2013 dyn advanced inoperable metastatic terminal prostate cancer.Multiple Mets on skeleton. Zoladex injection monthly. Castrate resistant 2016. Psa was 328urg/l at start. Had down to 5 urg/l and then it rose to 56 urg/l put on bicalutimide for 12 months with the castrate resistant zoladex.
Late 2017 right kidney decided to give me grief
Urologist found I had been retaining 500 ml of urine. Wouldn’t listen to me. I’d talk about wanting a TURP procedure. But no from the young urologist
2018 April hospitalised with spinal compression upper spine and lumber. Had palliative radiation treatment.
Talked into having Zytiga June. I’d been putting off taking Zytiga for 3 years because I feel that it is the end off the journey drug.
Anyway for all those years I had severe osteoarthritis in my legs an hips from the hormone treatment and bone pain.
2017 I started researching medicinal Cannabinol oil. Early January 2018 I made my own Cannabiniol oil and put the oil in capsules
Within a month I had no arthritic pain and I was able to walk freely again. I could get up the floor unaided. No bone pain and helped with my kidney problem. Could urinate better but still retained 350 ml.
I had no side affects from the radiation treatment.
I have a Supa catheter inserted in my stomach in August 2018.
My PSA is now down to .04.
My oncologist and urologist are amazed by my well being. Signed me off as self medication.
I was given 24 months when diagnosed in 2013
In December 2017 I was given 12 months.
I know that the Cannabinol oil won’t cure me of cance but hey it’s definetely given me great quality of life.
I should have been on it earlier.
I had an MRI Scan 2 weeks ago and it was compared to a scan in February last year and there has only been slight increase in size of ametastatic cluster that are less then 1 mm
That’s my story and I’m sticking to it.
Looking forward to making some friends going thru the same journey. I live in NZ. TA
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Coop49
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I’m with you in full Coop49. I too make and use the oil everyday since dx 3-15. I’m naive also for 31/2 out of the last four years. Good luck to you..😎
Right on Lulu. Would have been a lifechanger for me had I started making and self medicating with oil 5 years ago. A lot of unnecessary pain. Also the anxiety and sometimes depression that come with the cancer an treatment
Hi Coop49, am I right in thinking that when you say you live in NZ, you mean New Zealand?
I am in Oz, and am interested in your use of canabid oil. Is that legally available in NZ? Regrettably that is not yet the case in Oz, though we are working on it. Apart from my own interest, my wife suffers from arthritis and it could be very beneficial to her.
I think I have now reached the state where Zytiga is no longer working for me and while my PSA is still low (1.2) I fear my doubling time will soon take it to levels where I have problems.
Incidentally I too have a Supra Pubic catheter, had it for the last 4 years.
Hi Chas I do live in NZ. Originally a Manly boy. Been NZ 50 great years.
It is not legal yet but has gone thru the second reading in parliament towards the legalisation of Medicinal Cannabinol for those that are terminal or those on palliative care. It also takes in all those that suffer from brain an nervous disorders.
I turned around the osteoarthritis from being very painful to walk. Not being able to raise my arms above shoulder height and the pain from muscle loss all from a side affect from hormonal treatment
Do you live in the Coolangatta/tweed Heads area.
There is a Symposium over 3 days on Medicinal Cannabinol
Coop, I am in Canberra so fair distance from Tweed Heads. Be interested to hear the outcome of that conference. At this stage it is likely to be of more value to my wife than myself, but certainly not available yet. No doubt it will eventually be useful for me.
I see my Onco on Friday and expect my next step will be Chemo, but not sure if that will be now or wait until PSA rises a bit more. I actually feel fantastic, even though I have been on Zoladex for 2 years and Zytiga for 6 months. Walk 3.5 kms every day, lift a few light weights and will play 18 holes golf tomorrow.
That would have been “The boy from Oz”. Great show....if you like Peter Allen. To be correct, it is a show based on the life of Peter Allen. He died in 1992. “The Boy from Oz” has been on Broadway for over 20 years.
Very funny. No abbreviated lives allowed on this forum. And, courtesy of google, Oz is abbreviation for Aussie, which is abbreviation for Australian. I would have guessed World War II, but apparently originated in World War I. So Australia became Oz. That is way cool. Enjoy.
Hi Gudge I make the oil and then put it in capsules. I cap is just under 1 ml. I now take 1x4hourly during the day. When I started I was having every 3 hours 24/7 for the first month. Later again when I had the Metastatic spinal compression and radiation injested
When I started I was taking 1 every 3 hours day an nite. It took a month for me to loose all pain associated with the osteoarthritis from 5 years of ADT. Hormone treatment.
Am I understanding correctly that you've been on Zytiga (and I assume prednisone with it) since June, 2018--about eight months--which brought your PSA down to .04? And you've been successfully taking a form of cannabinoil for pain control since 2017?
Yes correct. The oil had started to help lower the PSA SLOWLY
I’m taking the oil alongside the drug treatment and that in itself has stopped all side affects
It’s not going to a cure me but it has given me great quality of life
My husband is also on CBD/THC oil, T3b N1 M1, Gleason 9. Not sure about results yet, but at beginning PSA dropped a lot. Do you know your ratio CBD:THC and eventually mgs of such components per day? Which strains do you use?
Did the cannabis help to drop PSA or it dropped only after Zytiga?
Hi Myriam. As I make the Cannabiniol oil my self I have no way to test the CBD:THC. I use OO capsules that hold 4ml. I have been using Indica strain since I started making it
I grow one plant a year.
The method I use doesn’t infuse the THC into the oil
Wow that sounds great. You give the rest of us hope for a longer stay here on top of the grass. Was thinking about the cannibus oil now I am going to try it. Keep up the fight.
Larry here is the YouTube vid that I first followed but I have refined it to suit my self as to using a muslin pouch in the process so that there is no straining the oil after simmering
Why did that young snot urologist not want to do a TURP? You're still retaining 350ml and that ain't good. My TURP was the best decision I've made on this trip.
Always remember in dealing with the medical profession, it's your life not theirs. Question everything and if the answers aren't satisfactory, find a sawbones who will give you straight answers.
Stego it was always a fight with him. Thru the public health system in NZ
He would ok a penal catheter but not the turp
He would say ok to the turp and put me in the system then 3 months later at the clinic would tell me that they wouldn’t do it. I waited one arvo an saw a senior urologist and he suggest the SUPRA Catheter. Why didn’t the young snot suggest that in the first place
I’ve always taken my own direction and sourced all information given to me by the specialists
It is good 2 C that there are tangible benefits to medical cannabis. Note that CBD extracted from hemp oil is NOT the same (chemically superior / entourage effect) as the more commonly (selected) medical strains of cannabis.
It is not a cure all, but it can make a dramatic difference. I've claimed in other posts that medical cannabis has a lot of untapped potential.
You are addressing inflammation issues with CBD, but there is also MORE benefit if you have access to tinctures (or other quality extracts). A bit of THC, added to CBD makes it more effective. I'm talking about 5:1 or greater ratios.
Full spectrum extract, including some THCa, which is non psycho-active packs a stronger punch.
You can learn to extract your own (without blowing yourself up - LOL). There's lot of source material to check out.
We wish you well on your journey - you've come a long way !
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6 years now and PSA <0.01 is it time for a vacation?
Diagnosed with Gleason 6
Sedentary 75 year old
Update after 6 and a half years of treatment with triptolerin (Decapeptyl)
Now 6 years in Lupron alone failed my Gleason 9 nmpca
