Hi everyone! I haven’t posted in awhile about my dad. I had to take a break because I was becoming obsessed with finding anything and everything I could to help him. I needed to take a step back for my sanity and for my family. My dad has been through the ringer! After failing zytiga, xtandi, taxotere, Lupron, etc I got him into the lu-177 trial in Omaha. He was chosen for the lu-177 arm and started treatments in January. He was bedridden and unable to do anything. His quality of life was poor and he was down to 119lbs. Since starting the trial the past 6 months he has gained 12lbs back and regained a better (but not great) quality of life. The reason I’m writing is because we have battled one thing or another and I’m beyond frustrated. Although his quality of life has improved it hasn’t improved as significantly as I had hoped. He is so emotional and depressed and we are battling low platelets and anemia. His platelets last week were at 48,000, the lowest they have been and he also was taken to the ER for a SEVERE nosebleed that would not stop. His nose bled for 5hrs straight and they couldn’t get it to stop. He has nasal packing and a catheter in both nostrils and finally after platelets were given and 2 days passing it seems like the bleeding is under control. The ER Drs gave very little info as to why this was happening. My question is this......is this the cancer causing this or the low platelets?
The packing comes out on Monday. Has anyone on here heard of this? I can’t find any info and will he start bleeding again? It was horrible!!