I know this is a very personal topic, but my husband and I would like to raise it just to hear from others how they are coping.
Since my husband started the anti-hormone treatments in 2004, making love has been really difficult because of lack of the ability to get aroused but also in terms of the erection itself. So, when I met my husband in 2009, this was already a difficult issue but it was, and still is, okay for me.
Sometimes when he still was on anti-hormone treatment Prostop and Zytiga we manage to do it when he took a 100 mg Viagria a couple of hours before hand; well, he was able to keep the erection for a while longer but still the libido that he used to have - as he says - was not quite there and he could certainly not come to the orgasm stage.
Since he started Chemotherapy, we have made love once or twice. The interesting thing is that he can get more aroused now than when he was still on Zytiga. But he doesn't really get hard enough to be able to do it. And he feels a little uncomfortable with taking a tablet because he is feeling so tired and headachy a lot of the time anyway.
We both miss it of course. Not too much - I mean, mostly we are happy that we are together and can enjoy so much time together, making love is really not the most important thing for both of us, and yet it would be nice if we could. So what we would like to know how you are coping and what you are doing in order to be able to sustain an erection. We know this is a very sensitive subject, but one that I am sure is on all of our minds at times.
Mel and Paul.