my father got diagnosed prostate cancer 15 years ago in penultimate stadium. He had metastases all over and the doctors gave him 3 months to live. However the hormone therapy, and that is the only therapy he got, worked so well, that the cancer shrunk. Since then he is getting hormones every 3 months. For some time now he is suffering from freezing attacks at night. He feels so cold from the inside that it doesn't matter how much heating goes into the room or what he wears. Sure he adds as much clothes and heatings options as he can and that makes him sweat, so he wakes up totally soaked with sweat, still freezing. None of the doctors have an answer to this phenomenon and they tried a hormone treatment related to the thyroid but that has not made a change. So my question is if you have heard of a connection between long term hormone therapy and the paraesthesia of temperature?
Thank you very much!
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Ihaveaquestion22
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Hormonal therapy will do that. However, l have never heard of anything that bad. I would sometimes wake up totally drenched in sweat. But those extremes got less and less with time.
Wow! No chemo or radiation for all those years? Just ADT? That's a miracle! Does he exercise a lot during the day? I find that if I sweat buckets in the daytime on a long, fast-paced walk, the chances of night sweats is diminished. Good luck!
He actually did exercise and work out a lot for many years. Just recently due to his age he reduced and maybe that could be connected to the new paraesthesia of temperature. Thanks for pointing that out!
Did he use any supplements or diet changes to bolster the positive effects of the ADT? I think a lot of us are wondering how he stretched his good results out to 15 years and counting. Thanks!
That is just the other side of the coin of hot flashes. ADT affects the temperature sensing mechanism in the brain - one senses heat when one isn't hot, and cold when one isn't cold. There are several options: acupuncture, estrogen patches, progesterone patches, or venlafaxine.
I have few if anything like hot flashes but I do get cold, especially after hard workouts during the winter. I have to take hot showers and drink tea rig ht away but I still get Raynaud symptoms. It's working in my favor during these warm months though as 85 degrees barely gets be sweating when cycling. I must have bizarro PC.
Thanks for sharing dad s plight with adt . It’s pretty amazing that is all that he has had . Adt loses muscle . I ve been on it full time five years. I lost all muscle . I get hot flashes but also extremely chilled due to no fat or muscle keeping me warm . Our furnaces and hormones are off .kilter..I’d say many have this . Im now like Goldilocks with everything. It all had to be just right or I’m hot or cold . 15 yrs after given 3 months is a miracle. This gives hope to many newbies . Thanks 😎
Thanks for sharing! The only thing my father did besides of The ADT treatment was to start working out. When doctors told him to just enjoy the rest of life and not to overwork himself physically, he went for the opposite. He started going to the gym and pushed himself to get in shape. In his youth he was a professional Judo sportsman, so he knew what it means to reach personal boundaries. He searched for this again and strengthened his muscles. Work out still helps him in many ways.
Great job dad! Judo is one tuff sport. That training serves him well . This is an inspiration to others. Working out 🏋️♀️ Under adt ain’t that easy to do . He is strong.. Reasons to live and a strong will to do so can shoot dismal doctors predictions down the tube. If we don’t work out osteo and cardio will set in .. Maybe he doesn’t have a lot of fat to warm him. That’s one of my issues . Used to run hot all of the time. Now I’m the chilly one when temps drop . I have an infrared sauna that I’ll use once fall arrives. This is recommended to me a naturalpathic dr . Says it’s cleansing and basic holistically good for the heart . You Can hook one up at home. I got mine used on Craigslist for $900 . Had never been used. Feels great when it’s cold . Take care and good luck to papa! 🍀
I nearly always get a heavy case of the bone rattling super cold shakes every time I get a Zometa infusion. I have a small jacuzzi I heat up pretty good. When the cold shakes hit, I go out and jump in the jacuzzi for an hour and the cold is gone. Might work for him too.
Couple of shooters don’t hurt too yayahahahaya warm you right up. 😂😂😂😂🌸🌻🌵🌵🌵🌵❤️
Wonderful results for your father to thrive for 15 years gives us all real hope- praying your find a solution that helps with the temperature regulation. TA is always a good source of information. Please update us when you find an answer.
Wishing him many more years of health and happiness
I to was diagnosed with metastases all over. In the hospital for three days when diagnosed getting blood. Now going on 3 years since diagnosed and like your father on ADT (zytiga). At night I get so hot then cold. Have a stash of blankets by the bed. A hot soaker bath helps when I'm chilled to the bone. Sometimes have to fill the tub twice.
First, kudos to your Dad for staying the course on just ADT for 15 years 👍
Next, the cold chills could be the loss of fat due to his workout regime all these years. Do check his diet, if he needs to increase certain food groups.
Take care and my best to you and Dad.
Well, 🤔 I think i better start working out faithfully from now, have been slacking in that department.
My father was really happy to hear all your blessing and wishes for him. He is now 78 years old and unfortunately has beginning dimentia. So I asked my mother to answer your questions.
When my father was diagnosed age 63, his PSA was out off the roof, 20000 and both independent doctors gave him 3 month to live. His body was full of metastasis. I remember his x-ray when we asked the doctor what all this dots were and he admitted that that were metastasis everywhere.
The treatment was Trenantone and Bicalutamid at the beginning, later and still he gets every 3 months a Trenantone injection. He was in really bad shape when he got diagnosed, nearly not able to carry his bike out of the basement. But he started exercising though the doctors told him to rest. Glad he didn’t listen to them. He exercised heavily every second day at the gym, mostly strengthening muscles. Now he is starting again slowly after the Corona shut down.
His PSA from yesterday was 3.64 and it always was under 10 over all those years.
My parents eat very healthy and always have, only fresh organic self cooked food and they both drink every day a special drink, a doctor recommended years ago again cancer:
Tomato juice with curcuma, olive oil, and black pepper.
I guess this are all the secrets I could gather from him. I thank everybody for the many advices. As we live in Germany and my parents don’t speak English fluently, I will summarize your comments to them and we already decided to search for a new Urologist that will take the journey to find out about the paraesthesia of temperature he is suffering from. Probably he should change the medication and work out more again.
I dearly wish all of you only the best! Thank you!
Thank you for taking the time to ask your mom and getting back to all of us. Please let us know when you find the solution for your dad’s freezing at night. I will be cheering you on from 🇨🇦 Canada . Love and Light
When first diagnosed with metastatic prostate cancer in late 2015, I assumed the side effects had to be exaggerated, but soon learned firsthand they were not. Averaging 45 attacks in a 24 hour period the first 3 months, my nurses at Cancer Treatment Centers of America freaked out and asked me why I hadn’t called to report this number. I explained that they’d told me to expect hot flashes and night sweats. My naturopath gave me Venlafaxine, Meloxicam, Gabapentin & Evening Primrose oil to decrease the frequency and severity of these attacks.
Even using these products I would sit in a room with beads of “sweat” dripping off my nose and eyebrows, a dark yoke of moisture surrounding the neck of my shirt and tell my friends to brace for me soon shivering with cold as I no longer had the ability to regulate my temperature.
I used parentheses around the word “sweat” as this discharge no longer stinks of normal body odor since I’be been robbed of my natural male hormones.
I’m now on ADT2 and use these same supplements without much decrease in the severity or frequency of attacks compared to what I was taking with ADT. Before my lovely wife, Lisa, bought me a hot tub, I was routinely filling our bath tub each day with hot water. Though this caused horrible hot flashes, I needed the soak to get my body warm,.
I wish him the best as you go forward. It’s a tough thing to endure but you get used to it after a while!
This post is very encouraging but lacks a lot of information about your dad's condition and treatment that would be of value to others on this forum. Bodysculpture asked a number of questions in an earlier post. I understand you might not be aware of the answers but if your dad can provide them to you it would be so helpful. Thanks.
I am still gathering more helpful information for you from my father side, but I might need a couple of days for that as we don't live in the same place.
Would you be kind enough to furnish us with your Dad's Bio info. Age? Location? Treatment center(s)? Doctor's name(s)? Psa? Thank you!!! All info is voluntary but it helps us help your Dad and helps us too.
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Joint Pain
My brother has advanced Prostate cancer
First post: Father with metastatic PCa, looking for natural treatment experiences after stoping oral chemo/radiation. 
