I had my sixth 6 month injection of Lupron. As I continue along this difficult road, I find it increasingly hard to accurately remember stuff: complex or simple doesn’t really matter.
I don’t remember such a large increase in pain, concentration issues, physical unease, emotional stability, etc. with any of my prior injections.
Is this a common side effect to Lupron over a three year period or is it just me?
Thanks to this group (you are becoming a special family).
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Twoofus
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I've been getting Lupron shots continuously since 2013. So normally it takes me a while to get out of the brain fog in the morning.
Concentration is a problem so I'm constantly working on this. Instantly remembering things does not always come easy which is frustrating. I've found that exercising helps a lot, I try do this every day. I had a trainer at the Huntsman Cancer Institute in Salt Lake City who worked with me on different exercises that help with cancer. The exercises seem to help rewire the brain.
How old are you? I am 82 and the symptoms that you mention are common in my recent life. I do not take Lupron at this time but I am on estradiol patches and my Testosterone is near castrate
everyone is different usually the number on your psa determines the length of life. some men live long and some not even if their psa isn't really high.the levels u are at for fighting this disease also makes a difference
Following AD-3 for 7 months, I stopped Lupron and Casodex, continued with Avodart and Metformin until 2-24-2015 then started patches again until 9-22-15 when I stopped patches again then continued with Avodart and Metformin until 10-07-16 when I started patches again. I stopped the patches on 11-2017 and re-started on 4-14-18.
I initially was using 4 patches until August 2018 when test results indicated that after 3+ years of using 4 patches on and off, the treatment was not working as originally so we increased the dosage from 4 to 6. Going to have new tests next week and will see where I go from here.
Other than having a nice set of boobies, I've had no side effects but at 82 years old, I can live with that
I started four patches of .1mg per day a week ago after being on intermittent ADT3 for four years . My nipples are sore and breasts are hardening. Same thing resulted from bicalutamide. I hope it gets better soon.
Who did you have as a trainer at HCI? My MO mentioned a new program for physical exercise and my support team has talked about "mental" exercises as well. ThMkd for any info you may have.
My trainers name was Patric, he's not there anymore. However, he was part of the Huntsman wellness program. They evaluate what you need and then setup a personized program for you to work on. Part of this is they with with you so that you know how to do the exercises. And you can use their facility to do them. I was going up regularly to get their help. Now I follow the exercise routine but do it at the gym. The program at Huntsman only cost me my time.
Thanks. I do like their wellness center. Most of their trainers are with the U of U and move on once they complete their schooling. Am really interested in the program that they are developing. Supposedly just hired a specialist from MD Anderson to design the program along with the nutrisionists that they have. I see my MO on the 7th so maybe will have more info then. If it help with the blahs of ADT I'm all for it. In fact my MO says he is focusing some of his research on getting beyond Lupron. He gets it, ADT isnt fun but right now is a standard. Gives me some hope for what future may bring.
For me ADT side effects seem to be cumulative, I’ve been on triple ADT for nearly 5 years, I definitely suffer from cognitive side effects. Memory issues, searching for words, brain fog, etc. I just turned 60.
I’ve learned to laugh at myself, it’s the new normal. I exercise daily which is supposed to help as well as exercise my brain with reading, family budgeting, etc.
It’s keeping my cancer in check right now so I view it as a “significant but acceptable side effect”.
I'm on ADT one year now and some days are difficult but for the most part it keeps me alive. PSA has been undetectable since my first month treatment. As for the memory thing what's the question again?😛😛
I have been on firmagon or Lupron for 2 yrs now. The brain fog an fatigue are the worst part of it. At 55 I still work a 40 hr week as a manufacturing engineer. Complex design projects have become very difficult, and as a result I have been put on " light duty", mainly working on smaller tasks and drawings.
Yes yes and yes!! Oh, you said years, you’re lucky. Mine was @ 3 months!! Now @ 18 months it’s soooo much more!! Memory gone and most cognitive ability “seriously” impaired!!! Add that to the normal “menopausal” SE’s and it’s time for a change!!! Taking a Eligard QoL (quality of life) vacation! PSA is non-detectable so, now is the time as that standart ADT treatment now calls for 18mo’s.
I’m hoping that the PSA#’s behave and I can get my: mind, personality, strength & body, job........ back!! Or maybe some of it.
On lupron for 2 years now. 69 in June. Used to be sharp as a whip. Now dull as .... can't think of a word. As someone here once said words are at the tip of my tongue. People help me with the words. They never say anything. But I sometimes mumble I'm on drugs. Retired, not working so only an inconvenience for me. Don't know if you quit that you will regain the use of those brain connections. Someone here probably knows. Don't believe that matters to me. Believe I'm a lifer, when it comes to lupron. Pun intended.
Hirsch is right about exercise. Also when you retire you lose interaction and job responsibilities . Play brain games...they really help you ...I would give you the name of the one I use but I forgot the name.....no really Lumosity is the name....flying makes me concentrate, I do not do crossword puzzles but that would also help...Now what was I doing....????? Blue Skies. Pilot 52
I am about to start zytiga pills, 4x/day I believe, anyone have ideas on the best time to exercise, e.g. early morning before taking a pill, or does it really matter.
I take my 4 zytiga before I go to bed and prednisone in the morning, exercise around 2 in the afternoon go home and nap from 4-5 I am 67 and have been on it and Lupron a year makes you tired.
Thanks Jed, if daily zytiga can be taken at once, I'll take it at night like you, and exercise in the morning to try to negate the effects, so I can get on with my day.
I am now 19 years out on Lupron continuously and I am getting along and just moved into a new house on an acre of land on the top of a mountain after my wife’s death three years ago. You have to know that it is not easy but you can live a reasonable fruitful life For in spite of the side effects we all live with chronically every day. Courage my friend. Michael
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