4 the week of Firmagon: In my 4th week... - Advanced Prostate...

Advanced Prostate Cancer

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4 the week of Firmagon

JPnSD profile image
15 Replies

In my 4th week of Firmagon...and since starting the treatment, as of yesterday....PSA went from 0.16 to < 0.01 (undetectable)....which is where I was a year ago post RP. T went from 128 to 19. So next shot is Monday...and hopefully it won't be a week of pain like the first double shot. Radiation for 7 weeks (daily) is a month away now. Happy Holidays 🎅 :). At least the hot flashes are keeping the heating bill lower.

I do wish you all the best for the coming holidays. Peace.

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JPnSD profile image
JPnSD
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15 Replies
Tall_Allen profile image
Tall_Allen

Good results.

Horse12888 profile image
Horse12888 in reply toTall_Allen

TA: Why was he put on ADT with PSA 0.16?

JPnSD profile image
JPnSD in reply toHorse12888

"He" is here and able to answer questions about my own health. It is an attempt to be able to go into remission. Gleason 9, I had RP...1 lymph node positive..went to <.01post op....recurrence...and PSA has been gradually rising. Best shot is to catch it prior to .2 PSA. Radiation next after 2 months ADT. TA is well aware of my journey.

Horse12888 profile image
Horse12888 in reply toJPnSD

OK, sorry. I guess that was somewhat rude of me....

Very best of luck to you.

j-o-h-n profile image
j-o-h-n in reply toHorse12888

Don't get your tail in a wad............ No one is rude here.... crude but not rude....

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 11/14/2020 7:57 PM EST

And peace to you.

Andrevz profile image
Andrevz

Hi.. Yes the initial Double shot.. brings the PSA down almost immediately.. the shots i have been having monthly have been from getting cold chills..a very sore injection Spot on the stomach lasting 4 days.. i have found that with Firmagon..the joints are extremely sore a week before the next shot..Have been on Firmagon for 2 Years now.. Keep going , the symptoms differ each month

binati profile image
binati in reply toAndrevz

I have found over 20 months of Firmagon that if you have a muscular abdomen then nearer the navel is more painful. Get your injection more towards the side of the abdomen in the fleshy part - no muscles.

Andrevz profile image
Andrevz in reply tobinati

Thankyou, must try this

binati profile image
binati in reply toAndrevz

Joints get sore or one has difficulty with initial movement from stationery position because of no testosterone. This could be the cause of soreness if you don't have arthritis (osteo or rheumatoid).

johnscats profile image
johnscats in reply toAndrevz

Ask your doc to give you steroids take 1 5mg for 3 days before injection I suffered badly from it now no real problems

Wow! I Feel for you brother .. My first shot was a one month dose of Firmagon over five years ago . I did imrt and double adt at the same time . Then in remission over four years now . I switched to Lupron for 18 months then I had an orchiectomy over three years ago .. allowing me to drop the lupron . This entire time I’ve been on a failed adt test drug that’s still working for me . Go figure? Get through all of this crap and get back to healing . It takes time to recover from treatments . Stay strong . Get oxygen each day if possible ? You can push it away for years 🙏

MateoBeach profile image
MateoBeach

Good attitude. Fight on! 👍🏼💪

OldChappy profile image
OldChappy

For the pain, ask the nurse/med technician to put injection at a 45 degree Angie and to do it slowly—at least 60 seconds. If they’ll do that it shouldn’t be as sore.

I’ve been on Firmagon for almost three years with timeout after RP. That’s been my experience.

j-o-h-n profile image
j-o-h-n

Happy Holidays to you too.... and may Peace be your companion....

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 11/14/2020 8:01 PM EST

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