Bone Pain

[Josephaloysius]

From the initial discovery of stage 4 crMPCa, generally how long does a man have from being asymptomatic to the onset of cancer invading the bones and causing pain???

[Shooter1]

Never know. I started as stage 4 (PSA 64) mets in lymph nodes and 3 in bones. Prostatectomy (ended pain), Lupron ( quit after orchiectomy), docetaxel (9 cycles), Xtandi. Now PSA 0.140 area and stable....Doc says I'm in remission after 8 mo. with no PSA change and no pain.

[Josephaloysius in reply to Shooter1]

Thanks shooter, presently at Dana Farber, been on Lupron/Pred/Zytiga for about 12 months and have little side effects, Mets all over the place. Just wondering when the party will start... PSA at 40, down from 46. First decline since i started.

[Hidden]

That's a large range of time, dependant on many variables. It will mainly depend on what treatments are taken and how well the patient responds to them.

The most important thing is to follow a good course of proven treatments and just take one day at time.

For peace of mind, I try to live in the present. I've found from my experience, thinking about the future and how long until this or that happens decreases my quality of life. I just deal with what is happening today. I don't have pain today. My treatments are working today. The idea is to maximize the quality of whatever time we have. Living in the present tense helps that so much.

[Josephaloysius in reply to Hidden]

Thank you Gregg. Presently at Dana Farber, been on Lupron/Pred/Zytiga for about 12 months and have little side effects, Mets all over the place. Just wondering when the party will start... PSA at 40, down from 46. First decline since i started.

[Hidden in reply to Josephaloysius]

Do you have pain today?

[Josephaloysius in reply to Hidden]

No pain from the Ca, just old age (82). The pains i get usually go away in a day to two so i ignore them.

[Hidden in reply to Josephaloysius]

Great. In that case, the party starts today.

[j-o-h-n in reply to Hidden]

You stole the words right out of my fingers....Terrific post....

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 02/20/2019 9:31 AM EST

[Hidden in reply to j-o-h-n]

I remember one of the first appointments with my Medical Oncologist. I started asking about all the treatments, but by then I knew the answers. So what happens when ADT fails? I go on second-line. Then what happens after that fails, probably back on chemo or maybe Xofigo, then maybe second-line chemo. The doctor nodded. And then what happens after that? What happens when I run out of treatments? The doctor said we would find some comfort care for me. By then I had upset myself so much I was in almost in tears. I remember thinking something like "Oh my God, I'm in hospice care already!"

Then soon after I thought to myself "You idiot! look what you just did!" Just skip the best parts of what you have left and dwell on worst part, smart plan.

That was a great lesson for me. Never did that again. No one has a future there's no point in dwelling on something that is hypothetical. Of course we to need to do basic planning for things that could and will happen, but that's different. Everyone should have their "affairs in order" regardless of their prognosis. But then live every day to its fullest. That's when the real party starts.

[j-o-h-n in reply to Hidden]

"Humor" is my motto.... I laugh as much as I can cause there may come a time for tears.... laugh your ass off...Now...

"live every day to its fullest. That's when the real party starts". AUTHOR! AUTHOR!

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 02/20/2019 11:28 AM EST

[Hidden in reply to Hidden]

I've been told that none of us are getting off this planet alive.

[ctarleton in reply to Hidden]

Big Lupron Hugs, Gregg!!

[Hidden in reply to ctarleton]

Lupron hugs back to you!

[cesanon]

Dumb question, what is the difference between crMPCa and metastatic PCa.

[Tub111 in reply to cesanon]

“Eventually, many men with metastatic prostate cancer develop castration-resistant disease. This means that the cancer is able to grow and continue to spread despite using hormone therapy. ... These treatments may include chemotherapy, targeted therapy, and other types of treatments”

As per google on cancer.net

Hope this helps?

Sheri (cheerleader for you all now)

[Josephaloysius in reply to Tub111]

Thanks Sheri: Presently at Dana Farber, been on Lupron/Pred/Zytiga for about 12 months and have little side effects, Mets all over the place. Just wondering when the party will start... PSA at 40, down from 46. First decline since i started.

[Hidden in reply to Josephaloysius]

Going down is good . Hope is to keep that going. Only god can understand this convoluted disease.... I think pc has been here from the first man .Designed to bring down even the strongest of us.. We ‘re just it’s latest vics...enjoy anytime in the sun instead of waiting for the meat grinder to start back up . I know .easy to say . Almost impossible to do . This waiting and wondering when the sucker is coming to eat us up , is the mental misery of APC. I’ve been clear a couple Years . Still ,we can never drop our our guard .

[Josephaloysius in reply to cesanon]

?

[j-o-h-n]

I'll answer in Lithuanian: "Only God knows and He/She ain't telling".

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 02/20/2019 9:35 AM EST

[monte1111]

Diag. march 2017 extensive bone mets. T-12 spinal compression. I have early morning stiffness at times, ache sometimes and bending a lot is not good. Thought I would be a basket case or a goner by now but am getting along just fine. Got my psa yesterday. 0.2

Started 59.9 A heavy volume of mets usually calls for chemo I believe. I went chemo then xtandi. I forget who, but someone here is doing chemo and zytiga at the same time I believe. Tall_Allen and others would recommend mindfulness. Don't worry about something until it actually happens.

[Crabcrushe]

I had the pain before the diagnosis; it's an alarm that tells you to scrap harder and employ every weapon under the sun to include trials, tied-and-true-and even "hey, I heard that if you..." techniques on occasion. Pain is the Enemy coming close enough to kick, bite, gouge and body slam. Let pain make you grit your teeth, crouch and CRUSH the diabolical crab bastard into shards so your progeny can fight somethin' else on down the road. Crab nips remind me to rumble.