behind the wheel. For me it is excessive eye blinking and shaking of the head. My wife sees that and immediately makes me pull over and nap. As far as the good ole USA, I have kind of given up on her, seem like things have headed in a downward spiral for some time now(before Biden's election, not bashing). This is not the country I grew up in. I have been traveling to Costa Rica(I am here now) wanted to retire here when my wife turns 62 next year. With this damn illness and family I will settle for snowbirding. We all need to find our on peace in this world and I think I have found mine
My advice,-- go for it while you are able. RVing is the only way my husband is comfortable traveling. He's always got his bathroom with him :} Unfortunately, that concern and fatigue have become major factors in his disease progression. We travel to Florida for the winter, but make more frequent overnight stops. 200-300 miles per day is our limit, frequently napping midway. He does the driving- he drove a school bus as a retirement job. But I know I can get the rig off the road if necessary. Then our RV insurance would get us home if we had to use it. Have a great trip!
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Pain with Zytiga
Liver Metastasis/Firmagon Bone Pain
