Update on test results: Hi Kim here... - Advanced Prostate...

Advanced Prostate Cancer

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Update on test results

16starsky profile image
8 Replies

Hi Kim here again, we went to see the oncologist yesterday and we had some very positive results, my husband had responded really well to the chemo, still a little left in there im afraid, but his oncologist is hoping to get radiation treatment (EBRT),to the prostrate at the Leeds hospital so waiting to hear from them, it will be one weekly treatment for 6weeks,

Has anyone had this treatment, and did you have any bad side effects, or worse ?

Also my husbands PSA level had gone up from 1.5 to 2 the onc wasn't concerned but is there any supplement's that could keep his PSA levels down, I know the Lupron is supposed to do that, but any other recommendations please

Also why is it that when cancer spreads to the bone it cannot be cured, fully ?

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16starsky
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Tall_Allen profile image
Tall_Allen

As to why it is not currently curable after metastasis to bones, read:

healthunlocked.com/advanced...

Avoid all supplements with radiation - they may interfere. Discuss adding Zytiga to get his PSA down before the radiation.

16starsky profile image
16starsky in reply to Tall_Allen

Right, got it ! just read the link you gave me, and now much clearer about it all. I am also pretty new to using computers as well, I didn't go on one till I found out about my husbands condition, so you will have to excuse my ignorance.

Once again thankyou for your prompt reply, and insight

Kim

j-o-h-n profile image
j-o-h-n in reply to 16starsky

"so you will have to excuse my ignorance."

Kim, You're doing just fine, so keep up the good work and bless you for looking after your husband. ⭐⭐⭐ Three gold stars. Only one other person here got 3 gold stars from me, and that was me.

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 03/27/2019 2:50 PM DST

16starsky profile image
16starsky in reply to j-o-h-n

I feel at the moment that our lives are revolving around the PCa, probably because its all so new to us, I think being able to talk to other people about this is a good thing, as my husband doesn't want to be reminded of it all the time, I know we must try and carry on as normal, but to be honest it never will be normal again.

Thankyou for my 3 gold stars, and for you for taking the time to reply

Kim

j-o-h-n profile image
j-o-h-n in reply to 16starsky

It will for the moment... that's to be expected...Men like to bury their heads in sand.... I know I'm one of the them... But you gotta live... For me talking about it to my friends is sort of a catharsis but I don't ask for their pity, just of their money. So keep on keeping on... and Laugh so hard it makes you cry. Humor is my Hobby. Take care you're doing great.

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 03/28/2019 8:14 PM DST

16starsky profile image
16starsky in reply to j-o-h-n

Yes your advice is sound and once again you have brought a smile to my lips.

Kim

JimVanHorn profile image
JimVanHorn

While you are waiting for the radiation decision I would like you to know about the costs involved. You might want to check with your health insurance. I live in the USA and I had no health insurance when I was told to have 42 radiations. The hospitals wanted $130,000. So I called around and found a Urology Clinic that had it's own radiology machine that was even newer than the hospital's. I paid $30,000. (what they got reimbursed from Medicare). Then 4 years later I needed 30 more radiations, but I was on Medicare and they charged me $42.00. Stay with it and just so you know I no longer have PCa. Keep asking questions!

16starsky profile image
16starsky in reply to JimVanHorn

Thankyou for your reply, we are lucky enough to have the NHS in the UK so although we have contributed for many years through our taxes, we don't have to pay when we have treatment which we are very grateful for. My husband should receive 6 treatments, one a week for 6 weeks, I am still concerned about side effects, but what else can we do. His cancer is not curable, but the radiation treatment should hopefully help.

|Pleased to hear that your pca was able to be cured.

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