In these uncertain times I know, I am... - Advanced Prostate...

Advanced Prostate Cancer

21,581 members27,008 posts

In these uncertain times I know, I am not the lone ranger. But ?

Costarica1961 profile image
7 Replies

I have been on xtandi for several months, PSA is creeping up from 0.08 to 0.4 as of 3 weeks ago. Zytiga previously failed after 16 mos, rad prostectomy 2016 and radiation 37 sessions. Currently on zometa infusions every 3 months and lupron on same day. Next round April 13th. I have a pet auxium scan to see is I have additional Mets. L3 blasted 3 .months ago. No others detected at that time, March 27th next scan scheduled. My question is given the current horrific national climate should I consider docetaxal or clinical trials, immuotherapy. That's if there are health care professionals available. I understand we are in the beginning of a prolonged national crisis and some questions are difficult to answer. I just wonder if chemo for those of you who have experienced it would be like walking into the belly of the beast given the vulnerability of a lessened immune system already after almost 4 years of treatments . My fear is when zytiga failed some months back the PSA incrementally shot up and then the L3 tumor was discovered . I have never felt more vulnerable, as many of us at this time although I am trying to control some of the process with my oncologist who is overwhelmed like the rest of us. My job ended last week, and I still care for my wife who is disabled. Just wanna get some ideas of how to at least get some clarity on this front. Thanks to all.

Written by
Costarica1961 profile image
Costarica1961
To view profiles and participate in discussions please or .
Read more about...
7 Replies
Tall_Allen profile image
Tall_Allen

Ask for Leukine shots with docetaxel.

Costarica1961 profile image
Costarica1961 in reply to Tall_Allen

Ok I will look it up . Thankyou

Pues,Costarica1961 . You the Lone Ranger me Tonto! Kimosabe, I too and all of us feel the same vulnerability right now. What will tomorrow bring us? I’ve had over five years treatments this month.. i go in for pills and testing in May . But what will may look like? We don’t know. im sorry about that L-3 . Lets just get thru this dam time of testing brother. Love your family and yourself . If we didn’t know before that we are not in control of anything? We know now. Most of us are in a similar fog amigo.. Love life even with distress . Love those with us. Let’s be glad that we are not in chemo or rt right now . Not waiting surgery ..the blood supply is low, many may perish due to that alone. Easy for me to say , but your psa is still undetectable . I know it s alarming any rise . But it’s still low . Hang tuff Hombre !🤙🏽😎

Costarica1961 profile image
Costarica1961 in reply to

A lot to be thankful for sure.

in reply to Costarica1961

Amen🙏

j-o-h-n profile image
j-o-h-n

Enjoy your "retirement" and take care of your wife. All this kaka will eventually blow over and then you can resume your fight against the other kaka..........

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 03/22/2020 5:40 PM DST

Costarica1961 profile image
Costarica1961 in reply to j-o-h-n

Absolutely . You take care.

Not what you're looking for?

You may also like...

It's been a lonely time...

great medical team and supportive family & friends who have helped me adjust to the loss of my...

I realize its hopefully a marathon but when should you sprint.

ago after zytiga failed some months back it appears that xtandi is the next to fail. My PSA is...

I am a newbie on this site...

unchanged and in check but my PSA has risen to 1.2. A P.E.T. scan this month indicated that the...

I am apprehensive to write this - but HOLY COW!

-……. My 3 month appointment w my oncologist was yesterday. I was very apprehensive since my PSA has...

Hmm... Why am I on Zytiga?

2/6. Monthly blood-work seems to be on target and I feel great. My question is: Why am I on......