What to ask oncologist re lupron - Advanced Prostate...

Advanced Prostate Cancer

20,782 members25,887 posts

What to ask oncologist re lupron

Rogersw profile image
9 Replies

I’m seeing my oncologist on Monday and I’m not sure what I should be asking him. I am nearly five years into Pca and have been on Lupron (prostrap) three monthly injections with very low dose steroid all that time. My psa dropped from 180 to 6 in that time. I didn’t expect to stay on lupron for so long and I just can’t work out why but I have noticed some on here have had long survival on lupron but with a lower psa than I’ve got to. Should I be pushing for more powerful drugs/chemo etc or just be grateful lupron is doing its job. Met pain in hip disappeared very early on in treatment and only the the usual side effects (flushes, lack of sex drive (zero in fact) weight gain, and a bit of fatigue. I keep fit gym walking etc and am a veggie and 72.

Any advice appreciated and can I take this opportunity to thank so many of you on here for all the information and advice you hand out this site has been a god send. I do try occasionally to add my thoughts which I hope are of some use to someone.

Written by
Rogersw profile image
Rogersw
To view profiles and participate in discussions please or .
Read more about...
9 Replies
Schwah profile image
Schwah

I’d ask about adding chemo or Zytega. Early use with those drugs (chemo with more than 4 mets and Zytega with any amount of mets) has been proven to reduce deaths by some 40% vs either alone.

Schwah

Tall_Allen profile image
Tall_Allen

Why are you taking a very low dose steroid? That is usually only taken when someone is taking Zytiga.

Shooter1 profile image
Shooter1

Sounds like you are doing really well. Do question the steroids--what for??

Roger, You are in England and as such, metastatic prostate cancer treatment varies from that of the Colonies....... and treatment, via clinical trials varies just as much in the Colonies....... it boils down to Standard of Care........

You are taking a low dosage of a Glucocorticoid with your hormonal therapy. Glucocorticoids are used in the treatment of metastatic prostate cancer to slow disease progression, improve pain control and reduce side effects of hormonal therapy. They are also used with chemotherapy. Note: I took a much higher dose of Prednisone daily for six months as this drug is believed to cause PCa cell apoptosis and self destruct.

I would expect you to be on hormone therapy until it longer works in suppressing your cancer.

I wish you the best.

Gourd Dancer

Rogersw profile image
Rogersw in reply to

That’s exactly what the man said

j-o-h-n profile image
j-o-h-n

If your Oncologist is a female (and good looking), ask her what's she doing tonight?

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 02/17/2019 7:58 PM EST

Tommyj2 profile image
Tommyj2 in reply to j-o-h-n

With no desire and lack of ability to perform... why bother.... Play cards?

j-o-h-n profile image
j-o-h-n in reply to Tommyj2

Never mind.... but in the old days... we played solitaire... with a good hand you didn't need a partner....

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 06/23/2019 6:47 PM DST

Rogersw profile image
Rogersw

Thanks for your replies guys appreciated

You may also like...

PSA rising during triplet therapy. What to ask the oncologist?

blood test PSA Feb.02: 356 Started Docetaxel on Feb.02 PSA Feb.27: 121 PSA Mar.20: 99.30 PSA...

What life extending questions would you ask the top oncologist. If you were me.

unsuccessfully, my PSA rose. to 243 then docetaxal docetaxal which was unsuccessful Psa rose...

Failing Lupron? What's next?

years on hormone therapy and 6 rounds of chemo, my dad's PSA is beginning to slowly rise. It has...

Questions to ask the Oncologist for upcoming visit tomorrow!

pelvic region, so ordered PSA that came back 0.2. I am seeing a Radiation Oncologist tomorrow in my...

What follows Lupron and Zytiga?

Hi- I am 10+ years on Lupron and Zytiga (aberaterone), which included 3 vacations during first 5...