Bone Pain

[Jack54]

When one first gets mets to the bone, is the bone pain constant, frequent, occasional or intermittent? Is it sharp achy….? What will one expect.

[Kaliber]

Mets to the bone aren’t necessarily painful. ADT, for example , will shrink / kill bone Mets and stop them from hurting. Mets that are persistent that hit spinal nerves, for example, can often be radiated to kill them off on an individual basis where needed. opiate pain meds work very well for bone pains, and can work well enough to allow you to sleep comfortably and go about your daily business fairly comfortably as well. Persistent bone pain can be excruciating but can be dealt with most of the time. Most aPCa men have mets that don’t hurt at all, for the most part. Painful bone deformities caused by mets don’t respond to ADT , but …once again, opiate pain meds can usually help manage those nicely. Surgery can relieve bone on bone met bone damage if necessary. This is just my own personal experience and IMHO , and that of my friend Urang ( on this group, now passed ) . There certainly must be many variations on this. Herze hoping your Mets aren’t in painful places.

❤️❤️❤️

[SteveTheJ in reply to Kaliber]

+1 ... I think you'll know if your bones are being damaged from metastasis.

[GP24]

Some patients have bone mets everywhere and have no pain. They can feel great.

[Leader4077 in reply to GP24]

I have 14 bone Mets according to my PSMA and CT scans……….so far, 2 years later, NOPAIN.

[MJCA]

I have mets on my ribs, spine, left hip and pelvis. I have NO pain. When I see my MO I am always asked if there’s pain.

[Benkaymel]

It depends on the size of the mets. I have three large ones - one on the ribs, one on the pelvic bone and one on my spine and I get discomfort from all of them. I'm in the process of having them irradiated. I also have numerous small bone mets that I don't feel at all. I'm hoping ADT+Xtandi will keep them under control.

[KocoPr in reply to Benkaymel]

Nest of luck on your upcoming radiation treatments. Keep us informed.

[Benkaymel in reply to KocoPr]

Thanks. I keep my Bio up to date so you can follow my progress there.

[CAMPSOUPS]

Ligaments are attached to bone. My pains have usually been under certain movements and yet sometimes varying between burning and deep aching, throbbing restlessness in my long bones (hip, arms and legs ) even when not moving. Psychologically I don't like to push on my known mets with my hand but I do sometimes and it will elicit a pain as if hit by a baseball. I seem to be especially hit where many are in the upper femur and hip and pain redeveloping there is like the canary in the coal mine, I know likely my PSA is rising.

One of my MO' s confirmed or nodded in the affirmative that even when bone mets abside they can leave behind damaged ligament and surrounding tissue. Initial treatment 3 years ago eliminated right shoulder and scapula pain I had at diagnosis but my right arm has lost 30% or so of range of motion.

Sorry, anyway I think the pain is not the same from one to another and varies within the individual as well.

[KocoPr in reply to CAMPSOUPS]

So sorry to hear how much pain you are in.

[CAMPSOUPS in reply to KocoPr]

Oh my no worries. I experienced in the months prior to dx in right shoulder/scapula and a few times since in this journey in other locations when treatments were failing and progression taking place but for example right now I have minimal pain in left hip and femur mainly only with certain movements or positions.

Not a big deal. I can sleep for example and occasionally need anything from high dose Ibuprofen to low dose Norco. Despite skull to shin mets still showing up over these last 3 years.

Others have it much worse and unfortunately more often than not it will be a "feature" of life towards the end of life with this darn PC.

Thanks for your care though.

[JD-guy]

Before DX, and before I knew what bone mets were 🙂 I had an real deep ache to my left upper arm , (it was mets). Radiation and other treatments helped to take away the pain. I cracked a couple ribs just rolling over in bed about the time of DX. They did not hurt before. But that brought pain. I have other mets that have not given me any kind of pain at all. This is my experience.

[EdBar]

if I recall when I was first dx the pain in my back was frequent but not constant. It was not a normal ache, it felt different. It was more of a pretty intense ache versus a sharp pain.

Ed

[NEHOG]

Extensive mets to bones here. Only problem is some jaw pain which we believe is related. Other than that no pain at all.

[dhccpa]

I've had virtually no pain over almost 5 years. I'm not sure that even small intermittent pains have been related to my mets.

[NecessarilySo]

I'll never forget my first bone pain. It was a pain in the ass...literally.

[Kaliber in reply to NecessarilySo]

lol 😂😂😂

[Islandboy2021]

I get a tingling feeling at the areas where the mets are. I have recurrent disease and before my scans I was at work and thought I cracked some ribs. The pain was terrible for a week or so and then went away. The scans showed I had new mets in the ribs that I thought I had cracked. I have been on ADT since 2017 and have recently been diagnosed with osteoporosis.

[Currumpaw]

Each one of you who have responded with your own experiences which vary greatly are to be commended.

A fellow I met who was young had been a police officer for a couple years when diagnosed. His cruiser was in an accident while on the job. He was ex-rayed for injury and his prostate cancer showed up. He had mets. He was too young by far to be considered for the PSA test for yearly physicals. After the ex-rays his PSA was over 5,000! He told me hadn't noticed anything and if he hadn't been in the accident he wouldn't have known until ---?

He passed several years ago. He had every treatment as he was quite young. He went through up times and then down times. He did his best to enjoy the times when he could enjoy life.

Be well friends!

Currumpaw