Vaxchora and other year ends news - Advanced Prostate...

Advanced Prostate Cancer

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Vaxchora and other year ends news

Canoehead profile image
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Haven’t posted for a while, but have been following. Most of you know more than I do.

Getting Vaxchora, the cholera vaccine, was a bit of an adventure. My MO read the European study I referred him to, asked me if I was really going to a cholera infested country soon (I said yes), and then rolled his eyes while he ordered the script. When I asked about getting god dewormer, he said he would see me in 3 months. I was told that Walgreens could get the drug, and it took them 2 weeks. Cost was $270, no insurance coverage. Ten. Minutes after I picked it o\up I got a frantic call from the pharmacist asking me to return it, because FDA approval is only through age 64. I told her I already took it, and she said she would call me back, but she never did. I had no side effects from the drug, which is a live virus oral vaccine

I remain PSA undetectable, 18 months, and 6 months after I stopped Lupron/Zytiga. The bad news is that the prednisone taken with Zytiga apparently controlled my “radiation colitis.” Within 3 weeks after I stopped the prednisone I had diarrhea all day everyday for 3 months until we started to figure it out. Back on a different steroid now, but this is still a work in progress.

I have developed some minor urinary leakage. It comes and goes, so I am trying to be more responsive. Still taking\ tamsulosin.

Question about my serum T level - it was at 7 when I stopped meds, and went to 19 and 50 on two tests since. Is that normal?

To all my brothers on this site, a belated Merry Cheiistmas and Happy New Year. My wish for the new year is that I don’t have to read any more obits about our brothers in this fight. This site has been a vast source of knowledge and comfort to me.

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Canoehead
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LearnAll profile image
LearnAll

I enjoyed reading your VAXCHORA adventure and how you procured it. My Primary doctor is my long time friend. I didnot need to show her study..just explained her about potential beneficial effect. She immediately wrote me the prescription. Went to pharmacy . Pharmacist said my copay is zero and he will have to get it from vendor, so will take a few days. Eagerly waiting to have Vaxchora in me in new year...I m already feeling my NK cells and macrophages jumping with joy..ready to kill cancer cells.

j-o-h-n profile image
j-o-h-n

Geez and yesterday I was just wondering where the hell is Canoehead? And Bingo you popped right up today... I just know that I'm psychic... nice to see you again.....and worm free too.....

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 12/29/2019 11:05 PM EST

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