What else should we be doing - Advanced Prostate...

Advanced Prostate Cancer

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What else should we be doing

elainea53 profile image
13 Replies

My husband was diagnosed in March of 2018. Psa 18 Gleason 8.

We were treated at emory Winship in Atlanta.

He had derelix injections in stomach every four weeks.

He had chemo every 3 weeks for a total of 6 treatments.

Now, treatments is eligard every 3 months. In May we went to mdandersen. We felt better about the doc there. So we really have two docs but the one at mdandersen is our primary oncologist. We send him blood every 3 months. He only test for the psa btw down to 0.01. When he has the shots emory does all the blood work.

My concern is should more than psa be checked.

He is feeling ok and living his life. Chemo was rough for 5 & 6.

I want to be sure we are doing everything possible.

Thanks for any opinions.

13 Replies
GP24 profile image
GP24

I personally would get (cytoreductive) prostate surgery done to de-bulk the tumor. But this is not recommended in the guidelines.

euoncology.europeanurology....

elainea53 profile image
elainea53 in reply to GP24

Caccer had already spresd, had Mets in various places and lilac lymph nodes. Neither doc recommended surgery.

Thank you.

Tall_Allen profile image
Tall_Allen

He was diagnosed with distant metastases? You don't mention that.

elainea53 profile image
elainea53 in reply to Tall_Allen

I was trying to be brief, but you are correct.

Tall_Allen profile image
Tall_Allen in reply to elainea53

You still are not telling me what I need to know to answer your question. Did he have multiple (how many?) distant metastases, few, visceral, or confined to pelvic lymph nodes?

elainea53 profile image
elainea53 in reply to Tall_Allen

I typed up some info and sent to forum it didn’t seem to make it there. I’ll try to put in a post

Magnus1964 profile image
Magnus1964

Change your lifestyle. Become vegetarian, cut way back on alchohol consumption, take 1000iu Vitamin D3 daily, plus there are supplements he might take. You can find lists on this forum.

elainea53 profile image
elainea53

Thanks.he takes. 2000 vit d3 twice a day and a vit c gold.

in reply to elainea53

Vitamin D3 should be taken with Vitamin K2, this will insure that calcium will go to his bones and not his heart vascular system. I take 3,000IU D3 with K2 as subligual drops daily.

Checking serum Testosterone might be added to the lab work, just to be sure it is at castrate level (<20ng).

pilot52 profile image
pilot52

What are various places for mets? local mets or where?

EdBar profile image
EdBar

You can click on my profile to see what I’ve done. I live in the Atlanta area too. I use two oncologists, on who specializes in PCa who I see every 6 months and the other is a very good general onco for tests and treatment. They work together on my treatment plan.

When he as still practicing I was seeing Snuffy Myers as my specialist, he recommended monthly bloodwork and to be sure to monitor PSA, Alka Phosphatase and free and total T levels. I still get these tests done monthly along with getting my chemo port flushed which I still have.

Ed

Kevinski65 profile image
Kevinski65

I think you need to have scans done. PSA is just a one dimensional view.

j-o-h-n profile image
j-o-h-n

elainea53, you never responded to Tall_Allen's question (see below):

"You still are not telling me what I need to know to answer your question. Did he have multiple (how many?) distant metastases, few, visceral, or confined to pelvic lymph nodes?"

You should answer because T.A. knows his stuff...

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 03/25/2019 6:56 PM DST (Greek Independence day)

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