Incontinence after prostatectomy - Advanced Prostate...

Advanced Prostate Cancer

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Incontinence after prostatectomy

JJprostate profile image
20 Replies

I've tried myriad pads and diapers and the designs and fabric all cause awful chafing and irritation at the tip of penis. Anyone have a product or solution? Tks.

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JJprostate
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20 Replies
snoraste profile image
snoraste

Perhaps if you wear tighter briefs, the movements will be less. I had RP and was on diapers for a while myself.

Wade-o profile image
Wade-o in reply to snoraste

After my RP I had terrible chafing and bright red rash all over inner thighs and scrotum. My primary care physician wrote me a script for “Clotrimazole - Betamethasone” a cream and it was gone in 2 days.

Hope this helps

JamesAtlanta profile image
JamesAtlanta

Depending upon how much of an incontinence issue you have, incontinence briefs may work. They are real cotton briefs with an extra large amount of fabric in the front to absorb leakage. I found them on Amazon. They worked for me as I transitioned from Depends back to my ordinary underwear. (Make sure you are doing your incontinence exercises, too. They work!)

Hope this helps! Good luck!

James

arete1105 profile image
arete1105

I talked one person who said his leakage was such that they inserted a battery operated valve. When he had to go he pushed a button and when done he pushed it again and it closed off the urethra. He found it quite satisfactory.

JJprostate profile image
JJprostate

Thanks Gents. Got you. Here's the issue. The chafing is on the head of the penis and only gets worse from damp nylon/ fabrics rubbing. I've tried virtually all the stuff from local CVS and from Amazon. One cotton and NON disposable from Active50 seems like it might be better

Anyone got thoughts on dealing with this especially when walking rather than being still? Seems that movement actually stimulates urination.

Tks

AlanMeyer profile image
AlanMeyer

I have no personal experience with them but a Google search for "penis clamp for incontinence" brought up a lot of choices. I don't think they rub the end of the penis or hold any urine outside the body. Some men seem to do well with them and some don't. I suspect it takes some practice to get the clamp on right, get it off at the right time, and get used to it.

Alan

tallguy2 profile image
tallguy2

I too have incontinence after my 2012 RP. Perhaps I didn’t do enough kegel exercises. Alcohol or vigorous walking/exercise cause me to use more than one pad per day. On vacations I will combine a pad and Depends underwear.

Anyway, for the rash my doctor prescribed a generic ointment called “triamcinolone acetonide cream.” Works well. Best wishes!

BrentW profile image
BrentW

Dribblestop. dribblestop.com/

Seebs9 profile image
Seebs9

I use Prevail pads in my disposable brief (trying not to say diaper) 7 months works pretty well, just ease into standing up if you are completely incontinent like I am. Stand up quick and urine comes out faster than it can be absorbed. I found a pretty cool pair of underwear with a rubber appliance connected to a bag by Afex. A little spendie but it works. Hope this helps.

dress2544 profile image
dress2544

I use penile clamps to control the incontinence. But shouldn't be worn for long hours. The clamp has to be released at reasonable intervals. I am using it for the past three years. Works well for me.

dadzone43 profile image
dadzone43

Easy helper is a dab of triple antibiotic ointment (NOT cream, you have to have a Vaseline moisture barrier). I did well with the Willow incontinence brief and LOTS OF pelvic floor exercises. If the moisture is causing a fungal infection, the steroid creams will control it.

rogerwegner profile image
rogerwegner

I was having bleeding from the foreskin area due to the damp pads. My uro suggested Desitin cream and it cleared up in a week. The clotrimizole alone was not enough.

rocket09 profile image
rocket09

I use Costco and rinse my penis lots with water. I did use zincofax cream once, It worked.

Istomin profile image
Istomin

Hi, I like Tena brand pads (not all sizes/degrees of absorbency on Amazon and sometimes overpriced there, but available from the company website), close fitting but elastic underwear (I like RBX) and for irritation, which occurs sometimes with long walks/hikes, I use A+D diaper rash ointment--works for babies and works for me.

zenbee13 profile image
zenbee13

Hey JJ,

Had and still have the problem from a prostatectomy in 2009. I use feminine napkins. Always Infinity. I cut off the side wings and just stick them in my underwear. If I get chaffing I just use A&D ointment. I've been using that for Jock itch since Jr. High School and it always does the trick right away. In fact while raising our sons we used A&D instead of Desitin, or anything else and the boys never had a rash last more than a day.

This is a simple fix and about as inexpensive as you can get!

Bees

Engraver68 profile image
Engraver68

I suffered fir a few years after RP and radiotherapy the solution for me was to have an artificial urinary sphincter surgical implant. This gives back full control or urine flow it’s been life changing fo me! Now able to enjoy the active lifestyle I have always had. Ask your oncologist for info and advice

j-o-h-n profile image
j-o-h-n

The following info is technical, so be prepared.

Coat your dick with A and D ointment.... (Costco has best price).... Also refrain from jabbing your dick into the jar....

BTW you haven't provided us with your:

age? location? treatments? Psa and Gleason scores? Treatment center? doctor's name(s)? All info is voluntary, but it helps us help you and helps us too. Thank you.If you wish to reply please do so on a future date and Not directed to me.

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 06/25/2019 7:12 PM DST

ck722 profile image
ck722

Meanwhile, Kegels 3X a day. Clinch 10 seconds, rest for 10 seconds for a set of ten. Works very well for many. Pads and the like are necessary for a while but don't become dependent on them or you will never progress. A PT can tell if you are doing it right. Fight on my friend. Persist!

Psychmed profile image
Psychmed

I use depends guards in my briefs and have no trouble with them. I just got a package of generic ones because the depends ones were sold out. I hope they're as good.

daleboy3 profile image
daleboy3

Hello I have had a super pubic catheter inserted into my bladder in 2005 I had the procedure done privately & every 10 to 12 weeks I have the super pubic catheter replaced at my local community hospital the reason I’m mentioning this catheter is that you won’t dribble etc as the urine goes directly into a leg bag as the super pubic catheter goes into the bladder wall 5 inches below the belly button & you can change the leg bags for new ones every 3 days to keep infections at bay

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