Input and opinions welcome

[Blueslover]

Surgery 2008 with one dirty margin. Gleason 7, some 9. Undetectable for years. Prostate bed irradiation after 5 years then undetectable again for years. 4 metastatic retroperitoneal nodes and one pelvic. Started Lupron 3 years ago. Nodes disappeared. Undetectable until 1 year ago; 6 months ago was 0.2 then yesterday was 2.1. Now 75.

The plan (Duke) is to have a Provenge treatment now, get repeat bone scan and CT after that, then probably start on Daralutamide depending on scan results.

Comments welcome.

Hugh

[Tall_Allen]

How can you get darolutamide if metastases have already been detected, or is this a clinical trial?

[Blueslover in reply to Tall_Allen]

Not a trial as far as I know. Am told mets may not be detectable even though PSA is up, as they were on the previous CT

[Tall_Allen in reply to Blueslover]

Darolutamide is only approved for non-metastatic castration-resistant PC. "Non-metastatic" means that metastases have never been detected. It doesn't matter whether your treatments have shrunk your metastases, you are still staged as" metastatic."

[Hidden]

Well Blueslover, you’ve proven strength in enduring life with APC . If we are lucky enough to survive the first years then it’s an endurance test . Keep rolling 😎

[Blueslover in reply to Hidden]

Thanks guy!

Good luck to you too

[Hidden in reply to Blueslover]

💪✌️

[Hidden]

That damed one dirty Margin ... S o b .. I pray the Provence does you Some good . Keep loving the blues . 🎷🎸

[Blueslover in reply to Hidden]

Thanks

[Victorq1]

HI BLUESLOVER

I AM ALMOST IN THE SAME "CLUB"

JUST MY JOURNEY WAS 2007 DIAGNOSES OF PC.DECIDED FOR BRT RADIATION. GOOD RESULTS LASTED ONLY 3 YEARS

THAN HORFMONAL TREATMENT INTERMITTENT AND CONSTAT FOR 12 YERS !

NOT BAD.

NOW I WAS ALSO HIT BY METASTASIS INTO PELVIS AN LEFT LEG BONE.

LOTS OF PAIN.

WAS FINALLY TREATED WITH ONE ADITIONAL RADIATION AND GIVEN ZYTIGA(ABIRATERONE) WITH PREDNISONE.

I WISH MY ONCOLOGISTS INSCRIBED ME TO PROVENGE AS WELL.

UNFORTUNATELY DID NOT HAPPEN.

I UNDERSTAND LIVING IN BC CANADA OUR INSURANCE DOES NOT SUPPORT ENZALUTAMIDE.

NOT MANY OPTIONS LEFT ?

BUT STILL ALIVE.

HANG IN THERE

AND GET INFORMED !

BEST REGARDS

VICTORQ1

[Blueslover in reply to Victorq1]

Thanks for your contact Victor and very best of luck to you. Hope the leg pain gets better with treatment

Your friend, Hugh

[Victorq1]

good luck and long life !