Apalutamide

Anyone on Apalutamide? (Erleada) Might start it, not Provenge, in Feb. if chest&full-body CT scans in a week don't show metastesizing. Problems with it? Downsides? Upsides? Preparation complexities?

My stats:

Diagnosed 13 years ago at age 59 with inoperable irradiatable (due2Porphyria) PCa - PSA was 23 in 2006. Gleason: high score (100% of 14 samples malignant, seminal vesicles OK).

On Lupron-only mostly continously for 13 years, but now resistant past year. Latest PSA=14, crept up from 0 at 13 yrs ago after that first injection. Casodex discontinued due to recurrent shingles (58 outbreaks when 1 is more than enough! 4gramsValtrex daily now keeps it from recurring).

No metastasis yet says 2 recent pelvic CT Scans and a 2009 fb bone&skull CT scan.

[Tall_Allen]

Put "Erleada" in the search bar. Darryl recently ad a thread where he asked for people's experience with it.

healthunlocked.com/advanced...

[Pmann]

I have been dating Erleada for a little over sixty days now.

My female MO says the name reminds her of a working girl.

My PSA has gone from 2.5 down to .11. Been fighting this beast since 2000 with rad, chemo, Zoladex, Lupron, Casodex. Sixty three years young.

Side effects of Erleada primarily muscle soreness and GI issues.

Still walking daily, swimming, light weights and going to work.

Fight the good fight. Amen.

[mcp1941]

I started Erleada about 7 months ago. PSA 4.0 when I started Erleada. First PSA test about 2 months later was 0.6. That was great news, then PSA started to climb: 0.7, 0.9, 1.3. Next test early March. Only new side effect was very high blood pressure. Cardiologist added a third drug to control BP. I have been fighting this demon for more than 22 years.

[Hidden]

Friday Update:

AetnaMedicarePPO insurance denied last night their pre-certification for Monday's chest CT scan that was to have looked for lung mets. They recommended a chest Xray instead, so I did that this morning (it showed "normal").

Wondering, would a regular chest Xray (rather than CT scan) prove there are no mets? Seems odd to me that an Xray would be as good as a CT scan?

Getting a full body nuclear bone scan on Monday to look for bone mets, assuming insurance pre-certifies that. If no mets show, then oncologist will start me on Apalutamide (Erleada) soon.