22 years with prostate cancer Mestatic last 7 years Psa high as 89 after chemo 35.7 how many would be happy with their Psa going up 3.7

[Ptclassics]

Sorry don't usually post doctor said most patients last 3 months befor going back on chemo I have had 7 months and holding now have some bone mets but just face it I am now 77 goal is 80 hoping for something new

[tango65]

Twenty two years is really impressive.!!!

You could discuss treatment with Xofigo, Provenge and chemo with cabazitaxel. You could also consider to participate in the clinical trials offering Lu 177 PSMA treatment. There are several clinical trials,

clinicaltrials.gov/ct2/resu...

or you could explore the possibility of getting Lu 177 PSMA/ Ac 225 PSMA treatment in Germany or in Australia.

There are many clinical trials offering treatment with drugs or combination of drugs that could be effective in some patients with castration resitant prostate cancer if the cancer has some specific mutations. Perhaps it could be possible to get a biopsy of one of the metastases and study the genome of your cancer.

[TL1111 in reply to tango65]

Hi. What is the Lu 188 PMSA treatment exactly? My father is kind of running out of options and I’m looking to get him on a clinical trial. He has extended Mets on his bones. Castration-Resistant prostate

[NPfisherman]

In the words of Lord Vader..."Impressive....most impressive.." Keep fighting, warrior...

Fish

[Grumpyswife]

Thanks for posting as it gives me hope for my almost 76 yo husband diagnosed ~19 years ago. It's great to have some treatment options left.

[Scorpio99]

You had 22 years with prostate cancer with a PSA score of 89? WOW, how are you still even alive?

[samahieb]

That's what I was thinking..what was your PSA at diagnosis...or is 89 the PSA after metastasis? At any rate,,22 years my friend...keep fighting..look forward to 80!

[Ptclassics in reply to samahieb]

Psa 7 when I went Mestatic my high has been 89 right now 37 dock says he wants me to stay off chemo until Psa is 100 I have always picked my treatment have a wonderful Doctor that goes along with me 100 I doh,t know

[mcp1941]

I was Dx 23 years ago PSA 95. Initial treatment EBRT and bracytherapy with 9 months HT. Good 14 years then PSA started to rise. On and off HT since. HT now failing and PCa may be morphing into neuroendocrine cancer. Not good. No mets yet but getting another Axumin scan late May. Still have Provenge and chemo to use. Hoping for many more good years for both of us!

Mike P.

[Ptclassics in reply to mcp1941]

Chemo worked some for me lowered Psa from 87 to 14 never stop fighting

[dadzone43]

Wish you all the courage in the world as you face this final battle with the Dragon. You have had a long run and hold out to all of us reasons to hope and to fight. I am 75 and just starting the fight. You inspire me.

[cancervictim]

Amazing! Do you mind if I ask what your Gleason score was at diagnosis?

[Ptclassics in reply to cancervictim]

Gleason 5 Psa 4 had seeds twice

[pjoshea13]

How did you get to 22 years? Supplements, diet, etc? Did you have a long period of remission after primary treatment?

I suspect that you will see 80.

I was diagnosed at more or less the same age. I'm at 15 years & 22 years seems like an impossible target. I have my eye on age 75, though.

I don't want to die of PCa, but the changes I have made reduce my cardiovascular risk. The remaining mortality options don't look that attractive. LOL

-Patrick

[Ptclassics in reply to pjoshea13]

Fo 16 years my Psa stayed around 3 Mestatic in 2013 have had every drug and every treatment known to man I look Foward that least 3 more years 2 different chemos left hope some thing new comes along Ls-177 not a cure

[j-o-h-n]

22 years = 693,792,000 Seconds.... Way to go.... keep those seconds ticking away.... tic toc

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 04/09/2019 6:39 PM EDT