SIMCAP participant - looking to share - Advanced Prostate...

Advanced Prostate Cancer

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SIMCAP participant - looking to share

HopingForTheBest1 profile image

I am a SIMCAP clinical trial participant at CINJ, and in the surgery group. Currently on standard of care ADT, which is working for now. My robotic surgery is scheduled for Nov 14. Would like to reach out to any others in this forum who are either in the trial, or considering joining.

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HopingForTheBest1
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I’ve been on a different trial for four years with success. One benifit is that they will thoroughly test you at regular intervals.. Best of luck moving forward...

HopingForTheBest1 profile image
HopingForTheBest1 in reply to

Thank you. So far, I have not found any other participants for my trial on this forum. I guess it would not be surprising as the # is less than 200.

in reply to HopingForTheBest1

200 ? That is small ..I’ve been on HealthUnlocked for over a year and haven’t seen anybody on my test either. My test drug Tak-700 has been terminated because it failed to meet its goal of extending life..for me I believe it’s helped . I did Lupron Until orchiectomy 9-16. Still on the test pills . Clear of all signs for 3yrs.. I hope that you can get to the clear zone for awhile and enjoy life for many many years to come. Although I’m elated to not have any visable signs currently , it is said

That there can be 2-3 million PC cells undetectable to any scan living in inside of us. It’s a ticking time bomb ...in my opinion..that we all will

Carry with us until the end .. Treat your body kindly but hit the PC hard..Best wishes for success in surviving with limited suffering..

HopingForTheBest1 profile image
HopingForTheBest1 in reply to

Thanks so much for your words of encouragement. I wish you all the best as well.

in reply to HopingForTheBest1

I expect good results for you. Hang tuff...

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