Hi everyone! I just had my 2nd every-3-months Lupron shot last Monday.
I'm having frequent hotflashes, which seem to only come when I'm in bed or sitting down or in some other way sedentary, but not while I'm in motion. Do any of you notice this too?
Will the hotflashes get less over time, or is this just how it is?
Also, after this latest round of Lupron, I find myself being overwhelmed by flashes of emotion--an emotional storm, kind of like a hotflash. It will come, I will be overcome by emotion and tears (in early March, my favorite dog died a few days before I got my PC diagnosis, and I'm still processing both events), and then it will pass. My girlfriend has talked about PMS...is that what's going on here? Are any of you experiencing this? Is there anything I can do about this?
Thanks so much guys. I'm learning so much from all of you!
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Sitano1
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Hot flashes probably wont go away. After 2 years mine never did. You get used to it and adapt. It’s no big deal for me. Yeah, I think your emotions get sensitized. Cry at movies, etc. Opportunity to get in touch with your feminine side. You probably will no longer get BO, and won’t have to use underarm deodorant.
Welcome to the club....excersise....most of us now belong to knitting circles and cry like babies at slightest emotional tug....it can get better for some...worst for others....im in latter after 4 yrs....buy hey i really look good in heels....kidding aside...hang with us and itll be an enjoyable journey...for most part we all accept each other and theres always good advice...b.w.
Welcome to the loopy Lupron world brother. I’ve been on the 3 month Implant ...zero T ... Lupron train for nearly two years now. Some guys have lightish SEs ... most light to moderate and some, like me have the full blown “ Monty “ of deluxe SEs yayahahahaya yayahahahaya.
I won’t go into my Lupron world much because you don’t need to hear “ all that “ yet ....but as for hot flashes ... I pretty much always am in front of a floor fan or ceiling fan. I can break into the sweats - flashes in endless streams over and over. I can be sweating profusely and my forehead temperature be 94f. Yayahahahaya
... it’s very common for me to break out bawling my eyes out .... and simultaneously laughing at it because I can’t find a reason to point the outbreak at yayahahahaya yayahahahaya. I can break out howling bawling in my doctors office to just driving down the street to just sitting on my couch watching TV. It’s gotten to be so common that many times I just plain warn people to ignore it if it happens ... that I’m prone to experiencing a crying attack and that I’m not actually sad ... just side effects of cancer treatment drugs.
If that’s all that’s bothering you so far ... consider yourself in the mild to moderate group .... you are a lucky guy and “ things “ could be a whopping lot worse. That’s a good thing ...
It’s all kewl brother ... “ don worryaboitit , it don’t mean nudd’in “ ..... you are doing good.
Just a hint: bursting out bawling is a new “ superpower “ you have been given ... use it ethically and wisely yayahahahaya yayahahahaya ( lotsa videos on YouTube of 3 year old “ experts” that you can get some great ideas from yayahahahaya)
Yes - hot flashes and emotional lability are two of the most common side effects. They do not lessen with time. Venlafaxine may help with both. So can estrogen patches. Megace or acupuncture has been found to be effective against hot flashes. If you use estrogen or megace and you want to avoid breast effects, 10 mg daily tamoxifen can prevent that.The hormonal effects are similar to postmenopausal syndrome in women.
Don't forget muscle wasting. Not a big deal at the start but a huge deal if your on it for years. Exercise 4 or 5 times a week to try and maintain your existing muscle mass. I didnt because I wasnt told and I regret it alot. Make the effort. Its extremely difficult to get that muscle back once its gone even after your T level comes back to normal. Tall Alan gives great advice.
Venlafaxine helped me immensely over the three years I was on ADT to the point that I had my family physician assure me she would continue to prescribe after treatment. Hot flashes were a big problem for me in that I needed the room so cold it was very annoying to my wife. Late on in treatment my wife suggested using a tower fan directly on my side of the bed and it was a solution I wish I had discovered 3 years earlier.
Hey Sitano.. welcome aboard the SS Lupron . I was on it 18 months until I choose an orchiectomy and dropped the shots . I’m still on a pill form defunct adt test drug that’s said to stop adrenal production of t. I’ve had 3 t over four years now . For me the first two years were a crazy ride of side effects . All enhanced due to tubes out off my kidneys and constant antibiotics for UTI s.. you won’t got thru that hell . Night sweats and 7 trips nightly to pee is my nemesis . Interrupted sleep at best . There is a drug to help the hot flashes . I prefer to just live with it . It’s been over five years of this for me . Hang in there . Basically the same stuff happens to most of us . I’m very sorry for your dog passing . That’s a blow . Hold your head up brother . Treatments diminishes us . Eat healthy and get as much exercise as much as you can . Take care ... Scott 🌵
What Tall_Allen said. Realize, these effects come because low T translates into low estrogen. Low-dose estrogen therapy (patch or gel), to replace some of your lost E2, could be beneficial not just for these SEs but for the ones you don't yet feel, like loss of bone density.
2 1/2 years on Lupron. Just had the stomach shot yesterday, woke up sweating at 2:00 in the morning. EEEEEHAAA. Comes with the territory I guess. Otherwise feeling really good so no complaints here. A nice bowl of ice cream makes it all worth it. lol
Hi Sitano1, welcome to our group, wish you didn’t have to meet us this way but welcome. I am a 7/12 year survivor of this horrible illness but the consolation is 7/12 years so don’t give up. Unfortunately the hot flashes are now part of life, I had Lupron for 6 years until I had bladder cancer, whole new ball game. My Urologist put me on Venlafaxin to ease hot flashes, for me it did not work.Keep the faith all will be well.
Well at 85 you kind of roll with the punches. Due to stage 1 V bladder cancer and several ops I am now totally in continent, that I find is the worst part of this whole damed thing. Keep smiling, we are still on the right side.
Great attitude brother. My PCa has progressed into my bladder and is my main cause of concern. The mass is on the corner where my left urerter is and therefore I have a stent to keep the kidney functioning. I'm lucky not to have had an external bag fitted. My first 6 sessions of Chemo didn't shrink the tumours in my bladder very much, so I'm about to have a few more shots to see what happens. My thoughts💭 and prayers 🙏are with you, 😎 DD.
I recall the time I began ADT in 2010, and I expected it to be worse than it was. Sure enough I got hot flushes, just like women when their onset of menopause occurs due to hormone changes. But since 2010 and now, its 10 years, and I've cycled about 110,000km on a road bike to stay fit, and I never had a hot flush on the bike, and gradually the number of hot flushes at home reduced to almost nil, and before I began Pca treatment I knew my sexual capabilities would become zero, but there had not been any partner in my life for 10 years+ before diagnosis in 2009, so my sadness over getting Pca was fairly mild, and my few tears dried up soon. Millions of men have far worse problems than I have.
I think the constant cycling helped me greatly to endure the side effects of ADT, Cosadex, Zytiga, Chemo, Lu177, and here I am, still alive. In all that time, highest Psa was 50 at end of chemo when docs could see it failed. I'm 73, hoping to get to 80, I will maybe get more Lu177, because more bone mets are growing big enough to be seen in PsMa scan, but last year's Lu177 knocked Psa down to nadir of 0.32, so it worked better than chemo with almost no side effects.
Today I cycled 67km, enjoyed it well, so despite some gloom in what my oncologist said last week, there's a good chance more Lu177 will work at least to gain time. I am booked in for genetic testing and possible PARP therapy; and who knows what may be result.
Its years since I had a bad hot flush, so my body has just got used to having zero testosterone. Over the years, the most deeply touching experience I had with any female was at local hospital before EBRT in 2010, when a beautiful Indian lady who could have been Miss India but who was an intern in radiation dept and asked me to lie on a bed on side, and she stuck a middle finger up me bum to feel how big my PG was before beginning EBRT.
Deeply touching. Nearest thing I have had to intimacy for 10 years.
Pca means the death of so many ways of being with other ppl, especially females, but I'm aging, and we cannot act young or enjoy the bliss of youth and ecstasy by being led around by our Rodger to whatever hungry Fanny winked at us to draw us closer when the ladies seems to want more sex than us men did.
I had initial ADT for 2 years, with EBRT at 8 months after it began. I had inoperable Gleason9 PG with Psa at only 6. I paused ADT to see if the initial treatment worked, and of course it had not, and Psa went from nadir of 0.08 to 8 in 6 months, and in that pause all my Rodger function came back and average speed on bike went back up about +4kph. I was forced back to ADT, Psa went to nadir of 0.2 and ED gradually set in so that by 2015 Rodger became totally useless and permanently deformed with no way of feeling any pleasure.
But I am alive instead of dead, So Rodger's change to being just Drane Pype was not something I was very sad about.
I learnt long ago to live with Pca as a chronic illness, and Pca will probably kill me because I have no "co-morbidities", ie, conditions such as diabetes or atrocious cardio vascular conditions to worry about. I can't live forever.
It'd be nice to get to 80. I doubt I'll make it. But exercise may help pave the way for that to happen. I'm not depressed. Many other men would be deeply depressed by ADT, and their mind can cease to function; they can't focus in things like they used to, can't work stuff out and they become disabled, but that did not happen to me, and I kept working after diagnosis in my electronics business until I qualified to get old age pension, which was more than I was making in my business. Now the Dalai Lama said the meaning of Life was to be "Happy and Useful", but by retiring in 2012 at 65, to get pension, and after I declared to all at my website that I was then totally useless, and was closing down my business, I felt ecstatically happy, Govt paid me $480 a week with no strings. So Dalai Lama was quite wrong about the meaning of life. Well you'd think he knew more because is it not useless to be a monk? What benefit is there to anyone else?
Thus Pca prompted me to ask questions about existence that all religious ppl could not answer, not could any experts on philosophy, so I concluded the meaning of life is that it hasn't any meaning, and you, me, and Universe and Nature just exist, so enjoy it while you can, and love others while its possible.
I love my friends and a sister, and hospital staff, and I live in good times, and I cry during the best movies so I feel the world around me well, and I doubt I am yet very wrecked by Pca. Take care, seek the best medicals you can afford, have hope, and stay busy and exercise if you can, and tears should be less common.
“Deeply touching” ... good pun Robert Turner!! You sure lay it all out, but I for one very much appreciate you sharing your journey and what's on your mind.
Been at it 2 plus years and your post is terrific and most encouraging. My hot flashes are tolerable considering the alternative, as much exercise as I want, still working part time, have 5 rescue cats that give me great joy, a roomate/friend of living with him for over 21 years. Emotionally has not changed, still a soft touch and get emotional at times but still alive after diagnoses at 66 and plan on reaching 90 or more if God be willing. My sister died of lung cancer last year (ate healthy and non smoker), my brother has had 2 bouts with bladder cancer, a kidney out, 2 minor strokes, 3 stents and colon cancer presently but drinks alcohol like a fish and smoked till his sixties. You learn that you are lucky to have this instead of other cancers and learn to adjust your diet and enjoy your life, it could be alot worse. Glad you are still stubborn enough not to give in and die, keep up the good work and keep posting it gives us great hope.
I'm glad there's no stopping your train. I remember, for me, not long ago it was "I think I can, I think I can." And now, at the public urinal, while I finish my little tinkle, the guy next to me lets loose like a donkey that's been holding it since Tuesday. Well I'll show him. I'll just take a crap. That's an elephant, holding it since Monday.
As others have said...Welcome to the Lupronlife. I have a preference for natural remedies. One bad chemistry at a time if possible!
Respect to others for the "medical" recommendations....we all choose our own way forward.
Sage leaf tablets work for me and keeps the hotsweatflush subdued.
CBD oil works for the updowneverythingupset; but research supplier in depth.
Reference PMS: just try relating your symptoms to any woman of a "certain age" who has experienced similiar from menopause....probably laugh out loud or join you in tears!
Welcome. I am just settling in on the Island my self...
I am at tbe same stage as you are...just finishing 14th week of my first 6 month Eligard shot (same as Lupron basically).
Hot flashes are annoying but in my case not more than that as I haven't experienced (yet?) spectacular ones. Curiously , mine seems to have a schedule. I have a hot flash at 11h40 PM and another one at 4h30 AM like clock work...and a few others here and there.
Emotion are sometimes off center it is true. Sometimes it is a bit funny in retrospect but if thoughts grow dark it is important to be self aware and identify destructive inner conversations....when I start to hate the world or don't give a shit about anything. , I either go lie down and do mindful meditation or get busy and stimulated like vacuuming the whole house with headphones blasting Motown. No joke. It actually works...the place is so clean you could eat of the floor ! Lol.
Real exercise , as many in this forum will tell you, is the best thing to do. If you're already inclined to work out, great ! If not, try to get into it , as it will really make a huge difference in your QoL
I have always been a strong type A...Still flying corporate jets part time...still flying relief to strange places in my plane, that being said my family loves the new me.....hell I might have kept a wife or two if I had been on this stuff...5 years of Lupron, 18months Xtandi....I have lost the word HOLE which used to be attached to ASS and I have developed more patients..I do however workout with a new passion...I have done so my entire life but not like this...I Peloton to the point people think I am crazy...picking up a Class A pusher and adding a Peloton to the bus.....You need to lift also. Then add whatever you like to do...I really do not notice the hot flashes anymore in the day time...at night one or two for 10 seconds..Good luck to you and remember the monster is working to kick your ass so you to must work to kick the shit out of the monster....You are in a fight so go get you some!!!!! Blue Skies, Sky King and Penny (woof)
Hello Sitano1, I have been on Firmagon for 3 month and also suffer from hot flashes when sitting or in bed at night. I don’t seem to notice them when I’m active. I don’t know if activity raises your core temperature enough so that you don’t notice them or that it actually keeps them at bay. I’m thinking of trying estrogen gel to see if that will elevate the problem. I haven’t experienced emotions as much as mild depression. Robert Turner seems to have the best overall solution, e.g. exercise. It can’t hurt. Good luck and good health, notwithstanding the Pca.
Welcome to the club, 😖. My doctor gave me a script for Effexor to calm down the hot flashes and the depression. Helps. I carry a large kerchief all the time to mop up the sweat and at home in my easy chair I have a small battery operated fan to stick down my shirt. I’ve been on lupron now for 4 years, I don’t notice the hot flashes as much but high humidity really brings out the sweats. And don’t forget to watch out for the man boobs. The new normal. But it works so who cares 👍👍👍. Fighting the monster 🙏🙏🙏
It is part of the effects of reducing /stopping your testosterone production. You just as well get ready to have most of your body hair fall out as well. Legs, chest etc.
Hot Flashes, emotional swings, muscle mass loss, brain fog are all part of the effect.
Hang in there though. You will adapt in time. In my opinion the reaction of your body to the hormonal changes that are negative are outweighed by the reaction on the cancer.
Just hang around with your loved ones a while and keep an eye on the gains in treatments available. You never know when there will be a major breakthrough that might release us from the aggravation called ADT.
My biggest complaint is I thought I might be able to sing like Vince Gill. It didn't happen !!!
Sorry it didn't happen. My Boy George is now spot on. "Do you really want to hurt me?" brings tears to the nurses eyes while they stab me mercilessly with their needles.
Been on Lupron for 6 1/2 years with an injection every 4 months (no vacation). Still regularly have hot flashes but not quite as often as in the beginning. Cumulative fatigue is an issue but daily exercise, mainly walking. helps. I've gotten used to things and am not complaining as my PSA taken this week was .21. Had no idea the Lupron would work so well for so long after 40 doses of external beam radiation failed to cure me.
So new compatriot Sitano1, you have been properly introduced to your very knowledgeable supporters here. Welcome.
It is very hard to lose your dog. It is a deep grieving that you must honor and take your time with. My condolences. And your PC diagnosis is so new and that is a shock that also must be processed. The gift within it is that it makes us value each precious day of life very acutely. And having good humor about the whole crazy mess as you can see is present here.
I am now a 13 year survivor with advanced PC (and my life is wonderful). I had horrible hot flashes 24/7 on ADT. So bad I chose an alternative regimen of Casodex 50 mg and dutasteride 1.0 mg per day in stead of Lupron. Much better as you still have some testosterone, it is just blocked. It worked for 4 years for me.
When I then needed to go back on full ADT I chose Firmagon plus estradiol patches. No hot flashes. No foggy head. Better emotions. Very nice option. I took tamoxifen 10 mg to prevent breast enlargement and tenderness. I also requested and received a few radiation treatments to the breast tissue when I started the long term Casodex which also causes man boobs.
If you try venlafaxine (Effexor) be sure to check your blood pressure on it. It made mine shoot yo to dangerous levels.
Welcome to the club that no one wants to be a member of. Stay active and be out in nature as much as you can.
You certainly are not alone. Welcome to the hot flash team. I just had my second Lupron shot as well. Most of my hot flashes come at night, and my doctor said this will continue while on Lupron. My wife and I now have hot flashes in common!
My sweet wife and I both entered menopause at the same time .It was fun. I tell her at least hers is fading rapidly from her . I’m male menopause for life brother. What a ride?
I was 48yo when I had the surgery in 2010, salvage radiation in 2011 and in 2012 diagnosed with metastatic and put on 3 month Lupron shot and Casodex. After some months on Lupron I was an emotional mess crying at anything. Efexor fixed it for me and helped with hot flashes. Before Effexor if I thought of my family, watched a movie with any emotional scene or tried to talk about my medical condition it would feel like my emotions, my thoughts on my medical situation, and death would get stuck in a loop in my head followed by crying and a lump in my throat. Hot flashes all the time. Dr. Prescribed Effexor and results were pretty amazing for me. It has greatly helped me enjoy life, emotionally, like I did before all of this. I have been on it for about eight years now. Highly recommend it.
The only thing I can add here is that the frequent onset of tears and depression itself are closely related, at least in my experience. The latter, of course, can be treated with antidepressants.
I used to cry at emotionally charged things, like movies, but I also would cry about my loss of sexuality, how shitty I felt physically, that I might be on ADT for the rest of my life and never feel good again, etc.
I had become another person, for whom any feeling of joy, hope, or pleasure had been chemically extinguished. I really wanted to die; I hoped I would.
I got on Viibryd, and started to feel like myself again almost immediately. It was borderline miraculous.
Btw, if you're going to go this route, get a DNA test to see what drugs will work best for you. Some will be completely useless.
“Chemically extinguished” I too had many dark days . I’m better now but once in awhile I’ll get down depressed . Glad that you found your fix !👍
I was on the 4 month (30 mg) Lupron for 1 year after my RALP surgery in 2008. The side effects were always worse for the first several months after the injection. When I restarted ADT in 2011 after my PSA started climbing, I changed to the 7.5 mg monthly Lupron injection. I did not have hot flashes, night sweats or other discomfort on the monthly injections. I can't help but be suspicious that the "timed release" function of the higher dose Lupron injections was a problem for me. I was on the monthly Lupron for 5 years.
I've been on monthly shots for over a year, and it seems the first few days I'm very fatigued, then things settle down.
On the Lupron data sheet, it appears serum levels of leuprolide drops 80% after the first week, which explains why the first week is tough.
The major metabolite (M-I) plasma concentrations measured in 5 prostate cancer patients
reached maximum concentration 2 to 6 hours after dosing. One week after dosing, mean plasma M-I concentrations were approximately 20% of mean leuprolide concentrations
I got a Makita DCF 102 portable fan. The 5AH battery can run it all night and recharge thousands of times. Now that it is summer, I have it with me 24/7. Uses the same battery as my drill hammer etc.
This is the most useful thing I have obtained to combat the flashes. Exercise helps. I tried Black cohosh . It does nothing for the flashes and gives me a very bad headache.
It is not a cheap option, but I bought a ChiliPad for my bed (actually, my wife has had the ChiliPad for several years, and I bought the more recent version - Ooler). It has definitely helped with the night-time hot flashes.
Hot flashes, weakness, feeling cold, then hot, tiredness are all things I have experienced. Don't really go away but may intensify over prolonged lupron!
Welcome Friend, I've just had my 5th Eligard shot, my symptoms are the same as yours mainly when I'm relaxed i seem to notice them. Still have night sweats although less regular than a few months ago. Fatigue hammers me a bit and i seem to get impatient quite a bit. Libido shot to bits which is very hard for my missus as she is 21 years my junior and has not joined the menopause club yet. It's all part of the pca survival journey so as I've come to realize and was quoted to me by TA when i started this life cycle : Take one day at a time and take it as it comes.
Oh My first hot flashes were while I was giving a financial presentation to a group of older professional women; they all laughed at me.
Seriously its been the depression, loss of strength, sex drive and cognitive function that gets to me.
I like what Fairwind wrote; "What you are experiencing are not "side-effects"...They are effects caused by having your testosterone reduced to a very low level very quickly.."
Dropping from 789 to single digit do effect one's QOL!
Wives ? Or ....... ? Yayahahahaya. I was married and had a baby when I was 18 years old. Worked 12 hours a day as a curb waiter in a Steak & Shake to support them. Been married several times and had a sizable number of informal marriages as well. In the early days I was a looker , the ladies said I had “ bedroom blue eyes “ . I always seemed to pick the fast lane bad girls for some reason. Exciting fun but burned out quick. Been married 44 years to this wife ... fast lane chick too, just turned 18 when we married and had a 1 year old baby when I met her.
“Bad girls” been there done that one.. informal marriages also had a few. Steak and shake big time in my indiana days . What about White Castle? Dam! I’ve got blue eyes but no one ever said that about me . You’ve done much in life . You keep impressing me the more I know you ..
Oh Dear !!!! Tisk tisk tisk ... yayahahahaya yayahahahaya. I’m not so sure those were “ the good ole days “ but they were a dang sight better than PCa .
Who knows? These just might be the good ol days compared to what’s coming down the pipe in the near future. The talk is of a total financial and housing market melt down this summer . Too much debt Is going into default . Buy gold !
You are right , these might be the good ole days for a whole lot of people. You have to really be concerned for the young families that rent apartments, make car payments and live paycheck to paycheck. Its hard to imagine how this could turn out without damaging them.
None of that can touch us ... the wife retires in October, we have planned well for life after retirement. Spent last 20 years prepping. No worries be happy.
You are amongst the lucky ones . I just read that the average family don’t even a$400 emergency fund.. Most with debt. we live on 15k SSDI per year . Thanks uncle Samuel ,but that can go at any time now . I hope to be wrong . I’m just reading much about fed failures . At some point just printing up trillions of dollars with nothing to back it will fail . That time could be this summer .. Just like pandemics some have predicted this for years now . Stocks ,401ks and any money in the bank can all go to zero . The smart money is in gold or crypto currency now .. we have not seen the Great Depression in our life’s ,but my parents did . They thought much differently than Our society thinks today .. check out Nkla stock for the new electric / hydrogen,trucks ,SUV’s company in Coolidge Az. When it falls I think it will be a buy .. I’d love to have any of those nkla vehicles .
One of the advantages of long time marriages is that you pay off your house and vehicles. Not having a Monthly housing or vehicle cost is a big advantage every month. You can end up nearly debt free at retirement. Our retirement modest income goes a lot further that way. Plus we have two retirement incomes as well. That plus you have the house equity to borrow on or fall back on , later if things hit hard times.
America is durable ..... you hear about the Great Depression but few people know that only about 30% of the population was directly hit ..
70% of the population still had jobs, income etc. banks closed , stocks fell , lots of bad things but still about 70% were trudging along, miserable , hammered but not homeless and not without food. Back in the 60s the country was on fire in race riots coast to coast ... people were sure the country would collapse ... scary for sure .... but it didn’t.. it did take a hard hit tho.
Things can’t be “ all that “ bad because the stock market still bounces around in the 24k to 26 k range , way above its 18k low this year and not that much below the 29k inflated high. So, for now, things aren’t all that ugly ...
Not to say that things might not end up in the dumper but it’ll be a while before that happens. We need the government to come forward and put all their energy into stopping / managing the coronavirus , if it did, things could come back to normal pretty fast. Sadly the government is trying to pretend there is no coronavirus. And no national emergency. The longer this goes on the worse things are going to get. This is hurting a whole lot of the population but people in the highest places don’t seem to care. Whatever ...
I had no long term marriage and being a bachelor cost$ . But luckily I have no debt either. This economic and housing crash is upon us again. We live on 15 k per year disability . Once that is pulled we need to sell the home. I hope I can leave that at least in tact for her to have something once I’m gone brother..
There are meds and other measures for hot flashes. I mourned my dog's death hard for a year so that may be just exacerbated somewhat by the Lupron. I take Venlafaxine for Hot Flashes and that works for me. I hike 5-8 miles 2-3 times a week, play golf 2 times a week and walk my dogs every morning. btw Getting another dog helped the grieving process immediately. Best Wishes!
After reading so many posts on hot flushes in men due to ADT, I conclude there are more strong men here trying to cope than one can poke a stick at. It seems most of us are trying to do what works for us, including the damnation of a world which expects men to be perfect until they are 90.
I sure do hope there's a breakthrough that helps all men with Pca soon, and not just the lucky few.
I first thought Lu177 was such a breakthrough, but after 18 months since I began having Lu177, Pca is on the rise again. But Psa is only about 15 now, and I can cycle, and live well, so Pca is still under control. Having a GF is out of the question. But that's OK and I am "out of the mating game" where I have to please a female all the time, not just with sex, but a pile of other things that have to get her approval or else. I'm FREE.
I talk to doctor about more Lu177 tomorrow.
I need to get into my shed and do some craft work. I slept well after yesterday's 67km cycle ride.
I'l have another cycle ride after I do a zoom meeting with doc.
Its winter, 10C now, but a few clouds, fine, sun trying to stop hiding, and at least it is not snowing with a meter deep outside.
Well OK. We switched to the Metric Measurement System as used in Europe in 1960s, and to dollars instead of pounds.
IKg = 2.2lb, so my 76Kg weight = 167lb, which is 11stone and 13lb.
1Litre = 0.22 gallons.
1 kilometre = 0.548 miles.
Its a much longer distance to Australia from US than to Germany if you want Lu177, so plane fares are more costly, but maybe C19 is preventing US men from travelling anywhere overseas.
0.0 degrees centigrade = 32 degrees Fahrenheit, and both are the temperature of water when it freezes.
100C and 212F are same for temperature for when clean fresh water boils at sea level.
So a hot day day be 38C or 100F
Psa of 5 is threshold of when docs are urged to tell patients to book in a biopsy.
Its too high, and should be 3. A Psa of 0.5 is roughly half what normal healthy Psa is where the man will never have problems with his PG.
Testosterone is measured here in units I don't remember, but normal range is between 8 and 38 units. I was measured at 20 during a pause in ADT in 2012 to see if ADT+EBRT had worked. During ADT, Testosterone was less than 0.5, regarded as very low. But it is perhaps enough to keep Psa cells alive, but mainly asleep.
Over time during ADT, Pca cells can develop more receptors to filter out Testosterone from the blood when T levels are low, and then Pca can grow real fast without much T, and then Pca can begin to make its own T and ADT can't hold back growth of Pca; its called ADT failure.
If your husband says having a wife is good compared to saying it is not bad, then surely that's an improvement but nowhere near what modern expectations are where men are supposed to say they love their "partner" 3 times a day and never mention the work wife which implies the dearest beloved is a slave, even though us men are expected to be silent non complaining slaves to what any female partner wants, and be able to read her mind which can change hourly.
I was unable to ever measure the mental distance and temperature of any female I dated, and with one I happened to marry, I found she didn't know if she was hot or cold or close to me or distant, and complained hugely about all things until finally she exploded with just too many female problems and left on 11pm plane without telling me when or to where. I still thought having a wife would be a very "thing" to have, oops, bad error here, objectification of a female, but then was I not just a male object to all the females I met?
Ideally, we should be in a state of bliss while married, or with a suitable person we like sleeping with, depending on our sexuality of LBGTQ. I'd like the range of sexuality extended to LBGTQD, with the added D meaning Desexed, like a dog or cat that has been taken to the vet to remove testicles to make them calmer and genteel, and able to better live with us humans. Doctors routinely give men ( and women ) treatment which de-sexes them, so holding hands and being polite has to replace being animalistic where humans can't resist the urge to let Rodger attack Fanny, or vice versa.
I think that's quite enough for Sunday morning preaching from the Pulpit Of Reality from an old friendly Heathen whose Pca has forced him to change 95% of how he thought about existence when he was under 40.
It was -5C here this am. Where there are statues of males around, many are now being pushed over and dragged away to a river or a pit by the irate socially correct species which live amoung us. The ppl wrecking the statues may have noticed that testicles of the males have frozen off here, so as they say, this morning was so cold it could freeze the testicles off a brass monkey.
Its time for me to go for a bike ride and be less tormented by existential thoughts,
Hey Sitano. Such support from the hot flash club! I’m now entering my fourth year of eligard shots (injected in the belly every six months). combined with Zytiga. Year one was my most active hot flashes and night sweats. And that was intense. For me, it actually decreased over time and they’ve been quite non existent for the past 1.5 years. I do run a bit cold now and am often setting the temp at 76 degrees or wearing a sweater. I agree with the exercise. I lost muscle and gained fat (in female places) the first year and then geared up for tons of walking and 2x per week resistance weight training. I’ve got to watch my bone density carefully but i can attest to a lean muscular body being achievable if you don’t let your efforts go down! We are here for you! Dougnola ✌️
I've been having alot of hot flashes the past month seems maybe the hot weather causes them to come and go? I'm also suffering from bouts of fatigue. Only got my first lupron shot end of April ( 3 month ).
Yes, hot weather can make the hot flashes more noticeable . Fatigue was severe for me my first three years . Now I still get it but not as badly. Maybe I’m adjusting ?
I've been having alot of hot flashes the past month seems maybe the hot weather causes them to come and go? I'm also suffering from bouts of fatigue. Only got my first lupron shot end of April ( 3 month ).
I have been on Lupron for nearly 8 years. I take 75-mg Venlafaxine each day. This stuff works the first day, and stops 90% of the sweats and hot flushes. You do not have to suffer. Please ask your doctor to prescribe this generic med. It also helps that this is an anti-depressant.
I’ve been on 75-150mg of Venlafaxine for years, it didn’t prevent my hot flashes. Every body is different. Good to hear it helped you. It stopped my anxiety and depression.
I was on a tri-monthly shot of Lupron. My RO prescribed estrogen patches and I had no more hot flashes for the 18 months I was on Lupron. No side effects of the estrogen.
I was diagnosed last year 4+3 and was on Firmagon for 3-months. I heard so many bad stories on Lupron I was scared to death. The only side effect I had from Firmagon was hot flashes, sometimes 12+ times a day, 5-minutes per flash and most people couldn't notice although the flashes did effect my sleep (blanket on, blanket off etc.). I had internal and external radiation after that and amazingly everything still works. Everything. It took about 6-months for the hot flashes to stop and now it's like nothing ever happened. Weird and concerning that my treatment was effective. I'm getting my PSA checked every few months and so far so good. If the cancer comes back - I wouldn't hesitate to go back on Firmagon. Really don't want to do that and I'm enjoying the honeymoon but it was way better than what I expected so far.
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