Latest CT Scan and Radiation

[tom67inMA]

Of course this is mostly a link to a blog post, but the highlights along with a few extra details exclusive to this forum are:

1) I had a great response to chemotherapy. My liver metastases have resolved leaving the bladder tumor as the only spot left visible on a CT scan (other than the extensive bone metastases).

2) It turns out my MO is only guessing that my neuroendocrine cancer originated in the prostate, and when pressed by the RO apparently admitted it could be neuroendocrine bladder cancer. Of course, this makes no difference whatsoever to the treatment plan. I hope there is no "proof of citizenship" requirement to remain a member of this forum (of course, I still have normal prostate cancer too!)

3) Radiation treatment (10 sessions) to the visible bladder tumor begins on July 8th.

4) The usual bad puns and genital references you've come to expect in my blog posts.

tominmotion.blogspot.com/20...

[Sunlight12]

I'm so glad you had a great response to the chemo! A little good news is always a good thing. I hope it keeps on coming for you!

Sending the best of wishes your way!

-Sunlight

[Tall_Allen]

IHC can determine point of origin, but as you say, it doesn't really matter - the treatment is the same.

[tom67inMA in reply to Tall_Allen]

I think they ran out of biopsy material before they could do all the testing (including genetic) they could have done. In the testing they did do, nothing interesting from a treatment perspective was found. And gosh darn it, my body is rapidly running out of candidates for a new biopsy

[j-o-h-n]

Good news Thomas (never doubt you).... Okay now fill in your application for joining this forum and mail it to me with $2,000.00 in USD cash - Indian head pennies excepted. Thank you.

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 07/03/2020 3:21 PM DST

[j-o-h-n]

I just finished reading your blog and found it as interesting as your prior ones. Now let me make sure that what I got out of reading your blog is that they will replace your stent with a mask. Correct?

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 07/03/2020 3:35 PM DST

[tom67inMA in reply to j-o-h-n]

It's the other way around. I don't need to wear a mask if I shove a stent up each nostril

[j-o-h-n in reply to tom67inMA]

Gonna be almost impossible to pick your nose.............but you're the boss....

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 07/03/2020 5:30 PM DST

[spouse21]

Yay, Tom! 'cept for the bladder radiation part, darn it!

[tom67inMA in reply to spouse21]

Not too worried about the radiation. It feels like I have my foot on cancer's throat at the moment, and this could be the kill shot. Hope springs eternal

[GoBucks]

Just got back from time off and found this post and your blog. Step on that throat and kill them bastards! Can I say that here? Good luck in radiation. And as always, great blog post.

[Doseydoe]

Gday Tom, all the best with the radiation treatment. I hope it shrinks and kills the bladder tumours. Cheers 😎DD.

[Gunnershome]

Hi Tom, my husband has Neuroendocrine PC. I wanted to check in to see how you are doing? Can I ask which chemo combo you had? This disease is a beast. Wishing you good health.

[tom67inMA in reply to Gunnershome]

I had carboplatin + etoposide for chemo, and continue on atezolizumab as well as lupron and abiraterone. As for how I'm doing, I don't really know. A CT scan at the end of June showed a great response to chemo. I've since had radiation to the remaining bladder tumor and will have another scan at the end of September. The atezolizumab seems to hit me pretty hard, and I've yet to recover any significant energy compared to what I was hoping for.