Eligard side effect?

[Grouser]

Started Eligard about 10 days ago. Having trouble walking, climbing stairs. Has anyone experience this side effect.

I do have Perepherial Neuropathy from previous cancer treatment but this is new and sudden pain.

[2dee]

I've been on Xtandi for about 6mos.

Balance affected 10yrs ago by auto accident, made worse by Lupron over 2yrs ago, and now a bit worse by the Xtandi.

I just keep fighting it.

2Dee

[Olivia007 in reply to 2dee]

Xtandi almost left my dad unable to walk but all his doctors claim they never heard of that but I called the makers of xtandi and they said it did and discontinue usage

[Hidden in reply to Olivia007]

Amazing !

[Grouser in reply to Olivia007]

How is your Dad now ? Is he no on a different drug?

[Grouser]

Injection in abdomen. Do you think the site might make a difference?

[EdinBmore]

Check out Lupron/Eligard posts here in the forum. There are many, many stories of side effects, ranging from "what's the big deal" to "oh, my god, kill me now." My reaction to the drug was more towards the latter than the former. Horrible wide ranging side effects.

To answer your question: yes, join pain is a common side effect. Mine came on suddenly and affected feet, knees, shoulders, and fingers (a "locked" ring finger was something to see). Interestingly, the join pain was bilateral. Internist suggested some over the counter meds. RO suggested more exercise (and, yes, exercise seemed to help; particularly my mental state of depression and despair). I found that turmeric helped A LOT. Tried natural form (an orange mess of shavings from the turmeric root; not worth the effort). Capsule form worked for me. I noticed a difference within 24 hours.

Btw, it took a very long time (12-18 mos) for the drug to leave my system (docs told me it would take 9-12). My T still has not returned to pre-ADT levels. But, I feel 100% better and I continue to take the turmeric for age related join pain. It works for me.

Good luck to you,

EdinBaltimore

[2waydvd in reply to EdinBmore]

What type of dosage of the turmeric do you take each day to ease the joint pain? I just tend to rotate between over the counter pain relievers such as Naproxen, Ibuprofen or aspirin and would like to find something really natural.

[EdinBmore in reply to 2waydvd]

Turmeric is 1000mg once a day. No noticeable side effects at all just relief from joint soreness/pain.

[Olivia007]

My dad always has issues with that injection especially where they inject it he claims it hurts it’s sore for weeks walking sometimes an issue. But again everyone’s body is different. I know he dreads it and if the medical assistance doesn’t know what she/he is doing my dad is more pain which is most of the time cause it’s a revolving door. Good luck

[Jbooml]

I spent six crippling weeks after my first Eligard shot despite my 6 week preemptive bicalutamide starter. I was a teetering tower of trepidation barely able to turn or bend....the good news is it all passed and I’m stronger than ever....my thought is that as the cancer sheds the bone it degrades the tendon and ligament attachments which had to adapt to their corrosive connections during disease progression.

That’s my experience. It’s part of the recovery.

[leo2634]

I've been on Eligard almost three years it has many side effects including my legs weakness and trouble with stairs. The thing that helps is to keep moving and stay active. Leo

[Grouser]

Thank you leo2634 very frustrating the doc says my recent problem is not caused by the Eligard. Guess eat well and exercise will be my mantra as I get through this.

[Hidden in reply to Grouser]

Hey Grouser..I’m not a dr ,but ve been on three different forms of adt ..for a total of five years ...First a one month shot of firmagon ,then Eliguard then Lupron until orchiectomy allowing me to drop the lupron . I’m still on a defunct adt test drug that is keeping me castrated and undetectable .I did 8 weeks of imrt . I had so many dam random pains for my first two years under treatments . I had other complications with tubes and a foley . Stay strong and enjoy what you can everyday . I say the pains and weakness are the adt.. It can get better . It did for me . Plus ,we can learn to adjust with time . It’s no cake walk . The docs don’t dwell on these side effects although I believe they are fully aware of them.. keep your mantra! 💪😎

[Kaliber]

Yea I get eligard , was Lupron before it ran out. Count me in the crippled by it group. As the debility effects progress you can use “ workarounds “ to counter the bad side effects. I need the eligard FAR worse than the difficulty of tolerating the side effects so I use the workarounds. You can search my replies on the group for what some of those are.

💪💪💪👍👍👍❤️❤️❤️

Check the recent post in amlodipine, for example.

[j-o-h-n]

Lupron has made me into a junior Italian Oceanliner "the SS Andrea Doria".... whopsided.....

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 11/17/2020 5:47 PM EST

[Hidden in reply to j-o-h-n]

I’m on the SS minnow...I thought this was supposed to be three hour tour? The question is Mary Ann or Ginger ? I’m going with Mary Ann , looks just like my wife ..

[SPEEDYX in reply to Hidden]

Mary Ann for sure...she aged better

[Hidden in reply to SPEEDYX]

True that! 🌴

[j-o-h-n in reply to Hidden]

I'll take one of native women hiding in the bushes.... you couldn't see them on tv but I was an expert in spotting the camouflaged enemy.... I received a camouflaged medal of honor for my service but unfortunately no one can see it.........

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 11/17/2020 8:13 PM EST

[Hidden in reply to j-o-h-n]

The invisible man . 🤔

[SPEEDYX in reply to j-o-h-n]

Iam sure you could have picked a Greek Ocean Liner and leave the Italians out of it!!

[j-o-h-n in reply to SPEEDYX]

But Mama Mia.........You make-a da best-a sauce-a.... (all-a da= Greeks-a do-a is-a break-a da dishes).... All-a Greeks-a Dousie Bots....

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 11/17/2020 8:03 PM EST

[SPEEDYX in reply to j-o-h-n]

You right l must be crazy or a sfachime!

[j-o-h-n in reply to SPEEDYX]

Fong ghoul.............

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 11/17/2020 8:16 PM EST

[SPEEDYX in reply to j-o-h-n]

VA FG

[j-o-h-n in reply to SPEEDYX]

manga time...........

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 11/17/2020 8:35 PM EST

[Hidden in reply to j-o-h-n]

And pasta fasoul

[j-o-h-n in reply to Hidden]

On Italian Hero bread...........

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 11/17/2020 10:15 PM EST

[Hidden in reply to j-o-h-n]

Oh yah!

[Hidden]

It’s all Greek to me!🤔

[Boywonder56]

Thank you dean and jerry...and now next on the shoe....toppo gggiiooooo will balance a catheter on his........

[Hidden in reply to Boywonder56]

Hard to do?😳

[Psychmed]

I have been on eligard for about 2.5 years. I can barely do 1 pushup. Leg weakness is significant. Only treatment I know of is walking up more stairs. Also easily fatigued and need a lot of sleep. I used to work 5 days a week go skiing on Saturday and sailing on Sunday. Now I work for three short days and rest for 4

[Psychmed]

I should add that it's grand to be alive

[Jimhoy]

I quickly learned, to blame EVERYTHING on Eligard!! Yes, sometimes long after the fact and mostly after the side effects resided once off that f&$king terrible, emasculating, debilitating, life saving drug. As you read on... you’ll see for some it’s a cake walk!! God bless them!!!! For guys like me, I guarantee your symptoms are related. Out of ignorance, I can’t say joint pain and debilitation started that early but didn’t have the presence of mind to note it!! I can tell you, Had it for the duration and beyond!!! Exercise and fight it!!! If you don’t.., you’ll be sorry!!!Jc

[Grouser in reply to Jimhoy]

Just got a reply from the Eligard manufacturer they are "very sorry to hear about sudden leg weakness " it is not a side effect of Eligard. So now that we know that we are wiser. Just had an orthopedic doctor say my weakness and spinal issues could be from the radiation. The radiation doctor said that could not be and more radiation would help me. I am so thankful for this site! Happy Thanksgiving to all of you /us.

[Jimhoy]

I suggest you reply to them “ screw you... strong letter to follow!!!”. The list of crap I went through could have choked a horse!! Of course they won’t admit fault!!! Went from 61yo going on 40 to 61yo going on 80 in just a few months, with the only difference being Eligard! Could it be a combination of that and the actual ADT.... yes.... but sooooooo many men don’t report the “beyond normal” side effects expected, caused by andropause.Jc

[Grouser in reply to Jimhoy]

The radiation 2 years ago was not supposed to cause side effects either. Bowel and Bladder issues followed . And worse the PSA continued to raise. Really wanting to just stop all treatment.

[Jimhoy in reply to Grouser]

I just finished writing this comment to Dixiedad regarding what to expect after IMRT, soooo yup.... bowel issues do persist years out!!! If chemical castration ADT is killing you in lieu of the cancer, there are options you can pursue!! I’m on vacation right now but numbers are dancing around and started heading in the wrong direction. Tested every 6mo,s. <.1, .1, .2, .3, .4 and on 11/25/2020 was .3 again!! Seeing Urologist next week to discuss but there’s no warm fuzzy feeling!!!Jc

Dixiedad: I don’t recall if I had IMRT or EBRT.... had the gold targets and 45 doses (not including the man boobs)!!! My only comment is that beware of the dreaded assplosion!! Sudden urges to go with diarrhea. That happened to me in public, just after being 1/2 way through the treatment. When reporting it to my Oncologist, he replied “that can happen” because the first 1/2 broadcasts the entire pelvic area whereas the second 1/2 concentrates more so on the gland. Thanks for the warning you #$&$#@$&#@#$&!!! I have also noticed (years later) that there is little wiggle room after you get the urge to go. I’m told that the bowels loose some elasticity thus it’s now like overfilling a glass jug!!! Full is full and needs to empty!!

Best of luck

Jc

[TwilightZone]

I've been on Eligard for over a year with no side affects. Was on Lupron before that with no side affects. Have to admit I've forced self in to every-other-day workouts that includes a 2 mile walk and moderate resistance training on a Total Gym.